#circulatinghope - Twitter Hashtag

Brighter Hope Foundation @thebrighterhope

almost 2 years ago

#enpp1deficiency #abcc6deficiency #gaci #arhr2 #raredisease #circulatinghope #arterialcalcification #rickets #patientadvocacygroup

thebrighterhope's tweet photo. #enpp1deficiency #abcc6deficiency #gaci #arhr2 #raredisease #circulatinghope #arterialcalcification #rickets #patientadvocacygroup https://t.co/6E1Knl843n

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Brighter Hope Foundation @thebrighterhope

over 2 years ago

Thank you Scott and team #CirculatingHope for helping us spread awareness about #gaci and #arhr2.

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Brighter Hope Foundation @thebrighterhope

about 3 years ago

Today we celebrate the rainbow babies in our community. And we remember those who never received a rainbow or those still waiting on one. #enpp1deficiency #abcc6deficiency #gaci #raredisease #circulatinghope #nationalrainbowbabyday

thebrighterhope's tweet photo. Today we celebrate the rainbow babies in our community. And we remember those who never received a rainbow or those still waiting on one.

#enpp1deficiency #abcc6deficiency #gaci #raredisease #circulatinghope #nationalrainbowbabyday https://t.co/14512KCNOc

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Brighter Hope Foundation @thebrighterhope

over 3 years ago

Remember to wear your red and white tomorrow! Tag us @gaciglobal and use the hashtag #gaciarhr2awarenessday! #enpp1deficiency #abcc6deficiency #gaci #arhr2 #raredisease #circulatinghope #arterialcalcification #rickets

thebrighterhope's tweet photo. Remember to wear your red and white tomorrow! Tag us @gaciglobal and use the hashtag #gaciarhr2awarenessday!

#enpp1deficiency #abcc6deficiency #gaci #arhr2 #raredisease #circulatinghope #arterialcalcification #rickets https://t.co/tsxkHKyMXK

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Brighter Hope Foundation @thebrighterhope

over 3 years ago

#enpp1deficiency #abcc6deficiency #gaci #arhr2 #raredisease #circulatinghope #arterialcalcification #rickets

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Brighter Hope Foundation @thebrighterhope

over 3 years ago

Prenatal treatment may be an option to help minimize the progression of GACI. #enpp1deficiency #abcc6deficiency #gaci #arhr2 #raredisease #circulatinghope #arterialcalcification #rickets

thebrighterhope's tweet photo. Prenatal treatment may be an option to help minimize the progression of GACI.

#enpp1deficiency #abcc6deficiency #gaci #arhr2 #raredisease #circulatinghope #arterialcalcification #rickets https://t.co/VkCJmsLuXA

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Brighter Hope Foundation @thebrighterhope

over 3 years ago

This can pose serious risks to infants with GACI as it increases their risk of high blood pressure, stroke, and heart attack. #enpp1deficiency #abcc6deficiency #gaci #arhr2 #raredisease #circulatinghope #arterialcalcification #rickets

thebrighterhope's tweet photo. This can pose serious risks to infants with GACI as it increases their risk of high blood pressure, stroke, and heart attack.

#enpp1deficiency #abcc6deficiency #gaci #arhr2 #raredisease #circulatinghope #arterialcalcification #rickets https://t.co/x6dmfcL9u0

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Brighter Hope Foundation @thebrighterhope

almost 4 years ago

Clinical trials for enzyme replacement therapy are ongoing in adults diagnosed with ENPP1 Deficiency and ABCC6 Deficiency. We are hopeful that there will be pediatric trials in the future. #enpp1deficiency #abcc6deficiency #gaci #arhr2 #circulatinghope #arterialcalcification

thebrighterhope's tweet photo. Clinical trials for enzyme replacement therapy are ongoing in adults diagnosed with ENPP1 Deficiency and ABCC6 Deficiency. We are hopeful that there will be pediatric trials in the future.

#enpp1deficiency #abcc6deficiency #gaci #arhr2 #circulatinghope #arterialcalcification https://t.co/KHNvv4lXlf

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Brighter Hope Foundation @thebrighterhope

almost 4 years ago

To connect with a family who has experienced prenatal treatment for GACI or if medical contacts are needed, please email GACI Global at [email protected]. #enpp1deficiency #abcc6deficiency #gaci #raredisease #circulatinghope #arterialcalcification

thebrighterhope's tweet photo. To connect with a family who has experienced prenatal treatment for GACI or if medical contacts are needed, please email GACI Global at info@gaciglobal.org.

#enpp1deficiency #abcc6deficiency #gaci #raredisease #circulatinghope #arterialcalcification https://t.co/SgqK5Ml8Xw

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Brighter Hope Foundation @thebrighterhope

almost 4 years ago

If you have previously had a child diagnosed with GACI, prenatal genetic testing via CVS or amniocentesis can be beneficial in terms of developing an appropriate treatment plan. #enpp1deficiency #abcc6deficiency #gaci #raredisease #circulatinghope #arterialcalcification

thebrighterhope's tweet photo. If you have previously had a child diagnosed with GACI, prenatal genetic testing via CVS or amniocentesis can be beneficial in terms of developing an appropriate treatment plan.

#enpp1deficiency #abcc6deficiency #gaci #raredisease #circulatinghope #arterialcalcification https://t.co/hECvXiM36b

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Brighter Hope Foundation @thebrighterhope

almost 4 years ago

It is important to know the signs of respiratory distress in an infant with GACI so that you can get them proper treatment as soon as possible. #enpp1deficiency #abcc6deficiency #gaci #arhr2 #raredisease #circulatinghope #arterialcalcification #rickets #respiratorydistress

thebrighterhope's tweet photo. It is important to know the signs of respiratory distress in an infant with GACI so that you can get them proper treatment as soon as possible.

#enpp1deficiency #abcc6deficiency #gaci #arhr2 #raredisease #circulatinghope #arterialcalcification #rickets #respiratorydistress https://t.co/49AmkFk1jz

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Brighter Hope Foundation @thebrighterhope

about 4 years ago

Today we wish a happy 7th Birthday to Sir'Savion! He has battled many complications as a result of GACI and is a warrior through and through! #abcc6deficiency #gaci #arhr2 #raredisease #circulatinghope #arterialcalcification

thebrighterhope's tweet photo. Today we wish a happy 7th Birthday to Sir'Savion! He has battled many complications as a result of GACI and is a warrior through and through!

#abcc6deficiency #gaci #arhr2 #raredisease #circulatinghope #arterialcalcification https://t.co/9XI7he6viq

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Brighter Hope Foundation @thebrighterhope

about 4 years ago

https://t.co/Z5VQAuv5TV #raredisease #gaciglobal #gaci #arterialcalcification #circulatinghope #notalone

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Brighter Hope Foundation @thebrighterhope

about 4 years ago

Treatment options are essentially non-existent for babies with joint calcification aside from pain management and physical therapy. #enpp1deficiency #abcc6deficiency #gaci #arhr2 #raredisease #circulatinghope #arterialcalcification #rickets

thebrighterhope's tweet photo. Treatment options are essentially non-existent for babies with joint calcification aside from pain management and physical therapy.

#enpp1deficiency #abcc6deficiency #gaci #arhr2 #raredisease #circulatinghope #arterialcalcification #rickets https://t.co/bMFt9zhouO

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Brighter Hope Foundation @thebrighterhope

about 4 years ago

Babies frequently experience pain and reduced mobility at the sites of calcification. #enpp1deficiency #abcc6deficiency #gaci #arhr2 #raredisease #circulatinghope #arterialcalcification #rickets

thebrighterhope's tweet photo. Babies frequently experience pain and reduced mobility at the sites of calcification.

#enpp1deficiency #abcc6deficiency #gaci #arhr2 #raredisease #circulatinghope #arterialcalcification #rickets https://t.co/Gy2pI32yfU

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Brighter Hope Foundation @thebrighterhope

about 4 years ago

Experts recommend annual audiological evaluation for all patients diagnosed with ENPP1 deficiency as unaddressed hearing loss can have implications in school and in life. #enpp1deficiency #gaci #arhr2 #raredisease #circulatinghope #hearingloss