Top Tweets for #cfccantwin
February 28th is Rare Disease Day! Cardiofaciocutaneous (CFC) syndrome is a rare genetic disorder. Blessed with a CFC child! #jacobyjax #cfccantwin #BRAF
The rules of engagement have changed. Inguinal hernia surgery. He walked into surgery and one hour after he walked out. Refused the wheelchair. The kid that was told he would never walk-never stops.
#thatsaballsymove #CFCcantwin
There is a limit to the time assigned to you, and if you don’t use it to free yourself it will be gone and never return.
Marcus Aurelius
#NoFear #CFCcantwin
“The only thing we have to fear is fear itself”
We have stepped up our trail challenges. 2.5 miles on a new trail that Jacoby doesn’t know.
The sandy,rocky uneven surfaces were a good test.
#NoFear #CFCcantwin
Hard to believe you’re already in 6th grade little man. Never let someone tell you how to live your life. I love you buddy!! #CFCcantwin
Ten years ago we were told to say our goodbyes because u “won’t make it through the night” Followed by a handful of other times that u “wouldn’t make it”
Today you start 6th grade.
This kid has taught me more about life than I can ever hope to teach him. My hero.
#CFCcantwin
Ten years ago we were told to say our goodbyes because u “won’t make it through the night” Followed by a handful of other times that u “wouldn’t make it”
Today you start 6th grade.
This kid has taught me more about life than I can ever hope to teach him. My hero.
#CFCcantwin
If you didn’t listen to the people who say “you can’t” “you won’t be able to” “you probably shouldn’t try”...
What would you do? What would you grow into?
If you are willing to challenge yourself...you will be amazed at what you can accomplish.
#CFCcantwin
Among the numerous “disabilities” Jacoby has-being blind is☝️
Summer ✅ list
✅walked 5k with no help
✅learned to navigate pool
✅today he dominated the “balance” beam
☝️”ability” he does have is he never gives up. Victim or Victor your choice. #CFCcantwin #MSH
U can take back all the things u give
But u can't take back the days u live
Life is to some people heaven on 🌎
Livin' every single day 4 what it's worth
I live my life just how I please
Satisfying☝️person I know that's me
Work hard for the things I achieve in life...
#CFCcantwin
Parents of children who are blind will understand how exceptionally rare a pic like this is. When he “looks” directly at you that moment is fleeting. We were able to capture one. 🙏
#CFCcantwin #ourwhyguy
First day of school for this guy. Had a good summer.
✅went to his brothers game for first time in college
✅conquered the unknown and learned to navigate pool with no help.
✅mastered sprinting with his “walking cane”
✅hit a growth spurt
#ourwhy #CFCcantwin #curls4thegirls
Favorite part of the day. Daddy/dude time with my why. Smiles for miles and curls for the girls. #CFCcantwin
Big thank you to @nateBural for taking the time to get to know my family and allowing us to tell our story. #cfccantwin https://t.co/LydOwJl1uO
When Life Threw A Curveball: Tarleton’s @BryanConger31 learns balance of family, baseball while raising son with CFC Syndrome https://t.co/r0FciGAAuD
Dedicated to my little man, Jacoby. Always competing. Surgery #9 was a success.
#CFCcantwin #Idareyoutoknockmeout https://t.co/wYg2YuMfYq
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