Top Tweets for #gdls16
Thank you to our wonderful delegates, speakers & sponsors who attended #GDLS16 at the weekend! You are all amazing!

5. (nope, haven't forgotten!) Representing myself and my charity, as someone with a genetic disfigurement, at #GDLS16. :D
Back in Stratford after #GDLS16, fantastic again @GeneticDisUK, lovely to hang out with @Becky_Hardiman & @Adam_Pearson again, and...
Thank you @GeneticDisUK & the amazing sponsors for the #GDLS16 symposium. Inspirational and huge benefit for our #raredisease community.

Thank you to all delegates who attended #GDLS16. Pls fill out the survey on our website so we can continue to improve the symposium
Fascinating day at #GDLS16. Great overview of #raredisease for patient charities. Thanks @GeneticDisUK and sponsors! https://t.co/xBlPYO42hf
Huge thanks to our sponsors of #GDLS16 @GlobalGenes @HaHsupport @Clinigen @Retrophin Alexion and Sigma-tau
"Working in partnership is crucial for success" - Dr @JulieGarra from @AtaxiaUK on their collaborative research efforts. #GDLS16
Understanding rare disease w collaborative research. Hearing about trial @Pfizer, @AtaxiaUK, @UniofOxford, @imperialcollege, @ucl. #GDLS16
So happy tell my story today at the Genetic Disorder Leadership Symposium, lovely to meet you all #GDLS16
Daniel from @Tay_Sachs says patient groups are best placed to manage #raredisease registries - no-one else will be more motivated. #GDLS16
Charities should be in charge of data #GDLS16
Rare disease registries have to capture a wide range of data on symptoms to be useful for research. Daniel Lewi from @Tay_Sachs #GDLS16
The @BPSUtweet monitors #rarediseases in UK and Ireland and collects data to support research and treatment. #GDLS16
Collaboration and data and sample sharing are crucial in rare disease #GDLS16
Any #raredisease patient group can register with @ConnectRD to contribute data to a global research network. #GDLS16
https://t.co/3ytXgghetU
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