#Xlpdr - Twitter Hashtag

over 7 years ago

🎥 Tre anni per avere una diagnosi per il suo bambino affetto da #Xlpdr, una malattia con 21 casi nel mondo. Poi ha fondato un’associazione per offrire un punto di riferimento a chi si trova nelle sue stesse condizioni. La storia nel nostro Magazine ➡️ https://t.co/6ZiDJp5lHU

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Ilaria Vacca @vivosunamela

over 7 years ago

#XLPDR: X-linked reticulate pigmentary disorder - It can be confused with #Cystic Fibrosis Help us to share #raredisease #RareDiseaseDay2019 https://t.co/he8Gw7tcfQ [In the pic Alex, one of the 21 cases all over the World]

vivosunamela's tweet photo. #XLPDR: X-linked reticulate pigmentary disorder - It can be confused with #Cystic Fibrosis Help us to share #raredisease #RareDiseaseDay2019 https://t.co/he8Gw7tcfQ [In the pic Alex, one of the 21 cases all over the World] https://t.co/RpcCBFPKzm

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Ilaria Vacca @vivosunamela

almost 8 years ago

I though I was different. The documentary on #xlpdr #raredisease. Only 1 case in Europe, 21 all over the world. Help us to share. #pensavodiesserediverso #rarediseases https://t.co/KrYxirKIt3