Top Tweets for #YourKnowledgeMatters
Thrilled to announce our collaboration with Global Blood Therapeutics (GBT) to launch an innovative real-world evidence study for individuals with Sickle Cell Disease (#SCD2022). Read the full press release here: https://t.co/EkzGcsdAlU #powertothepatient #yourknowledgematters
With our new Zipline product, you can see your own home-tracked notes...right alongside your EMR data.
Check your email to grab one of the Beta spots and pioneer this new way to track, visualize, & understand your health.
#yourknowledgematters #interoperability #patientownership

We're encouraged by the advancements shared at #ASH20. But still so much to be done until all #SickleCell patients have access to a cure. Let 2021 be the year that we put patients at the center of their care #SCD #powertothepatient #yourknowledgematters https://t.co/REAaqj3F30
Have you heard the chit and the chatter?
The health IT status quo shattered?
It shouldn’t be dour,
The patients have power,
At Folia, #yourknowledgematters #HealthPolicyValentines #Valentine2020
Did you know that Folia’s HERO study for CF closes enrollment at midnight? Check it out and grab your last-minute spot! https://t.co/xyIC341ZzB #ResearchMatters #cysticfibrosis #yourknowledgematters #powertothepatient #cysticfibrosis #homereportedoutcomes
Announcing Data Dividends, the first revenue-sharing program to directly recognize the value of patient and caregiver contributions to real world data.
https://t.co/bpxwEBF3rU #dataownership #powertothepatient #yourknowledgematters
Interesting in being our next speaker? We now have a tiny URL to submit your idea! https://t.co/vSjJuEETV3 #YourKnowledgeMatters
"It put a name to the enemy because that way I knew what I had to fight." Ron, an adult patient with #CF, was diagnosed late in life. Read his inspiring words in this blog post. #yourknowledgematters #huskies #cysticfibrosis #cysticfibrosisawareness
https://t.co/i4quPon7wV
The way that a treatment works for you, the way your body changes over time, the challenges that you face – all of these are unique to your life, to your experience. #yourknowledgematters #powertothepatient #ownit #cfresearch https://t.co/2blqaxV3d6
We are excited to share this milestone with the Folia community: you have answered 100,000 questions! #yourknowledgematters https://t.co/86yeblWCcl

"Although we may not notice it, the scarcity of healthcare data imposes a significant cost on society" #yourknowledgematters #realworldevidence #datadriven
https://t.co/abiwuHhxzj
Do you have an awesome care team? Nominate them for the Bridge by Folia program - and make it easier for the team you trust to understand what's happening outside of the clinic. #yourknowledgematters #powertothepatient #patientcare https://t.co/cjtRcHKmuD

A bit about why we do what we do #patientcentered #bridgethegap #yourknowledgematters #justdoit https://t.co/SxOvkdPpKu
Harnessing the power of patient and caregiver observations doesn’t have to be complicated. Our simple program for connecting with your clinic starts tomorrow. Stay tuned! #bridgethegap #patientvoice #yourknowledgematters #CysticFibrosis #65roses

From a parent to every provider: Please just listen.
@CF_Foundation @ScaryMommy #compassionatecare #cysticfibrosis #powertothepatient #yourknowledgematters #65roses #fivefeetapartmovie #patientsknowbest #PatientExperience
https://t.co/ut6keuK98T
Thanks to @G17Esiason and @tiffrich22 for hosting us on the #breathein podcast! It was great to speak with you about the importance of patient and family knowledge. #ownyourcare #yourknowledgematters #CysticFibrosis https://t.co/m3KtOTms3N
February may be short, but we're excited about what we've been working on! Check out https://t.co/Eou1hNKUTy to learn more #powertothepatient #yourknowledgematters
“You definitely want to get knowledgeable about the medical stuff, but you also need to talk with the parents who are experiencing it, because that’s where you find reality.” - Mercedes, #Downsyndrome mom https://t.co/nm5N6N59KS #yourknowledgematters
Hamstring muscle tightness or neurodynamics? Make the test! Do you have anything to #TellUs_online or have you #gotquestions? Take 10 min and share your knowledge! Because #yourknowledgematters!

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