Top Tweets for #fall2019ls
Some memorable notes from #patients at #Fall2019LS @NPCQIC. Heart warming to know that the #SingleVentriclePatientDay was the first time some people had met someone else with #HLHS. ❤️

NPC-QIC Learning Session - Improving outcomes for children with #HLHS 💜 #fall2019ls #cardiacnurse #singleventricle @NPCQIC @UCLAHealth @UCLAMCH

From @NPCQIC #Fall2019LS onto @CardiacUnited - “if you want to go fast, go alone- if you want to go far go together.” African Proverb. Together for hearts - thanks to @TheCHF @MottChildren @CincyChildrens

Thank you @DrJenniferCo_Vu, @locus_health, @NPCQIC, & @LurieChildrens for allowing us to share the story of this high risk interstage patient who thrived at home with parents & siblings. #SingleVentricle #Pictogram #All4Your1 #Fall2019LS

Great presentation by @mmsteltz @NPCQIC #FallLS2019 showing an Innovative patient medication tool using a Pictogram which translates a complex medication regimen for patients with low literacy or limited English proficiency! @ACTION4HF #pedscards @LurieChildrens


How do you pick between learning about data or how parents can partner to improve QI? #Fall2019LS
I'm not sure conference ribbons have ever so accurately described me. I always love meeting with other single ventricle families, clinicians, and researchers! @NPCQIC #Fall2019LS

One of many highlights from #Fall2019LS is Single Ventricle Patient Day - created by patients, for patients. Thanks to @DoctaTMG and @megroswick for celebrating and sharing your learnings and feedback for all of the providers and parents in the room. #nolimitations

Sunrise in Ann Arbor - rising up for day 2 of single ventricle care with patients, parents, families, and clinicians together. @NPCQIC #Fall2019LS @MottChildren

Proud to be working with another #learningnetwork that believes in listening to their patients, collaborating with them, and creating a day dedicated to patients RUN by patients. #Fall2019LS #npcqic
@NPCQIC learning about the value of #Transparency and what family's want and deserve. #Fall2019LS @LurieChildrens


Grateful to have 6 parents here, two are dads, and fetal patient & family @NPCQIC representing @LurieChildrens team! #Fall2019LS https://t.co/BpmcdF34j0
First @NPCQIC learning session! Great time learning more about #HLHS and meeting clinicians & patients! #Fall2019LS

300+ attendees including 76 patients and families @NPCQIC #Fall2019LS
📷 cred: @jeff_b_anderson @CincyChildrens


Start with operational definitions to reduce specIal cause. Be patient, diligent and get this right at start of defining measures. @NPCQIC @LearningNetwrks @CardiacUnited @lloydprovost #Fall2019LS

So excited to be part of National Pediatric Cardiology Quality Improvement Collaborative Fall Learning Session 2019! Happy to share and learn to help improve care for Single Ventricle patients! @NPCQIC #Fall2019LS @UFCHC @SistersHeartSBH @mmsteltz @NicjampolNicole @Katie_E_Bates

@NPCQIC National Pediatric Cardiology Quality Improvement Collaborative underway in Ann Arbor. Patients, parents, and clinicians learning together. #Fall2019LS

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