Top Tweets for #beatckdinvolve
Martin Howell: summarising our first BEAT-CKD patient workshop #beatckd17 #beatckdinvolve @KidneyHealth @NephMcDonald
A panaromic of today's #beatckdinvolve workshop. Thx to all the patients/families for their valuable insights & enthusiasm to contribute!!
Our own Dr Lisa Murphy discussing ways in which patients can be involved in kidney research #beatckdinvolve #kidneydisease https://t.co/3agavtXZjo
Thank you to everyone who came along and contributed to today’s #beatckdinvolve workshop. https://t.co/9hLBSrcql9
Martin H & @NephMcDonald thank all the patients/families who contributed to the first @KidneyHealth #beatckdinvolve workshop today!
Martin H & @NephMcDonald thank all the patients/families who contributed to the first @KidneyHealth #beatckdinvolve workshop today!
6. Capture breadth and diversity. Allow flexibility in involvement #beatckdinvolve @ANZDATARegistry @NephMcDonald
5. Patients can help to communicate research back to patients - clearly! And want to be involved in all stages. #beatckdinvolve
4. Patients can feel isolated. Create a sense of (kidney) community. #beatckdinvolve
"Nothing about me without me". Providing a structure to enable consumer involvement as routine in Aus renal research. #beatckdinvolve
2. Patients and families may need briefing and emotional support to be involved in research @PKD_Australia #beatckdinvolve
Kathryn Dansie @ANZDATARegistry - need better access to information and patients want to be involved in planning #beatckdinvolve
Latest PKD guidelines involved patients! And patient versions produced wth @PKD_Australia #beatckdinvolve @BEAT_CKD
Martin Howell #beatckdinvolve - We need patient involvement @ kidney conferences @ANZSN @TSANZ_txsoc @KidneyHealth
How many people are discussing the role of patient advisory boards ? #beatckdinvolve https://t.co/H7FfV93uUf
How to support patient involvement in research? @annemckenzieWA @InvolvingAus @KidneyHealth #beatckdinvolve
Martin Howell - starting the discussion on putting theory into practice re patient involvement in research @KidneyHealth #beatckdinvolve
@BEAT_CKD : yes they do but in the they are not addressed in #dialysis or #kidneytransplant #clinicaltrials #beatckdinvolve https://t.co/a8tZ4iPTXs
@annemckenzieWA gives an @OMERACT eg - patients look at outcomes in terms of about quality of life #beatckdinvolve @InvolvingAus
Martin Howell - starting the discussion on putting theory into practice re patient involvement in research @KidneyHealth #beatckdinvolve
How to support patient involvement in research? @annemckenzieWA @InvolvingAus @KidneyHealth #beatckdinvolve
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