Top Tweets for #WorldPIWeek
Missed our webinar during World PI Week?
▶️ Watch the recording and stay informed
https://t.co/fgu2jtmMPO
🔔 Subscribe to our YouTube channel for more educational webinars
#WorldPIWeek #PrimaryImmunodeficiency #ALPPI #OplScientificActivities #OrderofPharmacistsofLebanon
Explore the toolkit here: https://t.co/8vuwUBISZQ Thank you for supporting World PI Week and helping us share the IPIA Patients Toolkit, Together, we can raise awareness, support one another, and grow a stronger PID community in Ireland. #WorldPIWeek #IPOPI #IPIA #PID #JoinIPIA
World PI Week 2026 met PID in de kijker !
#WorldPIWeek #worldpiweek2026 #primaireimmunodeficiënties #zeldzameziekten #burstthebubble
Become part of the IPIA community: https://t.co/8vuwUBISZQ No one should face primary immunodeficiency alone. This World PI Week, we’re highlighting the importance of connection, support, and belonging through the IPIA Toolkit #WorldPIWeek #IPOPI #IPIA #PIDCommunity #JoinIPIA
Explore the toolkit and help grow IPIA: https://t.co/8vuwUBISZQ Getting a diagnosis and understanding treatment can be overwhelming, Patients Toolkit, helps patients and families learn more about testing, diagnosis, and treatment options.#WorldPIWeek #IPOPI #IPIA #PatientRights
We’re so thankful for our incredible #WorldPIWeek sponsors whose ongoing support helps drive our mission forward - creating healthier, more hopeful futures for those living with Primary Immunodeficiency. Because of their partnership, the Jeffrey Modell Foundation is able to expand global awareness and grow impactful programs for the PI community. A sincere thank you for making this work possible. ✨
Living with PID https://t.co/D3AxBuWHrB can affect everyday life, practical support is so important. IPIA Toolkit, shares guidance. join IPIA to support our work #WorldPIWeek #IPOPI #IPIA #PID #PatientSupport #JoinIPIA
Because not every frequent illness is normal; sometimes, it’s your immune system asking for help.
#WorldPIWeek #PrimaryImmunodeficiency #HealthAwareness #StayHealthy
During #WorldPIWeek, IPIA celebrates St James’s Hospital milestones! ANP Aoife rep the team at IPOPI’s PID Forum in Brussels on "Growing Older with PID." Plus, their #Immunodeficiency Service earned QPIDS accreditation—first outside the UK! #StJamessHospital #IPIA #IPOPI #PID
This #WorldPIWeek, stories like AJ and Maverick’s remind us that no one faces PI alone - and that awareness, connection, and early diagnosis can change lives. AJ and Maverick are two incredible kids living with X-Linked Agammaglobulinemia (#XLA). Through advocacy, community, and even bringing Rare Disease Day into their school, this family is helping others feel seen, supported, and empowered. 💙 Read their full story here: https://t.co/GHiRdZyPcE
This #WorldPIWeek, we call for earlier diagnosis and equitable access to care for primary immunodeficiencies.
Through #Plasma4Life, we support access to essential plasma-derived therapies and stronger health systems.
#HealthForAll #UNITAR
Join IPIA today to connect, advocate, and build strength together! https://t.co/8vuwUBISZQ This World PI Week 2026 Patients Toolkit – your guide to understanding PID, daily support, diagnosis, treatment, advocacy, research and much more #WorldPIWeek #IPOPI #IPIA #PID #JoinIPIA
This #WorldPIWeek, IgNS recognizes the power of early detection, accurate diagnosis, and coordinated care for individuals living with primary immunodeficiency (PI).
Over 6 million people live with PI worldwide, but up to 90% may go undiagnosed.
At IgNS, we're committed to ensuring that best practice standards, education, and resources are available to improve patients' health and wellbeing.
#WPIW #WorldPIWeek2026 #PrimaryImmunodeficiency #IgTherapy
World PI Week is here, and we’re delighted to launch the IPIA Patients Toolkit that brings together trusted information and practical support for people living #PID Explore the toolkit and join IPIA #WorldPIWeek #IPOPI #IPIA #JoinIPIA https://t.co/8vuwUBISZQ
It’s World Primary Immunodeficiency (PI) Week! PI refers to a group of genetic disorders where the immune system does not function properly, making it harder to fight infections. Learn more about PI: https://t.co/rDxx3mH173
#SpecialtyPharmacy #WorldPIWeek
Primary Immune Deficiency Week reminds us that patients with a primary immunodeficiency not only struggle to fight infections, their immune system may mistakenly target their own cells like platelets which can lead to ITP. Learn more at https://t.co/rchZPW0a8z. #ITP #WorldPIWeek
“I control the illness — not the other way around.”
A powerful member story about resilience, courage, and living fully with PID. Read more here: #IPIA #PID #WorldPIWeek #WeCantWait #IPOPI #CVID #PatientStory #PIDAwareness https://t.co/D3AxBuWHrB
🌐 Our new IPIA website is now live — featuring a fresh look, easier navigation, and our new email address to help you stay connected. #IPOPI #WorldPIWeek #ThinkPI #WeCantWait #PrimaryImmunodeficiency #PIAwareness #NewWebsite
🌐 Our new IPIA website is now live — featuring a fresh look, easier navigation, and our new email address to help you stay connected. #IPOPI #WorldPIWeek #ThinkPI #WeCantWait #PrimaryImmunodeficiency #PIAwareness #NewWebsite
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