Top Tweets for #fundALS
#FundALS
The #ALS Community fought tirelessly to pass the Act for ALS to help people with ALS & other rare neuro diseases. Our grassroots advocacy led to it being among top 100 most co-sponsored bills in the last half century. It is funding Expanded Access, critical biomarker & natural history research in multiple rare neuro diseases. The work has just begun. Now we need Congress to fund it for another 5 years.
We can't stop now.
I AM ALS makes it easy to contact your Congress members. Asking all in #raredisease community to help.
#Duchenne #HuntingtonsDisease #ataxia #musculardystrophy #limbgirdle
ACT for ALS unites people living with ALS, caregivers, researchers, providers, & policymakers to drive progress. We're grateful to our bipartisan champions on Capitol Hill for our progress so far. But we can't afford to stop pushing: https://t.co/mr09LldAKa
๐ธ: Stephen Voss
Such an honor to receive the MARY-ANN ABESKA SPIRIT AWARD
#IAMALS #MaryAnnAbeskaSpiritAward #MelaninChildrenMatter #PediatricALS #RareDiseaseAdvocate #ALSDoesNotDiscriminate #KingNazirLegacy #BlackMothersLead #FundALS #LegislationMatters
ALS is progressive & touches everyone. Global MND/ALS Awareness Day is recognized on the summer solstice as a symbol of hope. While promising research & assistive tech exists- https://t.co/7uE0wCIH8u there is no cure. There IS hope #fundALS @HopeJGFoundatio @itsLOLOlove @bsw5020
The fight against ALS continues again today. I'm awake and ready for the challenge to take it on full force. Of course it takes more than awareness, more than money, even takes more than a 1000 retweets. We need more PRAYERS. Praying can change hearts of people who are in charge
On this #VietnamWarVeteransDay I honor my husband who fought in a fight he never wanted to be in. He survived that fight but is now in the fight of his life with no suitable weapons against an enemy he cannot conquer - the beast called #ALS.
#EndALS #DefeatALS #FundALS
I don't post much, especially personal things, but I can't keep quiet about this. I've lost too many friends to #ALS and my husband is living with it. I'd love to wake up one day & see that a cause and a cure are here. Not in my lifetime but in my children's? #DefeatALS #FundALS
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