Top Tweets for #WorldTSCConference
Check out the Adults with TSC Corner in this issue of the @tscalliance Perspective Magazine for an interview with yours truly about highlights from the 2022 #WorldTSCConference and more great content! ⬇️
The digital issue of the Fall 2022 Perspective Magazine is now available, featuring a review of the 2022 World TSC Conference, an overview of a new clinical trial and a summary of this year's major events!
Read it now: https://t.co/kMLKznXxlL
Last week, our #epilepsy team attended the @tscalliance’s #worldTSCconference in Dallas to connect with patients, healthcare professionals, caregivers and researchers.
#TSCAlliance #TSCstrong
Last weekend I served on a panel at the #WorldTSCConference to discuss women’s health issues in TSC. This is an underserved area in the rare community; I’m grateful for the opportunity to give voice to gaps in research and care & for HCPs who came & committed to improving care.
Dr. Billy Holcombe represented via discussion, workshop, and lecture. Outstanding! #tuberoussclerosis
#tuberoussclerosiscomplex #tscstrong
#TScwarrior #iamTSC #tscalliance
#hopenomatterhowcomplex #worldTSCconference #epilepsy #epilepsyawareness #epilepsysociety #neuropsychology
Highlights from Day 3 of the #worldTSCconference: more great educational sessions, Blue Night where we honored Michael & Janie Frost with the TSC Champion Award, a TSC moms gathering, & more!
Thank you again to Title Sponsor @JazzPharma and Presenting Sponsor @NobelpharmaUS!
It's a wrap on an incredible weekend! All of us at Nobelpharma have enjoyed meeting and learning from 2022 #WorldTSCConference participants. Can't wait to do this again in 2024!
#FacialAngiofibroma #TuberousSclerosisComplex #TSC
Lifelong friends...fellow TSC warrior mother @MJMudd .great weekend getting updates in TSC. So much to be hopefully for! Dear friends, amazing doctors & research
@tscalliance #worldTSCconference
She added: put yourself in your calendar or “self-care” is just a word. Every week an alternate caregiver enables her to leave the house w/o responsibility, even if it is just listening to music in the car. Her husband enjoys the company of the male caregiver. #worldTSCconference
A nurse & social worker who unexpectedly became a caregiver to her spouse after a brain aneurysm offers advice: Expand your village. You need to trust others can provide good care so you can survive & thrive. You cannot do it all alone. #worldTSCconference
Inspired by meeting a doc from @ChildrensPhila at #worldtscconference: Sincere thanks to the clinicians who attend #raredisease conferences to connect with peers, learn about research & hear from the patient community in order to provide the best possible care to their patients.
Day 2 of the #worldTSCconference kicked off our education sessions featuring topics covering the entire TSC experience & world renowned TSC experts.
Thank you to our title sponsor @JazzPharma & our Presenting Sponsor @NobelpharmaUS. We are hopeful, relentless & strong together!
Dr. Tanjala Gipson at her first session. She will be presenting throughout the conference. #tuberoussclerosis
#tuberoussclerosiscomplex #tscstrong
#TScwarrior #iamTSC #tscalliance
#hopenomatterhowcomplex #worldTSCconference #epilepsy #epileptic #epilepsyawareness #epilepsysupport
PA got a shout-out in the #WorldTSCConference session on long-term planning for individuals with complex health needs for having the most robust ABLE plans in the US, providing a tax-free way to save for disability-related expenses. https://t.co/aCq8QOxi2s #PAraredisease
Neuroscience Institute / TSC Center of Excellence team representing well! #tuberoussclerosis
#tuberoussclerosiscomplex #tscstrong
#TScwarrior #iamTSC #tscalliance
#hopenomatterhowcomplex #worldTSCconference #epilepsy #epileptic #epilepsyawareness #epilepsysupport #epilepsysociety
Dr. Choudhri on panel discussion, Surgical Approaches and Assessments for Epilepsy & SEGA. #tuberoussclerosis
#tuberoussclerosiscomplex #tscstrong
#TScwarrior #iamTSC #tscalliance
#hopenomatterhowcomplex #worldTSCconference #epilepsy #epileptic #epilepsyawareness #neuroradiology
Powerful testimony of life with TSC & Inspiring session on TAND and the power of global collaboration #WorldTSCConference @TANDconsortium @tscalliance #beTSC
Dr. Dunn of @IndianaUniv highlighted how parents of children with epilepsy may experience depression & anxiety, noting it may be worse for those without the financial means to access services & resources. #worldTSCconference
We had an incredible first day of the #worldTSCconference yesterday and were so excited to welcome participants from around the world to Dallas! We look forward to three more days of education, collaboration, inspiration and hope.
Dr. Wheless speaking on "Seizure Types and Treatments. Great Presentation! #tuberoussclerosis
#tuberoussclerosiscomplex #tscstrong
#TScwarrior #iamTSC #tscalliance
#hopenomatterhowcomplex #worldTSCconference #epilepsy #epileptic #epilepsyawareness #epilepsysupport
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