Top Tweets for #VEDSSupport
Putting a care team together, communicating with school and helping a child you love live their best life...it can be a lot to balance it all when you're a VEDS parent or guardian. Talk with others who get it at tonight's support group: https://t.co/i8XX7H4SMq #VEDS #VEDSSupport
Need a little support as you care for your partner or spouse living with VEDS? Find it at tonight's VEDS Partners & Spouses: https://t.co/i8XX7H4SMq #VEDS #VEDSSupport
Get advice on how to support your partner or spouse living with VEDS at our next support group: https://t.co/i8XX7H4SMq #VEDS #VEDSSupport
Meet others who are living with a VEDS diagnosis at one of our support groups: https://t.co/i8XX7H4SMq #VEDS #VEDSSupport
Are you wondering how you can better support your child as they live with VEDS? Use our Parent Toolbox to get ideas: https://t.co/0Xj2rY4uy3 #VEDS #VEDSAwareness #VEDSSupport
Who else thinks grief feels a little harder during this time of year?
Get advice from our community members about how they deal with it at VEDS Connect tonight: https://t.co/i8XX7H4SMq #VEDS #VEDSSupport
Do you have a patient living with VEDS? Do you need advice? Contact an expert: https://t.co/y0vtjgbeSS #VEDS #VEDSSupport #MedTwitter
Join Team VEDS for a Walk for Victory! Find out more: https://t.co/Wnl1NJQkQk #VEDS #VEDSSupport #MyWalkSavesLives
Having trouble talking to your child's school about VEDS? Get help by using our school packet: https://t.co/zSNpA9lrvs #VEDS #VEDSAwareness #VEDSSupport
May you be able to celebrate this Labor Day by relaxing with those you love. #LaborDay #VEDS #VEDSSupport
Have you claimed your free medical ID bracelet? Show us a picture in the comments! If you have genetically-confirmed VEDS, you can claim yours here: https://t.co/nllQSHNfoY #VEDS #VEDSAwareness #VEDSSupport
We had another victorious Camp Victory! Check out all the fun we had. #VEDS #VEDSSupport #CampVictory
Do you have a question about VEDS? Get an answer from a medical professional by submitting it here: https://t.co/W9WXbN78TU #VEDS #VEDSSupport #VEDSAwareness
Who will we see at Conference? Want to post what's happening in Chicago? Use the hashtag #chicagoconf23 so we can share your posts! #chicagoconf23 #VEDS #VEDSSupport
Unable to attend Conference and feel like you're missing out? You can still join us through the Virtual General Session! Learn more: https://t.co/Rs9ZGqqwVG #chicagoconf23 #VEDS #VEDSSupport
Can't make it to Chicago for Conference? Join us with the Virtual General Session: https://t.co/Rs9ZGqqwVG #chicagoconf23 #VEDS #VEDSSupport
We can help you find a doctor familiar with VEDS. Check out our directory: https://t.co/xsuT4joUTF #VEDS #VEDSAwareness #VEDSSupport
When you attend conference, you can see some of the best specialists in the world. Have you signed up for the Health Fair yet? The deadline is June 2: https://t.co/DnfoEQrzDc #chicagoconf23 #VEDS #VEDSSupport
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