Top Tweets for #Haemnet
With one week to go, the countdown to #ISTH2026 is on!
Who's going?
We look forward to seeing you there!
#ISTHCongress #Haemnet #bleedingdisorders #research
We're wishing goodbye & good luck to Mike Holland, who steps down as #Haemnet CEO after 13 years. Thank you to Mike for his vision & dedication. We'll continue to work for the benefit of everyone in the #bleedingdisorders community, led by @katekhair
If you're attending #EAHAD2026, don't forget to come and say hello at this evening's welcome and poster reception!
Wednesday 4 February, 6.30-7.30pm
#EAHADCongress #vonWillebrandDisease #FactorVII #women #bleedingdisorders #research #Haemnet
Day 1 of #EAHAD2026 congress! Join us this evening at the welcome reception & poster presentations. Our posters present results from our FVIID 360, VWD 360 and Cinderella studies.
#FactorVII #vonWillebrandDisease #women #bleedingdisorders #research #Haemnet
Only a week until the EAHAD 2026 Congress! We're looking forward to catching up with clients, colleagues and friends, and hearing about the latest developments in #bleedingdisorders #research. See you there?
#EAHAD2026 #EAHADCongress #Haemnet
Jo & Alex's message to #families who have children with #vonWillebrandDisease: "It isn't something to be frightened of. It's something you need to learn and understand and be prepared for." Part 2 of their story, 'Raising girls with Type 2 #VWD', is now on the #Haemnet blog: https://t.co/jrFpO0DKX1
If you're at #ISTH2025, check out our poster reporting final results from VWD360, a natural history study with over 600 participants, exploring the real-life experience of adults living with von Willebrand disease
#vonWillebrandDisease #VWD #research #livedexperience #Haemnet
Are you going to #ISTH2025? Look out for our posters presenting results and insights from the #Haemnet VWD360 study, which explored the daily impact of #vonWillebrandDisease with over 600 participants
#ISTH #bleedingdisorders #research #livedexperience
From unmet need to effective treatment, our research recognises the importance of individual stories in seeing the bigger picture for people who live with a bleeding disorder.
#BleedingDisorders #Research #Haemnet
Interim results from #Haemnet’s VWD360 study on #vonWillebrandDisease, reported at #EAHAD2025, reveal under-recognised bleed frequency, high healthcare use and low rates of prophylaxis. @katekhair #EAHADCongress
Do you live with a #BleedingDisorder? Sharing your experience can help us do the #research that improves treatment & care. To find out more about our research community, email [email protected]
#Haemnet #Haemophilia #vonWillebrandDisease #GlanzmannThrombasthenia
From all of the Haemnet team, to all our friends in the bleeding disorders community and beyond, Merry Christmas & Happy Holidays!
[email protected]
#Haemnet
If you have #vonWillebrandDisease, come along to vWD: Understanding & Thriving @ Royal London Hospital on Thurs 24 October. It’s about connection & education. Find out about the new #VWD community organisation #Haemnet is working with. Free to attend: https://t.co/23lYxjNYix
The #Haemnet #Glanzmanns360 poster at #EAHAD2023. Highlighting the unmet needs of people with Glanzmann's Thrombasthenia.
Happy International Nurses Day! Check out this excellent podcast, 'what makes a great haemophilia nurse?'.. our community is lucky to have such wonderful nurses
#InternationalNursesDay #IND2021 #haemnet
Celebrating #InternationalNursesDay w/ a new #Haemcast hosted by @katekhair feat. #haemophilia nurses from across the world, who share their thoughts on what makes a great haemophilia nurse and the role nurses will play in the future of haemophilia care
🔗https://t.co/4XID9FSpge
This fits in very nicely with the UK #haemophilia nurse competency framework ....published in Haemophilia journal and available on the #haemnet website ....plot your own competence and education needs
A great read for anyone in or exploring the #ACP #Advancedpractice roles. Ensuring fulfillment of the 4 pillars of ACP i.e. not allowing #clinical to dominate leading to education, leadership, & research/service development becoming invisible is essential @haemnet @NursesHna
Spent a great morning yesterday at the #Haemnet Contemporary care course talking about finding #research opportunities in #Haemophilia. Well done all those who attended and to those who organised an amazing course. @CathyAH1980 @Debra_PollardRN @katekhair @physio_paul @haemnet
5.15am alarm for Day 3 of the Aspire course in the capital. Looking forward to catching up with the #newbreedtolead #haemnet
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