Top Tweets for #ayacancer2019
Had a great meeting @caseccc #AYACancer2019. Met lots of new friends and collaborators to help beat #osteosarcoma and build #AYA @MSKKids
Very much inspired by Dr Bender’s @JGladeBender pioneering work of master regulators on #osteosarcoma #AYACancer2019 @caseccc
How many “Vivek’s “ are there in the world who are oncologists doing clinical trials, AYA, precision oncology & #sarcoma ? Great to meet & share research perspectives with Vivek Version 2.0 from Sydney, Australia at @ctosociety #CTOS2019 #Ayacsm #ayacancer2019
Insurance isn’t anywhere near enough to be protective of financial hardship, so many costs outside of insurance affect AYAs. #AYACancer2019 #AYACSM
Ended the great #AYACancer2019 conference @caseccc with Dr Susan Parson from @TuftsMedicalCtr on Financial Toxicity facing AYAs. Importantly, the millennial generation is already at a financial disadvantage making them more vulnerable. #AYACSM
@EK_Drake @ChildrensLA @KeckMedUSC #AYACancer2019 at @caseccc in Cleveland, OH! It’s really great! Great speakers with a great mix of advocacy, research, and clinical studies. And lots of #WomenInMedicine representation! #AYACSM
Dr Mark Kieran from @bmsnews discussed the changing regulatory landscape and the effect on AYAs. Concluding with the importance of patients, medical centers, and pharmaceutical companies to come together to improve access to clinical trials. #AYACancer2019 #AYACSM
Dr David Freyer from @ChildrensLA and @KeckMedUSC presented an overview of AYA cancer- Incidence trends, survivorship, toxicity, and clinical trials. (always love seeing my friend’s work shared Dr Diana Moke) #AYACancer2019 #AYACSM
Mark Kieran, MD, PhD (@bmsnews) joins us to speak on the changing regulatory landscape & pharma’s approaches to the inclusion of AYAs in clinical trials. He reminds us: we all have the same goals & can benefit from a team approach to the issues. #AYACancer2019
Professor of Genetics & Genome Sciences @CWRUSOM, Peter Scacheri, PhD presents, “Targeting the Metastatic Epigenome of Osteosarcoma” as our last presenter for Session I. #AYACancer2019
Very much inspired by Dr Bender’s @JGladeBender pioneering work of master regulators on #osteosarcoma #AYACancer2019 @caseccc
Session II: Clinical Trials & Novel Therapies kicks off with @JGladeBender (@sloan_kettering) presenting, “Targeting Master Regulator Dependencies on Osteosarcoma.” #AYACancer2019
The afternoon continues and is ending with focusing on the BIG problems facing AYA Cancer: toxicity and survivorship, clinical trial access, and financial toxicity. #AYACancer2019 #AYACSM @caseccc
I’ve also talked to so many AYAs with cancer who felt alone and not able to express the impact cancer has had on their lives. @ElephantsTea provides a home and fills a wide gap in building community for AYAs. #AYACancer2019 #AYACSM
@NikoGilly and @ElephantsTea hold a special place in my heart cause I grew up with this family and know Steve who inspired this organization. #AYACancer2019 #AYACSM
Proud of the “Rising Stars” who presented at @caseccc Innovators in #AYACancer conference. All are working toward a brighter future for teens with cancer. #thisIsRainbow #AYACancer2019 #AngiesInstitute
David Freyer, DO, MS (@ChildrensLA @ayausc @KeckMedUSC) opens our final session on survivorship with his presentation, “Key Challenges for AYAs with Cancer: Survival, Toxicity and Clinical Trials.” #AYACancer2019
Dr. Beech’s data, evaluating the big picture, but also the exceptions to the rule, to develop a new theory on step satcoms biology and treatment and work with researchers in the field. #AYACancer2019
Starting with Theresa Beech, PhD a NASA scientist who’s son was diagnosed and died from an aggressive osteosarcoma has used her math/engineering background and grassroot effort to analyze data given to her by other patients and families. #AYACancer2019
I don’t have words to describe the afternoon sessions at the #AYACancer2019 conference @caseccc. So many of my colleagues who work in the pediatric and AYA cancer space have personal close family experiences with cancer.
“If you’re not at the table, you’re on the menu.” Danielle Leach (@NBTStweets) talks about opportunities for advocacy from steering committees & focus groups to communications & presentations. #AYACancer2019
@ElephantsTea has writers from 10 countries, all sharing their stories to provide social support & help AYA cancer patients & survivors navigate resources available to them. The magazine is currently used as a tool in over 40 hospitals across the US. #AYACancer2019
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