Top Tweets for #UniqueButNotAlone
Thank you @ramonazmoldovan and your genetics 🧬 colleagues for giving up a ☔️Saturday to come and help out! We all had a great day meeting @Unique_charity families. ❤️ Nothing beats meeting in person #uniquebutnotalone #familydays
Fabulous Family Day organised by @Unique_charity in ☔️ #Manchester
Such a treat to spend the day with children, parents, clinicians, scientists and magicians 🪄
@swynn_unique @smbanka @mft_iMRare
From the @unique_charity team, a huge thank you to all of you for getting behind #RareChromoday today. If you need help, we're here for you. Visit https://t.co/tzI1uqWGyF to support our work.
#rarechromo #uniquebutnotalone
Did you know? Our information guides to disorder-specific #rarechromosome and #gene conditions are available free to read and download at https://t.co/ag2cl33XxA
#uniquebutnotalone #rarechromoday #geneticdisorder #raredisease #awareness
It's #RareChromoDay! Celebrating anyone living with a rare chromosome or gene condition and their families and carers.
Get involved here https://t.co/GXSjcty8r8 #unique #RareChromosomeDisorder #GeneDisorder #RareDisease #Genetics #UniqueButNotAlone #rarechromo
It's #RareChromoDay! Celebrating anyone living with a rare chromosome or gene condition and their families and carers. Please show your support...
More at https://t.co/bOANMvZpsk
#unique #RareChromosomeDisorder #GeneDisorder #RareDisease #Genetics #UniqueButNotAlone #rarechromo
Today is #rarediseaseday celebrating everyone with a rare condition across the world. Together we are stronger. Eimile has a rare condition called TRAF7 ❤️ @Unique_charity Together we are unique x
#uniquebutnotalone #genetics #genomics #raredisease
A couple of comments about #ThereSheGoes on BBC2 from @unique_charity families: "accurately shows how the whole family dynamic works when you have a special needs child" & "this could be filmed in my house...!" This is the reality for many families. #uniquebutnotalone
Lots of issues cut cross many rare chromosome & single gene conditions, which is why Unique links families not only on the diagnosis, but also on the symptoms & challenges they face. More at https://t.co/R8KZumaaUY #rarechromoday #uniquebutnotalone #bettertogether #genetics #fact
Celebrating some of the amazing women who volunteer as Trustees of @Unique_charity and our staff team who work so hard every day to help those who need us. #InternationalWomensDay #IWD23 #uniquebutnotalone #shinebrighttogether #rarechromosomedisorder #genedisorder
Unique's CEO @swynn_unique & Chair of Trustees @sophie_sainty were delighted to represent @Unique_charity & all those living with rare chromosome conditions at the #RareDiseaseDay reception in parliament today. #uniquebutnotalone
Well done Emma & Joel (and Ophelia, obviously!)... great awareness raising! #genomics #rarechromo #uniquebutnotalone
"We're extremely grateful to the NHS."
Emma and Joel share their thanks to the teams in the NHS Genomic Medicine Service that helped get a diagnosis for their little girl, Ophelia. They can now access specialist support and more information about her condition. @Unique_charity
Safe to say it's been another busy year for the @Unique_charity team! #genomics #genetics #rarechromo #uniquebutnotalone
To all our members, friends, supporters and followers in the US.... Happy Thanksgiving! #uniquebutnotalone #genomics #rarechromo #Thanksgiving2022
This week is #trusteesweek so we're saying thank you to our 9 brilliant trustees who volunteer their time to help @Unique_charity & those we support. #unsungheroes #rarechromo #uniquebutnotalone Read more about them at https://t.co/gwHo7iLROi (scroll down to 'Meet the Trustees')
If you're a parent, carer or professional, caring for someone with a rare chromosome or gene disorder, we @unique_charity are here to help you with information & support. #rarechromo #uniquebutnotalone #shinebrighttogether
@strugglingmeds2 👋 hi , you haven’t got anything disordered at all … you are you and that without knowing you had to be the best part of you if that makes sense ! #uniquebutnotalone
It's been another busy year for @Unique_charity - here are just some of the highlights in numbers. If you need our help, we're here for you....
#uniquebutnotalone #chromosomedisorders #genomics
Happy Hanukkah to all those in the @Unique_charity community who are celebrating! #HappyHanukkah #uniquebutnotalone
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