Top Tweets for #cureSCD
So proud to be part of @The_BMC and equitable access to transformative therapies! #cureSCD @devinmccourty @JasonMcCourty @McCourtyTwins
We’re proud to offer the first-ever gene therapies for sickle cell disease.
This reflects our ongoing commitment to being a leader in offering advanced, equitable care to our patients.
Read more: https://t.co/QwoiOBjiav
🧬 SCD Gene-Editing news! UK regulators greenlight the first-ever CRISPR-based treatment, Casgevy, by @VertexPharma and @CRISPRTX. A game-changer for #sicklecell disease and #betathalassemia, with U.S. approval on the horizon.
https://t.co/vWXwxZgB55
#SickleCellMidwest
#CureSCD
Register now for Community Day at the Global Cure for SCD Virtual Conference! Nov 11, 10 AM-1 PM ET. Hear from experts & patients on curative therapies, share experiences, and ask questions. Register now: https://t.co/c6fKkQPK5c #sicklecell #SCD
#sicklecellmidwest #cureSCD
DYK September is #SickleCellAwarenessMonth? #SickleCellDisease affects millions of people on nearly every continent and is the most common genetic blood disorder IN THE WORLD!
#SickleCellMatters #CureSCD #SickleCellIsGlobal #kNOwSickleCell #SickleCellMN
https://t.co/kgsILdBoEL
#MNStateFair
✅️ 3 days
✅️ 9 volunteers (1 MD & 4 med students!)
✅️ 14 Warriors (it was crazy 🔥 y'all)
✅️ 100+ Trait warriors of MANY ethnicities 🖤🤎💛🤍
✅️ 2,200+ both visitors learned about #SCD #SCT #blooddonation #bmt
#SickleCellMatters #SickleCellMN #curescd
Really wonderful, informative podcast interview with SCD Doctor, Advocate, @akshatdoctor! Dr. Jain talked about #sicklecell therapies & so much more! Truly worth a listen, Thanks for ALL you do Dr. Jain!🙌🏿😊
#sicklecell #scdadvocacy
#accesstocare #curescd
"What we do in pediatrics really sets the tone for how well #sicklecell patients will do." @akshatdoctor of @LLUChildrens discussed @BeTheMatch & SCTs, #sicklecelldisease prevalence, challenges for patients, plus the need for #accesstocare and more. Listen now!
#sicklecellmidwest
It's important that we tell the stories of families living with #sicklecell and extremely important that we have More diverse bone marrow donors to choose from to cure SCD Warriors wanting to undergo a bone marrow transplant. Sign up at @BeTheMatch to #CureSCD. Details below.👇🏿
A #bonemarrowtransplant is the only known cure for #sicklecelldisease. Only 30% of patients seeking a BMT are able to find a match within their family.
Willing donors can visit
https://t.co/C5J8goBrzG or text “CureForSCD” to 61474.
#sicklecellmidwest
#BeTheMatch #SickleCell
Grateful for the excellent care our kiddo received at @TexasChildrens the past few days. #SickleCellDisease #cureSCD
So lucky to have @DrTitiFasipe get our kiddo “SuperD” out of his 1st (and only 🙏🏻) splenic sequestration crisis at @TexasChildrens yesterday. Hb < 5 to 7.9 🩸 with hospital stay ~32 h from ER arrival to discharge..Thanks will never be enough 🙌🏻 ❤️@drltorres
#ABCs of SCD
H - Hemolysis
Hemolysis is the breakdown of red blood cells (RBCs). In #SCD, RBCs are fragile and break down faster. This results in fewer RBCs available to carry oxygen throughout the body
Learn more: https://t.co/KtBmiwMZHt
#SickleCellMatters #September #CureSCD
#ABCs of SCD
G - Genes & Genotypes
Since there are hundreds of variations in the HBB #gene, there is more than one type of SCD! These different forms are described as your sickle cell #genotype.
#SickleCellMatters #SickleSMART #September #AwarenessMatters #SickleCellMN #CureSCD
📢 NAT'L RESOURCE ALERT
Have you heard about the @BeTheMatch #SickleCellConnect program? It connects warriors and caregivers w/education, resources & support to empower our treatment options
Order at 🌐https://t.co/Wb1UdGBeIL
#SCDawareness #bethematch #SickleCellMN #CureSCD
🌟 SEPTEMBER IS SICKLE CELL AWARENESS MONTH 🌟
Check out our month of events. There's something for everyone!
Register for events at https://t.co/wBpv00Sfbj
#sicklecelldisease #September #AwarenessMatters #CommunityMatters #TogetherWeCan #CureSCD #SickleCellMN
🚨900 followers!🚨appreciating all the support and the care to listen to my story! Extremely grateful! Excited to wrap up clinical residency @TheBCRP in a few months, jump head first into intern recruitment, and keep pursuing this physician-scientist thing! #CureSCD #Pediatrics
June 19 is #WorldSickleCellDay and we're shining the light on #SickleCellDisease through the nat'l #ShineTheLight awareness campaign.
Support our efforts to improve quality of life for members of this community!
#SickleCellMatters #kNOwSickleCell #CureSCD #SickleCellMN
⚠️ So you don't think there's risks associated with #SickleCellTrait (SCT)?
Tune in this Thu Jun 2 to learn how "What You Don't Know (About SCT) CAN Hurt You!"!
🌐 https://t.co/oVHHEIksL7
#SickleCellDisease #kNOwSickleCell #SickleStrong #CureSCD #strongertogether #SickleCellMN
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