Top Tweets for #classicalHCU
๐Meet Danae!๐
Diagnosed with #classicalHCU at 10, after her brother's lens dislocation, Danae has dedicated herself to connecting patients and families affected by HCU.
Thank you for your hard work and can-do attitude that makes HCU Network America a huge success! ๐
Meet our May #HCUHero, Brooklyn from Montreal! ๐
You can read her full story here:
โก๏ธ https://t.co/c8FxCWNeXP
#patientstories #lowproteindiet #medicalformula #raredisease #classicalHCU #homocystinuria #HCU #HopeConnectsUs #lgbtqia
This month we get not 1, but 2 HCU Heroes - Xander & Max from the UK! ๐
Read their full story:
โก๏ธ https://t.co/0ZrFD5cp8x
#patientstories #lowproteindiet #medicalformula #newbornscreening #raredisease #classicalHCU #homocystinuria #HCU #HopeConnectsUs #LennoxGastaut #epilepsy
Let's kick off Rare Disease Week 2024 by shining a ๐ฆ on Classical HCU!
#RareDiseaseWeek2024 #RareDiseaseWeek #RareDiseaseDay2024 #RareDisease #homocystinuria #HCU #classicalHCU #CBSDeficiency #metabolicdisorders #HopeConnectsUs
#HCUAwarenessMonth2023 Day 12 - Let's talk #treatment for #ClassicalHCU!
Follow along with Gabbi - Classical #HCU patient & college student as she takes us through a day in the life!
#HCUAwareness2023 #Homocystinuria #CBSDeficiency #lowprotein #HopeConnectsUs #GoBlueforHCU
It's #HCUAwarenessMonth2023 - Day 11! ๐
๐นToday's challenge - share an image of yourself, detailing some of the symptoms you've experienced due to classical homocystinuria!
#HCUAwareness2023 #Homocystinuria #ClassicalHCU #CBSDeficiency #HCU #HopeConnectsUs #GoBlueforHCU
It's #HCUAwarenessMonth2023 - Day 10! ๐
This week, we focus on Classical HCU!
Spread awareness!
โก๏ธ Download & share this infographic: https://t.co/AVPIjrVoID
#NewbornScreening #Homocystinuria #ClassicalHCU #CBSDeficiency #HCU #HopeConnectsUs #GoBlueforHCU
๐ฃ Calling all #Caregivers!
๐ฅ๏ธ Join us Saturday, March 4 @ 11 am EST for a time to connect, support, and be supported!
Register to attend here: https://t.co/IYFPurZa2V
#Community #ClassicalHCU #Homocystinuria #HCU #HopeConnectsUs
Celebrate HCU Awareness Month, read the HCU Herald! - https://t.co/hjz4m4feF2
#HCUHero #HCUAwarenessMonth #LowProteinRecipes #HCURaceforResearch #Research #ClassicalHCU #CobalaminDisorders #SevereMTHFR
Meet Juana, our #HCUHero from Uruguay! ๐
Read her full #PatientStory in this month's HCU Herald!
https://t.co/ydDvKrSl1d
#Homocystinuria #ClassicalHCU #HopeConnectsUs
Check out Patti, the mom of our Executive Director, Danae' Bartke, representing #ClassicalHCU in her 2022 #GoBlueforHCU shirt! You can still customize your design, or buy one from the main campaign! https://t.co/6iqVuBr6vs
Join us next Monday, December 28 @ 1 pm CST
for our last #ClassicalHCU meetup of December -
https://t.co/DBuDasJZd1
#Homocystinuria #HopeConnectsUs
Each of these #FridayFaces is one of our #HCUHeroes! Join them, become a #HCUHero and share your #PatientStory with us!
#Homocystinuria #ClassicalHCU #CobalaminDisoders #SevereMTHFR #YourVoiceMatters
Come join us for our December Virtual Meetups -
Join us next weekend for our first #ClassicalHCU meetup - Dec. 13 @ 7 pm & Dec. 28 @ 1 pm CST
Join us in 2 weeks for our #CobalaminDisorders - Dec. 20 @ 7 pm CST https://t.co/DBuDasJZd1
#Homocystinuria
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