Top Tweets for #UCD23
@SWAN_UK Great to hear #UniqueFeetCam mum Becky’s story and helpful finding @SWAN_UK has been for their family It’s so important to find people who ‘get it’ and can share their experiences of similar challenges.
#UCD23 🦢
Today is #Undiagnosed Children’s Day!
We’re joining @SWAN_UK to raise awareness for the families of the 6000 children born each year who have no overarching diagnosis for their medical symptoms or developmental delays.
(Image: slideshow of photos of #UniqueFeetCam kids)
#UCD23
We call this a ‘syndrome without a name’ or a #SWAN condition. The #genetic change causing the condition might not be understood or 'discovered' yet. *LF
#UCD23 #UndiagnoisedChildrensDay2023 #SyndromeWithoutAName #SWANUK
But every year there are around 6,000 children in the UK born with a very, very rare change to their genetic code which means they may be the only person with that change, or one of a handful of people around the world. *LF
#UCD23 #UndiagnosedChildrensDay2023
Hi, I’m Louise Fish, and I am the Chief Executive @GeneticAll_UK, which is an alliance of over 200 charities supporting people with #genetic and rare conditions, and we run the @SWAN_UK project. *LF
#UCD23 #UndiagnosedChildrensDay2023
#ThisIsRareThisIsMe is @SanofiUK's community choir, aiming to unify and empower the voices of the rare and undiagnosed community and features two of our members, Marie and Dottie, singing along using Makaton.
You can watch the full video here: https://t.co/3H7jHdHIH7
#UCD23
Delighted to support #UndiagnosedChildrensDay2023 #UCD23 & help raise awareness of undiagnosed conditions. Check out @SWAN_UK throughout the day for takeovers, posts, information & more! @SWANUK_Cymru @GeneticAll_UK @ResearchWales @GenomicsWales @MedGenWales @rarediseaseuk
IT’S UNDIAGNOSED CHILDREN'S DAY!
Today is all about raising awareness and celebrating our community. Around 6,000 children are born in the UK each year with an undiagnosed genetic condition. Get involved by sharing your story.
#UCD23 #UndiagnosedChildrensDay2023
IT’S UNDIAGNOSED CHILDREN'S DAY! Today is all about raising awareness and celebrating our community. Around 6,000 children are born in the UK each year with an undiagnosed genetic condition. Get involved by sharing your story. #UCD23 #UndiagnosedChildrensDay2023
IT’S UNDIAGNOSED CHILDREN'S DAY!
Today is all about raising awareness and celebrating our community. Around 6,000 children are born in the UK each year with an undiagnosed genetic condition. Get involved by sharing your story.
#UCD23 #UndiagnosedChildrensDay2023
It's #UndiagnosedChildrensDay2023 today & we're supporting our friends @SWAN_UK who help all those families who don't have a diagnosis for their child. Many @Unique_charity families spent lots of time in this situation before #genetic testing found their child's diagnosis. #UCD23
As we develop therapies for #raredisease, we acknowledge the millions of children globally who have undiagnosed genetic conditions, and look forward to when diagnosis will bring them closer to treatments #UCD23 #UndiagnosedChildrensDay2023 @SWAN_UK
IT’S UNDIAGNOSED CHILDREN'S DAY!
Today is all about raising awareness and celebrating our community. Around 6,000 children are born in the UK each year with an undiagnosed genetic condition. Get involved by sharing your story.
#UCD23 #UndiagnosedChildrensDay2023
IT’S UNDIAGNOSED CHILDREN'S DAY!
Today is all about raising awareness and celebrating our community. Around 6,000 children are born in the UK each year with an undiagnosed genetic condition. Get involved by sharing your story.
#UCD23 #UndiagnosedChildrensDay2023
A very BIG THANK YOU @sparkleappeal for hosting and supporting our family event on Sunday ahead of #UndiagnosedChildren'sDay2023 #UCD23 #MySWAN
1 WEEK TO GO!
One final push to show the world how wonderful our community is. Join in by sharing what your favourite three things are.
Tag us in your #UndiagnosedChildrensDay posts!
#UCD23 #undiagnosed #MySWAN
Two weeks to go until #UndiagnosedChildrensDay2023!
Who has their Facebook profile frames changed and their handmade paper swans decorated?
Click the links to get involved in this year's campaign: https://t.co/LQbBoysCBf
#UCD23 #undiagnosed #MySWAN
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