Top Tweets for #fighthabc
Hypomyelination with atrophy of the basal ganglia and cerebellum (H-ABC) is a rare genetic disorder affecting parts of the brain which control movement.
@CerebroGlobal is focused on the future of treating #RareDiseases
#mrx #insights #habc #fighthabc #leukodystrophy #tubb4a
Just as researchers introduced components of Covid into human cells to induce antibodies to create a vaccine, h-abc researchers hope to introduce inhibitors into cells to stop the toxicity of the gene mutation using a similar approach. #GeneTherapy #fighthabc #tubb4a
Due to the rareness we are invisible to most yet with determination and drive we will make a difference to help kids living with h-abc, a degenerative neurological condition. Help us connect at https://t.co/apTqgzq4QC. #leukodystrophy #fighthabc #rarediseases
WHAT IS H-ABC?
Hypomyelination with Atrophy of the Basal Ganglia and Cerebellum )H-ABC) is a rare leukodystrophy. #Leukodystrophies are rare and progressive genetic diseases that affect the nerves, spinal cord, and brain.
Learn more: https://t.co/NYPkb4Ekb7
#FightHABC #HABC
"Today we fight. Tomorrow we fight. The day after, we fight. And if this disease plans on whipping us, it better bring a lunch, 'cause it's gonna have a long day doing it." — Jim Beaver
#FightHABC #RareDiseases #ChronicIllness #RareIllness #Leukodystrophy #FightBack #WeFightBack
"No one is useless in this world who lightens the burdens of another." — Charles Dickens
The children affected by H-ABC, a rare leukodystrophy, did not choose this rare disease. Help lighten their burden. Help us find a cure.
#FindACure #RareDisease #ChangeTheWorld #FightHABC
"Each one of us can make a difference. Together we make change." — Barbara Mikulski
#FightHABC #RareDiseases #ChronicIllness #RareIllness #Leukodystrophy #FightBack #WeFightBack #SaveAChild #RareDisease #Leukodystrophies #Tubb4a
"No matter how hard the battle gets, or no matter how many people don't believe in your dream, never give up." — Eric Thomas @Ericthomasbtc
#FightHABC #RareDiseases #ChronicIllness #RareIllness #Leukodystrophy #FightBack #SaveAChild #RareDisease #Leukodystrophies #Tubb4a
WHAT IS H-ABC?
Hypomyelination with Atrophy of the Basal Ganglia and Cerebellum )H-ABC) is a rare leukodystrophy. #Leukodystrophies are rare and progressive genetic diseases that affect the nerves, spinal cord, and brain.
Learn more: https://t.co/NYPkb4Ekb7
#FightHABC #HABC
"While we try to teach our children all about life, our children teach us what life is all about." — Angela Schwindt
We believe this is the most important lesson!
#FightHABC #RareDiseases #RareIllness #Leukodystrophy #SaveAChild #RareDisease #Leukodystrophies #Tubb4a
Do you have a child living with #HABC? CHOP (Children's Hospital of Philadelphia) is reaching out to families who have been affected by H-ABC, a rare #leukodystrophy, to launch a Natural History Study on the disease. Take the survey: https://t.co/BhsLVwHXeE
#FightHABC #SaveAChild
"Determination gives you the resolve to keep going in spite of the roadblocks that lay before you." — Denis Waitley
#FightHABC #RareDiseases #ChronicIllness #RareMatters #RareIllness #RareDiseaseAwareness #RareDiseaseAdvocate #RareDiseaseFoundation #Leukodystrophy
At this point, my focus (Michele) is on giving my daughter, Elouise, a happy childhood and letting her experience as much as she can in life, which is very difficult due to her lack of mobility. And I wanted to share with you all how we do that:
https://t.co/uB2ONus0xd #FightHABC
"You may fall many times, but you must keep going." — Debasish Mridha
#FightHABC #RareDiseases #ChronicIllness #RareMatters #RareIllness #RareDiseaseAwareness #RareDiseaseAdvocate #RareDiseaseFoundation #Leukodystrophy #LeukodystrophyAwareness #FightBack #WeFightBack #SaveAChild
The team at the Children's Hospital of Philadelphia (CHOP) is reaching out to families of individuals affected by #HABC for information on the symptoms & problems they have experienced: https://t.co/BhsLVwHXeE
#FightHABC #SaveAChild #LeukodystrophyAwareness #LeukodystrophyFamily
THE IMPORTANCE OF #HYGIENE.
Show your support of H-ABC (Hypomyelination with Atrophy of the Basal Ganglia and Cerebellum, a rare #leukodystrophy) and other rare disease families by practicing good hygiene. It can and will save lives!!
#FightHABC #SaveAChild
Every child needs a hero. Is it you?
Be a hero for a child living with H-ABC. Find out how: https://t.co/YnRb88XpAI
#fighthabc #rarediseases #chronicillness #rarematters #rareillness
Every child with H-ABC needs a hero. Is it you?
Find out how you can make a difference: https://t.co/YnRb89f0sg
#FightHABC #RareDiseases #ChronicIllness #RareIllness #Leukodystrophy #FightBack #WeFightBack #SaveAChild #RareDisease
"Never let the things you cannot do prevent you from doing the things you can." - Coach John Wooden
#FightHABC #RareDiseases #ChronicIllness #RareIllness #Leukodystrophy #FightBack #WeFightBack #SaveAChild #RareDisease
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