Top Tweets for #conquerNF
.@Nf1Project is recruiting 🇨🇦Canadians for this important genetic study. If you are an adult with NF1 you can participate from home by visiting the website https://t.co/CuKsLqNp9f. #nf1project #endnf #conquernf
We are lighting up Blue and Green tonight for World Neurofibromatosis Awareness Day
We are proud to support the Children's Tumour Foundation Australia to help start a national conversation about the condition.
ℹ️https://t.co/LvICnePghG
#conquernf #outoftheshadows #shinealight
We are still recruiting for this important genetic study. If you are an adult with NF1 you can participate from home by visiting the website https://t.co/90nONKwJAt. #nf1project #endnf #conquernf
Thank you to all who have joined this important research study for adults with NF1. We now have over 400 people registered but we are still recruiting. Visit the website to learn more and participate from home. #Endnf #Conquernf #nf1project
The NF1 Project supports Rare Diseases Day. Many people in our community face daily physical and emotional challenges living with NF1. We hope medical research will play a part in easing this burden. #rarediseasesday #nf1project #endnf #conquernf
If you are an adult with NF1 we need your help to find the answers. Visit the website https://t.co/90nONKwJAt and participate from home. #EndNF #ConquerNF #NF1 #NF1project
This is an international study recruiting adults with NF1 to learn more about why neurofibromas develop and how to treat them. Scan the QR code to register and complete online. #EndNF #ConquerNF #NF1 #NFResearch
If you are an adult with NF1 please consider being a participant in this study. The more we can understand NF1 the better chance we have to improve treatment options. Visit https://t.co/90nONKwJAt. #EndNF #NFResearch #ConquerNF # NF1
Very grateful to Renee from @ctfaustralia for getting this snap of Archie and I post #ConquerNF in Colour RUN ! Very proud of my little man!! ❤️❤️❤️ https://t.co/NlBxOnngO7
Can’t wait for this !! Join me and let’s #ConquerNF with COLOUR this Sunday the 13th of November here in Sydney ! See you soon @ctfaustralia !!
Register here https://t.co/8tW9FDfmAl 💙💚💙💚 https://t.co/f3egVkkTns
May is World Neurofibromatosis Awareness month. By wearing this ribbon, we can all help start a national conversation about a condition that causes tumours to form on the nerves in the body. Let’s help bring NF #outoftheshadows. #conquernf #worldnfawarenessday
@CTF_au
The #RoyalExhibitionBuilding will be lit up in blue and green tonight for World Neurofibromatosis Awareness Day. 💚 We are supporting @CtfAustralia to bring NF #OutOfTheShadows: for more information visit https://t.co/byTcjzeruS #NFAwaressMonth #ConquerNF
It is unpredictable, progressive and there is no cure – but there is hope. We are proud to be working with the Children’s Tumour Foundation to help bring NF #OutOfTheShadows. (2/2)
#conquernf #nfawarenessmonth
Some also demonstrated psychological distress before screening. Areas where care could be improved were identified. Read more: https://t.co/e9nQ4mCjT8 #conquerNF #NFAwarenessMonth #OutOfTheShadows #GCchat
On Sunday I'm running in the @melbmara half marathon again, hoping to break 2 hours, and also raising money for @CTF_au in memory of my wife's late aunt, so if anyone has a few $ to spare, please donate #melbmara #conquernf https://t.co/QBfHKRXkCq
Progress on NF1 research: @EmilyVasiljevs1 from @Stress_Westmead and @kids_research discusses pathways from preclinical animal models to qualitative research on patient diet. #conquerNF @CTF_AU
Getting the #UBETLuckyUndies prepared for this Sunday's @CupidsUndieRun, raising funds for the amazing #ChildrensTumourFoundation @CTF_AU - you can help #ConquerNF by donating here: https://t.co/mkI4XZt1Ed
#FollowAFoal: HBV are taking part in the 2019 Cupid's Fun Run at @GreaterShepp on Feb 17th to support our charity partner, @CTF_AU and #ConquerNF! We encourage members to #Dare2Bare, register & take part (Shepparton or Melbourne), or make a donation here:
https://t.co/vHHkPj2cny
"Guess what! @CupidsUndieRunOZ is only a month away and as a proud Ambassador of @ctfaustralia I'd love for you to join me as we #conquernf https://t.co/5C24WoUpBO
Thanks for the ongoing support of Minister @BradHazzard and our patron Nick Greiner for helping us #ConquerNF
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