Top Tweets for #actionfcs
It was great for us to attend this event. We made many great connections and some new friends of FCS. @FHpatientEurope @heartukcharity @manchester_cv @RareBeacon @GeneticAll_UK @livingwithfcs @RareConnect @rarediseaseuk #actionfcs #WorldDiabetesDay
Homeward bound. Thanks to everyone at #fheuropelisbon22 for your welcome, and for your support of and commitment to the FCS community @fhpatienteurope @heartukcharity @RareConnect @eurordis @GeneticAll_UK @heartukcharity #actionfcs
We need FCS to be a part of this #fheurope #actionfcs @fhpatienteurope @heartukcharity @GeneticAll_UK @RareBeacon
Question from FH Europe patient network: are you a patient or a person with…? Discuss #actionfcs @fhpatienteurope @heartukcharity @RareBeacon @GeneticAll_UK
Here to raise awareness of FCS and work together to improve the care of patients #actionfcs #fheurope @fhpatienteurope @RareBeacon @eurordis @heartukcharity @livingwithfcs
Are you surprised? #fcs10gchallenge #actionfcs #fcsawarenessdayfat @heartukcharity
@GeneticAll_UK @RareBeacon @manchester_cv
@livingwithfcs @fhpatienteurope
Taking the FCS 10g fat challenge? Have you slipped up or cheated? #fcs10gchallenge #actionfcs #fcsawarenessdayfat @heartukcharity @GeneticAll_UK @RareBeacon @manchester_cv @livingwithfcs
Post your experiences of the 10g fat challenge using #actionfcs #10gfatchallenge #fcsawarenessday @heartukcharity @livingwithfcs @GeneticAll_UK @manchester_cv @RareBeacon
You have some time to prepare! @heartukcharity @GeneticAll_UK @GutsCharityUK @manchester_cv @livingwithfcs @RareBeacon @fhpatienteurope @GenePeopleUK #actionfcs
Thank you everyone who’s taken part in the #fcs10gfatchallenge, remember no alcohol tonight! We’d love to hear what was easy/difficult for you #actionfcs #fcsawarenessday @GeneticAll_UK @livingwithfcs @heartukcharity @manchester_cv @GutsCharityUK @findacure_fdn @fhpatienteurope
Dinner on the #FCS10gFatChallenge was a homemade Chana Masala and rice from the @ActionFCS
website, which contained 3.65g of fat. The current daily fat intake is now at 9g.
Have you been taking part?
#recipe #ActionFCS #FCSAwarenessDay #Vegan #LowFat #Curry
Lunch on the #FCS10gFatChallenge was two oat and veg bites and a salad, which contained 3.95g of fat. The current daily fat intake is now 5.35g.
Find the recipe on the @ActionFCS website –
https://t.co/6fpRUX4Iky
#recipe #ActionFCS #FCSAwarenessDay #Vegan #LowFat
Together with @ionispharma, we’re looking forward to presenting at the virtual Patient & Caregiver event hosted by @livingwithFCS this weekend. This meeting will discuss important updates and resources for the familial #chylomicronemia syndrome community. #LPLD #ActionFCS
Together with @akceatx, we recognize the hard work and dedication of patient advocates like Lindsey and Melissa. Your support for people living with familial #chylomicronemia syndrome (FCS) make you our heroes. #ActionFCS #LPLD
The hard work of patient advocates like Lindsey and Melissa, co-founders of @livingwithfcs help people living with familial #chylomicronemia syndrome build connections with others and feel less isolated by their disease. #FCSAwarenessDay #ActionFCS #LPLD
So proud to join @akceatx in recognizing the third annual #FCSAwarenessDay. We honor the courage of patients, caregivers and families who comprise the global familial #chylomicronemia syndrome (FCS) community. You inspire us each and every day. #ActionFCS #LPLD
Together with @ionispharma, today we recognize the 3rd Annual #FCSAwarenessDay. We join with the global familial #chylomicronemia syndrome (FCS) community to build broader awareness of FCS and the challenges patients and caregivers face.
In honor of #FCSAwarenessDay, we’re grateful to the advocates who provide critical information and resources to the FCS community year-round. Listen to patient leaders in the Europe and the U.S. about what a community of support means for them. #ActionFCS #LPLD
The hard work of patient advocates like Lindsey and Melissa, co-founders of @livingwithfcs help people living with familial #chylomicronemia syndrome build connections with others and feel less isolated by their disease. #FCSAwarenessDay #ActionFCS #LPLD
Today is FCS Awareness Day-dedicated to raising awareness of this rare genetic disease & critical need for treatment. People w/ FCS report reduced quality of life & require major diet restrictions.👉Learn more at https://t.co/UvZv0ieilb
#fcsawarenessday #ActionFCS #LivingwithFCS
Today is #FCSAwarenessDay Read the Rare Revolution Mag special edition on FCS https://t.co/6lA2aWyVAj @heartukcharity @manchester_cv @GeneticAll_UK @findacure_fdn @akceatx @livingwithfcs @MikeWM @MetabolicSuppUK @GutsCharityUK @RareRevolutionM #ActionFCS #LPLD
An important first step in working to manage familial #chylomicronemia syndrome is adopting a strict low-fat diet. As Justin and Naomi explain in this video, it is a team effort. #FCSAwarenessDay #ActionFCS #LPLD #NationalFamilyCaregiversMonth
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