Top Tweets for #forebatten
With help from experts at @UNC_Health_Care and #ForeBatten, UNC put together a rare "N-of-2" clinical trial to help two twin girls get personalized treatment for a rare and progressive neurological disorder. #BattenDisease
https://t.co/zEY6SNqFwP
Thank you @rushisaband and Alex Lifeson for sharing our story and for this amazing donation.
#forebatten
#forethecure
#forethejourney
A day of golfing with @RushTheBand's Alex Lifeson up for bid in upcoming "Fore Batten Foundation" charity auction https://t.co/ZWn6PdYGaE
New item just added! Four tickets AND backstage Meet & Greet with Scott McCreery to any 2020 concert. Thanks for your support @ScottyMcCreery! #ForeTheCure #Auction #ForeBatten https://t.co/L1KvhGGzZW Item 422
If you've ever wanted to play some of the exclusive #usopen tracks...now is your chance! Auction is live now! @usopengolf #forebatten https://t.co/mN6KNzN0ey
One week to #GivingTuesday - November 27th. Join us in supporting #ForeBatten and every organization funding medical research.
Thank you to everyone in the golf community (and beyond) for rallying behind @forebatten's efforts. Amazing what people can do when they come together for a common goal. #thankyou #forebatten #genetherapy @AlanShipnuck @PaigeSpiranac @LarryFitzgerald https://t.co/iYMdhJ8Jpi
Our inaugural event was an incredible success! The collective efforts of many were not only able to raise invaluable exposure for juvenile Batten disease, but also a staggering $630,000 for gene therapy research! #ThankYou #forebatten #rarediseases
Our inaugural event was an incredible success! The collective efforts of many were not only able to raise invaluable exposure for juvenile Batten disease, but also a staggering $630,000 for gene therapy research! #ThankYou #forebatten #rarediseases
Thank you so much @PaigeSpiranac for spending some time with us at our inaugural event on Monday. The kindness of people like you is why it was a very successful night. You have a big heart. Thank you!! #forebatten https://t.co/xs6H2Yqx4x
Had a great time supporting this amazing family at the @forebatten charity event last night! Please check it out, share their story, and help.
If you are a sports fan, this is the opportunity of a lifetime. It may be pricey, but WOW, what an experience. And all for the kids... #forebatten #espys #VIP #redcarpet https://t.co/MkKDHm65VM
Ever dreamed of playing Oakmont (#6 in Golf Mag's Top 100)? Winged Foot (#13)? Riviera (#19)? LA North (#20)? Now you can...and it's tax deductible! You'll also be helping out the Kahn family (https://t.co/OGepHnz6iU) & @forebatten. To bid on a tee time: https://t.co/c5IIv2oF17
The latest batch of additions to @forebatten's silent auction. More great courses provided by even greater people. Go bid! https://t.co/L1gN5K14rG #golf #forebatten #thankyou
And the list keeps getting better! Big thanks to #mpcc for offering a foursome to play both the Dunes and Shore courses. Great item for an even greater cause. #bidnow #forebatten https://t.co/JNHlt0HGfE
We found something for @AlanShipnuck to bid on! 36 holes at MPCC. Some of the most amazing golf anywhere can be yours, if the price is right! #bidnow #golf https://t.co/cl8nnBCRRL
Good folks they are @AlanShipnuck! Thank you @PinehurstResort once again for supporting @forebatten and helping make a difference. Already a couple of bidders! #speechless #forebatten https://t.co/FeVR8RCzpz
The good folks at @PinehurstResort read the story about the Kahns and were moved to donate a foursome on No. 2 for the @forebatten fundraiser, on 3/12 at @Topgolf in Scottsdale. If you want to attend or bid on the many items: https://t.co/c5IIv2oF17 https://t.co/XC3uCSIs0g
Thanks for spreading the word @GeoffShac. @forebatten needs all the attention it can get. - Some special golf available in exchange for donating to the cause...https://t.co/L1gN5K14rG #forebatten #golf https://t.co/ALK9WtAnuP
"Fighting for a miracle: Course designer David Kahn and his wife, Karen, search for strength in the most daunting battle imaginable" https://t.co/AUECiYSTDV
Wow! @PinehurstResort has stepped up and provided @forebatten's auction with a foursome to play the famed No. 2 and brand new 9-hole par 3 course, The Cradle. The list keeps getting better! Bid now!! #forebatten https://t.co/Bl3mMd0EDm
Thank you @PinehurstResort for offering up a foursome on No. 2 and The Cradle to add to our online auction. Go Bid now!! #ThankYou #TheCradle #Pinehurst https://t.co/ILjgiZ9TeK
Wonderful piece @AlanShipnuck! Our foundation and family thank you for sharing our story and spreading awareness of #BattenDisease. #forebatten https://t.co/Kud2dtGCfE
David Kahn (@JKDgolfdesign) is one of golf's most talented course designers. A year ago his twins were diagnosed with a rare, incurable disease. How do you keep going, and even find meaning, in the face of heartbreak? My story for https://t.co/S0GowlNvQx: https://t.co/XC3uCSIs0g
Thank you @AlanShipnuck for crafting a beautiful story / video and spreading awareness of #BattenDisease #forebatten @forebatten https://t.co/y73hvkL180
David Kahn (@JKDgolfdesign) is one of golf's most talented course designers. A year ago his twins were diagnosed with a rare, incurable disease. How do you keep going, and even find meaning, in the face of heartbreak? My story for https://t.co/S0GowlNvQx: https://t.co/XC3uCSIs0g
Here's your chance to win a custom fitting for @pxg's new GEN2 irons. Highest bidder to be custom fit at the company's Scottsdale headquarters by a Master Fitter. #pxgtroops #forebatten https://t.co/npVkWQuJT6
Take a Swing Fore Batten - Bid on a custom fitting for @pxg's new GEN2 irons. Big thanks to @DrBobParsons for generously donating the best tools in the biz. #golf #pxgtroops #pxg #silentauction #thankyou https://t.co/d6YK2bbR9D
Bid now for an amazing experience with @PaigeSpiranac! Her generosity, along with many others, can and will make a huge impact on @forebatten's mission. #battendisease #forebatten #golf #makeadifference https://t.co/Th98NHU4zt
A HUGE heartfelt THANK YOU to @PaigeSpiranac for donating a round of golf for 2 people with her at @TroonNorthGC. Let's fight #battendisease! Bid now thru 8 pm PT 3/12. #RareDiseaseDay #Golf #ThankYou https://t.co/IK2xhCi0gG
Hey #Chicago sports fans - see a game, sit in some great seats, and support a great cause! #ForeBatten #RareDiseaseDay2018 #charity DM me if interested!
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