Top Tweets for #curesrs
Our new paper https://t.co/7lElzgAMtO on the pathology and potential therapy for #SnyderRobinsonSyndrome (SRS), an ultra-rare genetic disorder. Thanks to all the collaborators, @Snyder_Robinson Foundation, and support from patient families. #CureSRS #RareDisease
My great honor to attend the 2022 Snyder-Robinson Foundation conference https://t.co/vojusA1w3k. An unforgettable moment to have patient families, doctors, and scientists sitting together, working towards the same goal to #CureSRS. @Snyder_Robinson
The Million Dollar Bike Ride in Austria π¦πΉ is underway! Go Team SRS!!! #curesrsππππ #mdbr #snyderrobinsonsyndrome #AUT #mdbrpennmed2021
Todayβs rider is the father of an SRS Star βοΈ, a founding member of the SRF & is the Executive Director of the SR. We are thankful for his tireless efforts on behalf of our stars. He has held onto the hope that together, we will #CureSRSππππ #mdbr #pennmedmdbr2021 #TeamSRS
Todayβs featured Team SRS riders are the Natural History Study team who are riding in remembrance of Cody and in honor of Brandon. Together, we will #cureSRSππππ #mdbr #pennmedmdbr2021 #snyderrobinsonsyndrome #raredisease #teamsrs https://t.co/Y6mnhKi9db
The Snyder-Robinson Foundationβs members were thrilled to attend #RDDNIH for the 8th year in a row. Thank you for the invaluable information and excellent presentations. With this new wind in our sail, we will press on. #RareDiseases #RareDiseaseDay #NCATS #CureSRS ππππ
π£ Time to support #RareDiseaseDay!
Share this card on your timeline and let everybody know that you SUPPORT and TAKE PART in Rare Disease Day!
πhttps://t.co/XG08Cu8gh5π
The Snyder-Robinson Foundation Virtual Conference- Day 2 is happening now! Learn about the ongoing SRS research from the researchers themselves. They are working hard to #CureSRS ππππ#2020SRSConferenceβ¦ https://t.co/UmquuIokbk
Go Cooper! He is SRS Strong!!! Go Team SRS! We are so proud to see you doing the Million Dollar Bike Ride 2020 like a boss! #curesrsππππ #SRStrong #pennmedmdbride4rare2020 https://t.co/5uMCIxAeYi
Thank you to these Team SRS riders who just completed the 2020 MDBR! Thank you so much for your support for SRS research! #curesrsππππ #pennmedmdbr2020 #mdbride4rare2020 #SRStrongπ https://t.co/D3knxYezKl
SRF Director Cameron Hancock representing SRS front row & center at the NORD Leaders dinner a couple of weeks ago #curesrsππππ #SRStrong #rarediseaseday2020 https://t.co/YFAlUOIwaM
Making connections is a huge part of #rarediseaseday - Thank you #RDDNIH for this invaluable opportunity! ##CureSRS ππππ @ NIH Research Matters https://t.co/1RgdXRiB9z
Including Snyder-Robinson Syndrome
4 more days until #RareDiseaseDay2020!
#chanzuckerberginitiative #RareAsOne #RareDisease #CureSRS ππ#SRStrong #SnyderRobinsonSyndrome https://t.co/YrPxeVrOim
Our SRS Stars π do this every day! #Happyvalentinesday2020 #CureSRS #SRStrong https://t.co/u56QbFvK1I
Join Team SRS and be part of our mission to #CureSRS! Register now for the 2020 Million Dollar Bike Ride on June 13, 2020 in Philadelphia. To register, go to: https://t.co/iy67TmkuZv @MDBRide4Rare #CureSRS⦠https://t.co/N3tqQD07qI
The Snyder-Robinson Foundation is thrilled to have been selected by @cziscience The Chan-Zuckerberg Initiative to participate in their Rare As One Network!
#RareAsOne Network
#CureSRS ππππ https://t.co/zSLUom4Xwz
Congratulations to Dr. Casero, Jr., of Johns Hopkins School of Medicine, for receiving the 2019 MDBR grant for SRS research! We are thrilled and canβt wait to see what your work will reveal on our mission to #CureSRS! ππππ
Congrats to our 2019 MDBR research grant recipients! The ODC is proud to announce 36 grants for 29 diseases funded by proceeds from the 2019 MDBR to 24 institutions worldwide, ranging from $41k to $102k. See here for a list of awardees: https://t.co/DTWNwLDXuI
We are excited for #GivingTuesday tomorrow! Together, we will #CureSRS ππππ https://t.co/CJVxWRDAgF
Valued Supporter of The Snyder-Robinson Foundation, mark your calendars and get ready. Tomorrow is our first-ever fundraiser gala - #givingtuesday! Together, we will #CureSRS ππππ https://t.co/vkdFoN8hG7
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