Top Tweets for #VisualisingCare
I’ve cried due to support related issues or relationship strain 45 times in the last year. The emotional impact of organising support & the pressure this places on me, my team & family is huge & relentless, sometimes tears are the only logical response. 7/7 #VisualisingCare
55 times in the last year I have had to change my plans due to an issue with my support this included not meeting friends & not sleeping in my own bed. 6/7 #VisualisingCare
I have been without support 68 times in the last year, sometimes this is for minutes when a support worker is running late, sometimes this has been for hrs at a time due to a failure in my support arrangements. I have spent 108 hours alone in the last year. 5/7 #VisualisingCare
The impact of gaps in my care is huge & includes the disruption of critical tasks like having medication at the right time, eating, washing & being able to get out of bed. Critical tasks have been disrupted 73 times in the last year. 4/7 #VisualisingCare
I’ve spent 123 hours administering my care over 146 sessions. This includes: running payroll, completing assessments & monitoring for my local authority, NHS Trust & Access To Work & recruiting new support workers. 3/7 #VisualisingCare
Over the last year I’ve had unfilled support worker positions due to the national shortage of support workers & PAs. My existing support team covered gaps in my support 329 times. 2/7 #VisualisingCare
A year ago today I started recording data on my #SocialCare support. The time I spent organising it & the impact of things going wrong. A🧵 of images & stats from a year of labour & love. 506 communications with my support team taking a total of 70 hrs. 1/7 #VisualisingCare
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