Top Tweets for #factorvii
Symposia on prophylaxis in #vonWillebrandDisease and on redressing the balance of treatment innovation in #bleedingdisorders including #VWD, #FactorVII deficiency and #GlanzmannThrombasthenia were among our highlights yesterday at #EAHAD2026. If you're there, don't forget to visit our posters from our VWD 360, FVIID 360 and Cinderella studies.
If you're attending #EAHAD2026, don't forget to come and say hello at this evening's welcome and poster reception!
Wednesday 4 February, 6.30-7.30pm
#EAHADCongress #vonWillebrandDisease #FactorVII #women #bleedingdisorders #research #Haemnet
Day 1 of #EAHAD2026 congress! Join us this evening at the welcome reception & poster presentations. Our posters present results from our FVIID 360, VWD 360 and Cinderella studies.
#FactorVII #vonWillebrandDisease #women #bleedingdisorders #research #Haemnet
@Samin_Mohsenian from @LaStatale eloquently presented her findings on the evaluation of gender differences in #bleeding tendencies and #factorVII deficiency severity among patients. Her analysis revealed no significant differences between male and female patients #BIC2025
What's your experience of living with Factor VII deficiency?
#FVIID #FactorVII #bleedingdisorders #livedexperience
https://t.co/HaRYvL9MUl
If you live with FVII deficiency, help us understand more by taking part in our FVIID360 survey
#FVIID #FactorVII #bleedingdisorders #livedexperience
https://t.co/JT1LtcwN5L
Tell us what it's really like to live with Factor VII deficiency
#FVIID #FactorVII #bleedingdisorders
https://t.co/gKxAIP4uZQ
Help us learn more about living with Factor VII deficiency
#FVIID #FactorVII #bleedingdisorders #livedexperience
https://t.co/gaLWD7T6Oc
Help us learn more about living with Factor VII deficiency
#FVIID #FactorVII #bleedingdisorders #livedexperience
https://t.co/SUTKsvQU6C
In today's community story ahead of #RareDiseaseDay, Sareena shares the obstacles she has faced since birth due to her #FactorVIIDeficiency diagnosis, and how the support of others has helped her lead a full life despite them: https://t.co/h4CqFjeY3u
#FactorVII #ShowYourStripes
Fascinating work on Factor VII deficiency from #ATHN10, illustrating role of modifying haplotypes that may influence not only FVII expression but other bleeding phenotypes. #ISTH2023 #FactorVII
We are overjoyed at @conniemont10 for her Keynote speech, telling everyone with #RareDiseases at the #LivingRareForum that "We are family. And we are RESILIENTLY RARE."
Her powerful words about growing up with #FactorVII deficiency should be heard by all.
Introducing our opening keynote speaker for NORD's #LivingRareForum, Connie Montgomery!
Connie is an advocate and author with #FactorVII deficiency and #PemphigusVulgaris who helps others to live their best rare lives.
Register for this event today: https://t.co/Gm8VZ19GNS
For #RareDiseaseDay2023, musician and actor @mirkoyannick made a short documentary on their rare blood disease, #FactorVII Deficiency, also known as Alexander's disease. Watch⬇️
In case #rarediseaseday is gonna be busy for you tomorrow, here’s the whole documentary in fifteen seconds.
Watch the full thing, here: https://t.co/0VBLlLKxWu #rareasone #showyourstripes #careaboutrare #rarediseases #iamrare
Comparison among three different #bleeding #scores and the #thrombin generation assay to assess the #different #hemorrhagic #phenotypes in patients with #FactorVII deficiency | Bleeding, Thrombosis, and Vascular Biology https://t.co/87ggOrRU9h
Niño con #Hemofilia e Inhibidores internado en el Hospital Sabogal de @EsSaludPeru vive un calvario ante la negativa de recibir el #FactorVII que necesita y lleva internado 2 semanas sin mejorar el sangrado en su rodilla @SuSaludPeru @FEPER_Peru @FioreMolinelli @NacionalCenso
#Didyouknow that the EAHAD-DB Coagulation Factor Variant Database Group has a dedicated FVII Gene Variant Database capturing 221 unique variants in the #FactorVII #gene? Explore it > https://t.co/kf9UsIRZeE
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