#WhatIsFabry - Twitter Hashtag

MPS Society UK, here for those with rare diseases @MPSSocietyUK

over 2 years ago

As #FabryAwareness Month draws to a close, we’d like to share our latest Fabry roundup including an update from the Support & Advocacy team https://t.co/RYrz9u0twF and we hear from Martin who has watched his family struggle to get a diagnosis. #WhatIsFabry

0

4

0

69

MPS Society UK, here for those with rare diseases @MPSSocietyUK

over 2 years ago

Following on from her presentation on nutrition for people with Fabry posted earlier this week, Dr Seema Kanwal shares what she feels people should know about living with Fabry. #WhatIsFabry More videos for #FabryAwareness Month available here: https://t.co/krqHuMaQMw

0

3

0

170

MPS Society UK, here for those with rare diseases @MPSSocietyUK

over 2 years ago

Knowledge = early diagnosis. Spread the news about a new Fabry education tool for professionals. This #FabryAwareness Month send a copy of this handy postcard to any healthcare professional you interact with #WhatIsFabry. More info here: https://t.co/krqHuMaQMw

MPSSocietyUK's tweet photo. Knowledge = early diagnosis. Spread the news about a new Fabry education tool for professionals. This #FabryAwareness Month send a copy of this handy postcard to any healthcare professional you interact with #WhatIsFabry. More info here: https://t.co/krqHuMaQMw https://t.co/FgeImmLT1F

0

4

0

1

86

MPS Society UK, here for those with rare diseases @MPSSocietyUK

over 2 years ago

At #FabryMatters2024, Uma Ramaswami shared a greater insight into the transition of adolescents and young adults with Fabry disease from child-centred to adult-orientated health care systems. Follow up on her presentation: https://t.co/API4RpdqgI #WhatIsFabry #FabryAwareness

MPSSocietyUK's tweet photo. At #FabryMatters2024, Uma Ramaswami shared a greater insight into the transition of adolescents and young adults with Fabry disease from child-centred to adult-orientated health care systems. Follow up on her presentation: https://t.co/API4RpdqgI #WhatIsFabry #FabryAwareness https://t.co/jcwmY2WRfU

0

1

0

175

MPS Society UK, here for those with rare diseases @MPSSocietyUK

over 2 years ago

We asked our Fabry community what they want people to know about living with Fabry. Ruth shared her thoughts at the Fabry Matters Conference in March. #FabryAwareness #WhatIsFabry

0

9

2

0

187

MPS Society UK, here for those with rare diseases @MPSSocietyUK

over 2 years ago

Dr Moreno-Martinez talks about living with Fabry disease and what it means to navigate a rare genetic condition at the Fabry Matters Conference earlier this year. Find out about living with Fabry disease: https://t.co/bNBlynTkNt #WhatIsFabry #FabryAwareness

MPSSocietyUK's tweet photo. Dr Moreno-Martinez talks about living with Fabry disease and what it means to navigate a rare genetic condition at the Fabry Matters Conference earlier this year. Find out about living with Fabry disease: https://t.co/bNBlynTkNt #WhatIsFabry #FabryAwareness https://t.co/XPjAzMnpkY

0

2

1

0

99

MPS Society UK, here for those with rare diseases @MPSSocietyUK

over 2 years ago

It's Fabry Awareness Month! We've got lots planned and want you to share our posts throughout April so we can reach as many people as possible. Look out for facts, photos and presentations about Fabry coming soon and share them everywhere! #FabryAwareness #WhatIsFabry

MPSSocietyUK's tweet photo. It's Fabry Awareness Month! We've got lots planned and want you to share our posts throughout April so we can reach as many people as possible. Look out for facts, photos and presentations about Fabry coming soon and share them everywhere! #FabryAwareness #WhatIsFabry https://t.co/wkJM2Bp390

0

4

1

0

80

Top Tweets for #WhatIsFabry

Last Seen Hashtags on Sotwe

Trends for you

Most Popular Users