Top Tweets for #cureFop
Call for Abstracts: 7th FOP Drug Development Forum
Submit your unpublished or newly published FOP research for oral presentations & posters.
π
Deadline: April 6
π Toronto | Aug 27-30, 2026
Submit: https://t.co/uIoawxkDoF
Details: https://t.co/SvgAKWOhvG #cureFOP #RareDiseaseResearch #ACTFORFOP #FOPResearch #HeterotopicOssification #RareBoneDisease #FibrodysplasiaOssificansProgressiva #TranslationalResearch #HeterotopicBone #ACVR1
ππ Honored to share #FOPawareness with 12,000+ pediatricians from the US & abroad at @AmerAcadPeds #AAP2025 in Denver!
Every conversation brings us closer to earlier diagnosis & better care for kids living with FOP πβ¨ #FOPawareness #cureFOP #AAP2025 #RareDisease #PatientCare
It takes a village.
Shoutout to Shawna Rizzi's family & friends who held their 3rd annual Strike Out FOP wiffleball tournament in honor of Maria Wray.
THANK YOU to Griff, Trey, Ethan, and every single person who came out and donated to help find a cure for FOP. #cureFOP
Thanks to everyone who took part in this year's Awareness Day campaign π
Thank you for helping to increase early and accurate FOP diagnosis. It means the world for those diagnosed, and even more for those who are yet to receive a proper diagnosis β€οΈ #FOPAwareness #cureFOP
Do you know how many rare diseases there are? Do you know how many rare diseases are genetic?
Rashmita's son, Avi, lives with FOP. And so does Jamal's daughter, Savvy.
Join us February 29 for #RareDiseaseDay: https://t.co/VEP4UM0uCS #cureFOP #RareDiseaseDay
Do you know how many rare diseases start in childhood? What equity for people living with rare diseases means?
Sunil's daughter, Kushi, lives with FOP. And so does Erin.
Join us February 29 for #RareDiseaseDay: https://t.co/VEP4UM0uCS #cureFOP #RareDiseaseDay
Exciting News for Patients, Families and Healthcare Providers - The Full #FOP #MedEd Page Is Here! https://t.co/xqTweN5RNB @ASMBR @IFOPA #FibrodysplasiaOssificansProgressiva #IFOPA #CureFOP #BoneDisease #MedTwitter
Exciting News for Patients, Families and Healthcare Providers - The Full #FOP #MedEd Page Is Here! https://t.co/xqTweN5RNB #FibrodysplasiaOssificansProgressiva #IFOPA #CureFOP #BoneDisease @PeerView @ASMBR
Exciting News for Patients, Families and Healthcare Providers - The Full #FOP #MedEd Page Is Here! https://t.co/xqTweN5RNB #IFOPA #FibrodysplasiaOssificansProgressiva #CureFOP #BoneDisease @IFOPA @ASMBR
Exciting News for Patients, Families and Healthcare Providers - The Full #FOP #MedEd Page Is Here! https://t.co/xqTweN5RNB #IFOPA #CureFOP #BoneDisease #FibrodysplasiaOssificansProgressiva @IFOPA @ASMBR
The next video in our #MedEd #FOP series has dropped!
Watch as Matthew T. Drake, MD, PhD, speaks to the roles of both patients & caregivers in the multidisciplinary FOP care team. Produced with PeerView & ASBMR: https://t.co/LS9wk3wHAH
#FOPAwareness #CureFOP
#FibrodysplasiaOssificansProgressiva: review manifestations, progression, and pathophysiology of this rare #BoneDisease with Prof. Richard Keen and Dr. Edna Mancilla. Produced with @ifopa & @ASBMR: https://t.co/aqd0nmnlcq #FOP #FOPAwareness #CureFOP
Test your knowledge on identifying #FibrodysplasiaOssificansProgressiva (#FOP) in this question-based #MedEd activity with Prof. Richard Keen & Dr. Edna Mancilla. Produced with @ifopa & @ASBMR: https://t.co/aqd0nmnlcq #FOPAwareness #CureFOP #MedEd
#FibrodysplasiaOssificansProgressiva: review manifestations, progression, and pathophysiology of this rare #BoneDisease with Prof. Richard Keen and Dr. Edna Mancilla. Produced with @ifopa & @ASBMR: https://t.co/aqd0nmnlcq #FOP #FOPAwareness #CureFOP
#FibrodysplasiaOssificansProgressiva: review manifestations, progression, and pathophysiology of this rare #BoneDisease with Prof. Richard Keen and Dr. Edna Mancilla. Produced with @ifopa & @ASBMR: https://t.co/aqd0nmnT1Y #FOP #FOPAwareness #CureFOP
Trots: Bernard Smilde, aios interne bij Noordwest, gaat promoveren met zijn proefschrift βDeveloping Treatments for Fibrodysplasia Ossificans Progressiva" -> https://t.co/RzQKxWVEYS @noordwestzh #noordwest #promovendi #FibrodysplasiaOssificansProgressiva #CureFOP #samenbeter π
Prof. Richard Keen and Dr. Edna Mancilla discuss how to prevent iatrogenic harm when diagnosing #FibrodysplasiaOssificansProgressiva. Check out this interactive, question-based activity now https://t.co/aqd0nmnlcq #FOP #FOPAwareness #CureFOP
Check out a new activity we developed with @PeerView & @ifopa! Prof. Richard Keen & Dr. Edna Mancilla discuss preventing iatrogenic harm when diagnosing #FibrodysplasiaOssificansProgressiva. Participate in this interactive activity now! https://t.co/Qh8kjxE6Cs #CureFOP #MedEd
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