Top Tweets for #algsa
Tomorrow is the day! If you don’t know about @proposalcentral join us tomorrow for this exciting webinar! #altum and #algsa #insights #scientificnetwork
Don't miss this webinar - happening tomorrow!
Hear from the ALGSA leadership team and learn how they are using the power of technology and data to create new connections and fast-track their grant making efforts.
https://t.co/LRSdzl3I3s
Thank you to @ALGSAlliance for the wonderful conference. It was my first medical conference ever, and now I have high expectations. I learned a lot and know I will be moving forward with more wisdom and understanding. S/o to @PBCRobert #algsa #algs #goballiverinstitute #liver
It’s pretty fitting that my birthday is also Rare Disease Day. I was born with Alagille Syndrome which is a rare genetic order that can affect many different systems in the body. For me, my liver & kidneys were the most affected. #RareDiseaseDay #ALGSA
It's #RareDiseaseDay, and we will once again be sharing #RareDiseaseTruth posts from our Alagille Syndrome Alliance community throughout the day. We are starting off the day with a truth about #AlagilleSyndrome!
#RareDiseaseTruth #ALGSA #ALGSAware #RareDiseaseDay
We proudly present the ALGSA Collaborative Scientific Research Grant with a $150,000 award given over two years and funded by ALGSA initiatives and private donors. https://t.co/o3XhbULUG9
#ALGSA #AlagilleSyndrome #AlagilleSyndromeAlliance #AlagilleResearch #AlagilleScience
Sean talks about the challenges, fears and triumphs of his family’s journey with #AlagilleSyndrome (ALGS). Sean also reflects on the supportive role of the @ALGSA and encourages those facing a new #raredisease diagnosis to reach out for help. https://t.co/pBpRBMbKJf #ALGSA
Today is #ALGSAwarenessDay. ALGS is a rare disease that affects around 1 in 70,000 live births. Learn more about the research done at Sanford Research https://t.co/oa7VukdA72
#alagillesyndrome #ALGSA #rarediseases #morethanrare #rare #rarediseaseawareness
The #ALGSA is proud to bring you the first dedicated page under ALGSAbroad International Support & Focus Group program specifically for our Hispanic speaking families around the world including family programs & downloadable resources entirely in Spanish.
https://t.co/DOMyNXpxiK
Thank you, @GlobalGenes, for your compassion and understanding during this time of great challenge and uncertainty. The #ContinuityofCare grant provides a way for the #ALGSA to ease the current burden for our #raredisease families. https://t.co/zzuUFg6Pri
As a member of @GlobalGenes RARE Foundation Alliance, #ALGSA was selected to receive the Continuity of Care RARE Patient Impact Grant enabling us to offer assistance to ALGS families as a result of hardship due to covid-19. Thank you, Global Genes! https://t.co/rWMGQ6ZY9p
Save the date for a very special evening at the #ALGSA Gala of Dreams ~ Wish Upon a Star presented by @mirumpharma and @AlbireoPharma. #championawards #philly #dinnercruise https://t.co/XKUaYIBsLE
We are pleased to announce that applications are now being accepted for the #ALGSA Research Grant Program for research in Alagille Syndrome. Please follow the link for more details.
https://t.co/o3XhbULUG9
Love Someone Rare this #RareDiseaseDay! Share the ❤️ this February and support #ALGSA family programs! We ❤️ each and every someone rare!
Thank you, @FiredUpforALGS, for sharing your story! Vote daily through Dec 7 and help the @ALGSAlliance win $10,000! #algsa #MyGivingStory
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