#WSSDay - Twitter Hashtag

about 2 years ago

It’s #WSSday today! @EdieWeide was diagnosed with Wiedemann–Steiner syndrome in 2020. Edie is looking forward to being in her favourite place @Pompey on this special day for her. #Pompey Read more about WSS below

BOYWONDERB's tweet photo. It’s #WSSday today!

@EdieWeide was diagnosed with Wiedemann–Steiner syndrome in 2020.

Edie is looking forward to being in her favourite place @Pompey on this special day for her. #Pompey

Read more about WSS below https://t.co/CKT2nGldd7

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The Wiedemann-Steiner Syndrome (WSS) Foundation @WSSFoundation

about 3 years ago

We have hit $37,500. Next stop, $50,000! Share this post with your friends and family, so we can meet our International Wiedemann-Steiner Syndrome Awareness Day goal and fund the next phases of #WSS Research. #WSSday https://t.co/3gNf64aXXg

WSSFoundation's tweet photo. We have hit $37,500. Next stop, $50,000!
Share this post with your friends and family, so we can meet our International Wiedemann-Steiner Syndrome Awareness Day goal and fund the next phases of #WSS Research. #WSSday
https://t.co/3gNf64aXXg https://t.co/qMEWOKGTRp

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The Wiedemann-Steiner Syndrome (WSS) Foundation @WSSFoundation

about 3 years ago

Numbers are starting to roll in from events held this past weekend and we're at $35,000 and counting! We need your support to meet our International Wiedemann-Steiner Syndrome Awareness Day goal of $50,000 to fund the next phases of #WSS Research. #WSSday https://t.co/3gNf64aXXg

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The Wiedemann-Steiner Syndrome (WSS) Foundation @WSSFoundation

about 3 years ago

We are half way there! Thank you for the generosity. We are so lucky to have such a great community of support for our #WSS Warriors. Spread the word, and let's meet our #WSSday goal of $50,000 to fund the next phases of #WSS Research. https://t.co/3gNf64aXXg

WSSFoundation's tweet photo. We are half way there! Thank you for the generosity. We are so lucky to have such a great community of support for our #WSS Warriors.
Spread the word, and let's meet our #WSSday goal of $50,000 to fund the next phases of #WSS Research.
https://t.co/3gNf64aXXg https://t.co/5qZsa1pfcl

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The Wiedemann-Steiner Syndrome (WSS) Foundation @WSSFoundation

about 3 years ago

Yahoo! We just hit $20,000 in donations to help us fund the next phases of #WSS Research. Remember to share this post on your feed, to help us reach our goal of $50,000 by the end of #WSSday. https://t.co/3gNf64aXXg

WSSFoundation's tweet photo. Yahoo! We just hit $20,000 in donations to help us fund the next phases of #WSS Research. Remember to share this post on your feed, to help us reach our goal of $50,000 by the end of #WSSday.
https://t.co/3gNf64aXXg https://t.co/mRl5P1PJn8

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The Wiedemann-Steiner Syndrome (WSS) Foundation @WSSFoundation

about 3 years ago

We just reached the 20% mark. Keep up the great work everyone. Please help us reach our International Wiedemann-Steiner Syndrome Awareness Day goal of $50,000 to fund the next phases of #WSS Research. #WSSday https://t.co/3gNf64aXXg

WSSFoundation's tweet photo. We just reached the 20% mark. Keep up the great work everyone. Please help us reach our International Wiedemann-Steiner Syndrome Awareness Day goal of $50,000 to fund the next phases of #WSS Research. #WSSday
https://t.co/3gNf64aXXg https://t.co/fqYyCMaU9i

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The Wiedemann-Steiner Syndrome (WSS) Foundation @WSSFoundation

about 3 years ago

Today (September 15) is #WSSday. Together, we have already raised $5,000. Help us make International Wiedemann-Steiner Syndrome Awareness Day a success by raising $50,000 to fund the next phases of #WSS Research. https://t.co/3gNf64aXXg

WSSFoundation's tweet photo. Today (September 15) is #WSSday. Together, we have already raised $5,000. Help us make International Wiedemann-Steiner Syndrome Awareness Day a success by raising $50,000 to fund the next phases of #WSS Research.
https://t.co/3gNf64aXXg https://t.co/0rj45cyn8u

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Thor Misko @thor_misko

about 4 years ago

He watches @brendonurie and ALL your music videos on his tablet all...day...long... He even falls asleep listening to your music. So, if you see our sweet boy in section 106 row 1 come give him a high five! #WSSday @WSSFoundation @PanicAtTheDisco @FiservForum

thor_misko's tweet photo. He watches @brendonurie and ALL your music videos on his tablet all...day...long... He even falls asleep listening to your music. So, if you see our sweet boy in section 106 row 1 come give him a high five! #WSSday @WSSFoundation @PanicAtTheDisco @FiservForum https://t.co/PKGoKYnSPq

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Southern Soccer @SRRamsSoccer

about 4 years ago

Tough 1-0 loss vs. a good Manalapan team. Great 2nd half performance. The real winner today is Samuel Ehresman. Thank you for sharing your story. We honored Samuel today and helped raise awareness for Wiedemann-Steiner Syndrome. #WSSday @DonohueJr @TAPStaffordLBI @BiggySandPaper

SRRamsSoccer's tweet photo. Tough 1-0 loss vs. a good Manalapan team. Great 2nd half performance.
The real winner today is Samuel Ehresman. Thank you for sharing your story. We honored Samuel today and helped raise awareness for Wiedemann-Steiner Syndrome. #WSSday @DonohueJr @TAPStaffordLBI @BiggySandPaper https://t.co/DW1qx2Ln5s

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The Wiedemann-Steiner Syndrome (WSS) Foundation @WSSFoundation

about 4 years ago

Today is #WSSday! Learn more about the #WiedemannSteinerSyndrome Foundation by visiting our website at https://t.co/Mc064CfYER.

WSSFoundation's tweet photo. Today is #WSSday! Learn more about the #WiedemannSteinerSyndrome Foundation by visiting our website at https://t.co/Mc064CfYER. https://t.co/QY1Qiwtcr5

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The Wiedemann-Steiner Syndrome (WSS) Foundation @WSSFoundation

about 4 years ago

Dr. Wendy Jones, Consultant in Clinical Genetics at @GreatOrmondSt Hospital for Children in London, shared an insightful talk about #WSS for #WSSday. We thank @Wendy_D_Jones for her support! https://t.co/HBjPFvn2A8 #WiedemannSteinerSyndrome #TBT

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Sarah Spear @SarahSpearIt

about 4 years ago

Today I'm celebrating #WSSDay. My daughter has this rare genetic disease known as WSS, aka Wiedemann-Steiner Syndrome. She's vivacious and compassionate. She's also the inspiration behind @empowered2gethr where we're building support for families affected by disability.

SarahSpearIt's tweet photo. Today I'm celebrating #WSSDay. My daughter has this rare genetic disease known as WSS, aka Wiedemann-Steiner Syndrome. She's vivacious and compassionate. She's also the inspiration behind @empowered2gethr where we're building support for families affected by disability. https://t.co/gohnSeYSqZ

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PHS West @PHSWest

about 4 years ago

Today is #WSSDay! This day helps promote awareness for Wiedemann-Steiner Syndrome, a rare genetic condition often related to global developmental delays, sleeping difficulties, feeding and digestion complexities.

PHSWest's tweet photo. Today is #WSSDay! This day helps promote awareness for Wiedemann-Steiner Syndrome, a rare genetic condition often related to global developmental delays, sleeping difficulties, feeding and digestion complexities. https://t.co/fTvl9Uf39h

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WSS Psychology Lab @WSSpsychlab

about 4 years ago

On October 29 our @ElphickCamilla will present “What does it mean? Parents’ experiences of a WSS diagnosis” @WSSFoundation following research with Nicola Yuill @JessicaM_Psy Alison Davies #WSSday From this we devised considerations for clinicians with @Wendy_D_Jones

WSSpsychlab's tweet photo. On October 29 our @ElphickCamilla will present “What does it mean? Parents’ experiences of a WSS diagnosis” @WSSFoundation following research with Nicola Yuill @JessicaM_Psy Alison Davies #WSSday

From this we devised considerations for clinicians with @Wendy_D_Jones https://t.co/nKto6FYTJy

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WSS Psychology Lab @WSSpsychlab

about 4 years ago

On October 29 our @ElphickCamilla will present “What does it mean? Parents’ experiences of a WSS diagnosis” @WSSFoundation This research was conducted with Nicola Yuill @chatlabuk @JessicaM_Psy & Alison Davies #WSSday This talk will be on YouTube after the conference

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WSS Psychology Lab @WSSpsychlab

about 4 years ago

On October 29 our @JessicaM_Psy will present her talk “Are children with WSS socially vulnerable?” @WSSFoundation, following research also by @ElphickCamilla & Nicola Yuill @chatlabuk #WSSday This talk will be available on YouTube after the conference Here are some findings

WSSpsychlab's tweet photo. On October 29 our @JessicaM_Psy will present her talk “Are children with WSS socially vulnerable?” @WSSFoundation, following research also by @ElphickCamilla & Nicola Yuill @chatlabuk #WSSday

This talk will be available on YouTube after the conference

Here are some findings https://t.co/qndhrEy1Yp

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WSS Psychology Lab @WSSpsychlab

about 4 years ago

On October 29 our Nicola Yuill @chatlab will present “Common behaviour patterns & interactions in WSS: Parents’ experiences” @WSSFoundation from research also by @JessicaM_Psy @ElphickCamilla #WSSday The talk will be on YouTube after the conference Here are some findings

WSSpsychlab's tweet photo. On October 29 our Nicola Yuill @chatlab will present “Common behaviour patterns & interactions in WSS: Parents’ experiences” @WSSFoundation from research also by @JessicaM_Psy @ElphickCamilla #WSSday

The talk will be on YouTube after the conference

Here are some findings https://t.co/AmQ2MLNFaK

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WSS Psychology Lab @WSSpsychlab

about 4 years ago

On October 29, our Nicola Yuill @chatlabuk, @ElphickCamilla, & @JessicaM_Psy will present pre-recorded talks and a live Q&A @WSSFoundation International Family Conference #WSSday Recordings will be available on our YouTube channel after the conference Follow us for updates

WSSpsychlab's tweet photo. On October 29, our Nicola Yuill @chatlabuk, @ElphickCamilla, & @JessicaM_Psy will present pre-recorded talks and a live Q&A @WSSFoundation International Family Conference #WSSday

Recordings will be available on our YouTube channel after the conference

Follow us for updates https://t.co/UNUEKSHnCd

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WSS Psychology Lab @WSSpsychlab

about 4 years ago

In honour of #WSSday, we will be tweeting summaries of our research, which will be presented on 29th October @WSSFoundation International Family Conference Our presentations will be recorded and available on YouTube after the conference Follow us for updates

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The Wiedemann-Steiner Syndrome (WSS) Foundation @WSSFoundation

about 4 years ago

#WSSday is almost here. Join us in spreading awareness by updating your Twitter cover with one of these graphics!

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