Top Tweets for #eahad2020
Miesbach #EAHAD2020 on HOPE-B FIX Gene Therapy clinical trial Phase 3 results. Primary endpoint met with an ABR reduction of 64%. This does not seem very impressive. In answer to later question, he said some of their participants had bleeds as they became more active 1/
ICYMI @HCPA11 members .... submit your abstracts for #physiotherapy slam session #EAHAD2020 @EAHADnews
Our #Physio Committee will have a dedicated #physiotherapy SLAM session during the #EAHAD2021 AHP Day on 2 February. Submit your #PT research now!
➡️https://t.co/madrPuBqHB
The April issue of the #EAHAD Newsletter has just been published! Browse through for an interview with our new President, Flora Peyvandi, a recap of the #EAHAD2020 Congress, updates from our Committees and Working Groups, job opportunities and more!
➡️ https://t.co/qOSVJHULef
"(...)sharing information, learning and networking. #EAHAD2020 was another successful and great scientific event. I look forward to the next one in Manchester". Thank you to our members for their testimonials on our 13th Annual Congress!
Read them all➡️https://t.co/cNhpB2gWza
#ICYMI Did you browse through the #EAHAD2020 #Photo albums yet? What were your favorite moments? Check out the highlights and let us know!
➡️https://t.co/3xWVtbjHIC
📷🖼️📷The #EAHAD2020 #photos are now available on the #EAHAD Flickr account! Pre-Congress Day, main Congress, networking evening... Browse through the albums for some of the highlights of our annual Congress! ➡️https://t.co/S1JZKNt6Bi #haemophilia #hemophilia
Our new #Physiotherapists Committee chair @DStephensen68 won at #EAHAD2020 one of the two #precongress #Physio free paper prizes for his interim results presentation on the DOLPHIN project. Watch this short video to learn more https://t.co/4aYmCyIMkE
Like the video Sebastien. We are conducting an RCT study to determine what effect #exercise might have for young children with #haemophilia 👀 a video about the study https://t.co/qLqDRCpt9t and study protocol https://t.co/oDx7b3CaMl
ISTH released a statement regarding coronavirus and their Congress in July.They continue with the organisation as planned.Since we had #EAHAD2020 earlier this month, we understand the situation and are sure that the organising committee is taking everything into consideration.
We recognize concerns about the novel coronavirus (COVID-19), and together with our Local Organizing Committee, we have communications and coordination with health authorities in Italy. At this time, the #ISTH2020 Congress is moving forward for July 11-15, 2020, in Milan, Italy.
As someone who spent 5 stressful weeks before #EAHAD2020 trying to work out if COVID-19 will impact the meeting, I have every sympathy with everybody who is organising an international meeting in the next few months.
We recognize concerns about the novel coronavirus (COVID-19), and together with our Local Organizing Committee, we have communications and coordination with health authorities in Italy. At this time, the #ISTH2020 Congress is moving forward for July 11-15, 2020, in Milan, Italy.
📷🖼️📷The #EAHAD2020 #photos are now available on the #EAHAD Flickr account! Pre-Congress Day, main Congress, networking evening... Browse through the albums for some of the highlights of our annual Congress! ➡️https://t.co/S1JZKNt6Bi #haemophilia #hemophilia
I wonder how many #hemophilia health professionals knew that short stature was an adverse effect of #haemophilia treatment due to the use of Diethylstilbestrol (DES) to treat the disease in the 1950s and 1960s. I learned of it for the first time at #EAHAD2020
1/2
It was amazing to see heavy menstrual bleeding and woman's bleeding disorders getting the attention they deserve at conferences such as #EAHAD2020.
There was an excellent debate at #EAHAD2020 on whether PK guided dosing in useful in #haemophilia. I started by thinking the answer was obviously yes but ended having doubt. Congratulations to our debaters, Marjon Cnossen and Dan Hart. #hemophilia
Michelle Lavin explained that we are a long way away from identifying all individuals with low von Willebrand factor in Europe and explained the campain in Ireland to increase the number. They have already identified more then anybody else. #EAHAD2020 #hemophilia #VWD
Cees Smith is such a well informed patient. He supports our call for independent assessment of all the thrombotic events of the new #haemophilia therapies. He is a man who has lived through 60 years of adverse events of #hemophilia treatments. #EAHAD2020
In his brilliant talk at #EAHAD2020 Cees Smit, a patient from the Netherlands reminded the audience of the problems of the past and why we must never forget adverse events in #hemophilia. #Haemophilia
Miesbach finished his excellent lecture by raising some important unanswered questions about gene therapy in #hemophilia and suggesting how they might be tackled. #haemophilia #EAHAD2020
Miesbach explained that transaminitis is the main adverse event of gene therapy in #hemophilia and has been reported in most trials. Patients and clinicians underestimate its frequency, impact and treatment. #haemophilia #eahad2020
EAHAD has issued a press release about its annual meeting that took place at The Hague last week. I am still tweeting about it. https://t.co/V9vPdT4WIR #EAHAD2020 #hemophilia #haemophilia
#hotoffthepress Our #EAHAD2020 Press Release has just been published! Thanks to everyone who joined us in The Hague. You can read it or download it as a PDF
➡️ https://t.co/2JGws5jylm
Peter Collin's thoughts and conclusions at his excellent #EAHAD2020 lecture on future therapies for #hemophilia. I wonder how many patients realise that high risk patients are excluded from studies so the true safety can only be documented once it is used on unselected persons.
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