Top Tweets for #chronicallyillness
This ๐
Living with a disability & #ChronicallyIllness is challenging enough without the added stress of trying to navigate the #NHS & the lack of provision for addition support
Its one, long, continuous fight
I'll keep going, as always, but it's important to tell the truth of what so many of the disabled & chronically ill community go through. Systematically left to struggle with a glacial NHS & care provision seemingly forgetting about you. Takes strength to live through that.
Having #chronicallyillness & trying to do all what one has to with storms & daily life IS HARD. Having to explain it over & again to healthy ppl who don't get it is harder. I wish ppl would educate themselves.
#chronicallyill
#PEM

It's incredibly difficult to live with any type of #chronicallyillness let alone a rare syndrome, rare disease, or rare disorder. Those of us with #raregeneticdefects have many unknowns. When medical lists are compiled, such as what qualifies as a disability, we are OMITTED.
This time next week I should have my portacath.
#spoonie #spoonielife #ChronicLife #chronicallyillness #crohns #ibd
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