Top Tweets for #hEdS
Any help is appreciated! Donate if you can afford to. Thanks to those who have given to me in this time of need 🙏 #LongCovid #pwME #POTS #Dysautonomia #pwLC #hEDS #ChronicIllness #Disability
I am asking for help. I was diagnosed with Long Covid in Aug 2021 and haven’t been able to work since. Applied for disability immediately and still have not received benefits. It’s almost impossible to survive without some type of income. Please help https://t.co/iZB6MEIW0Y 🙏 #LongCovid #pwLC #Dysautonomia #pwME #POTS #EhlersDanlos #hEDS
The mechanism when those little vessels in the eye bursts in Dysautonomia patients. #LongCovid #pwME #POTS #Dysautonomia #pwLC #hEDS

I always thought that everyone lived with excruciating neck pain from heads just being so heavy 🤭
#eds #ehlersdanlos #hypermobility #heds #hypermobileehlersdanlossyndrome
I may not be able to walk properly on my leg today, but how blessed we all are to be alive 🙏 ❤️🩹 #hiddendisability #chronicpain #hypermobility #ehlersdanlos #heds
@DavidDack I started running at age 55 as i started falling due to some weak muscles ( i have #hEDS) previously i had been fit by dog walking accompanying daughter in various sports etc Got weaker as my dog became unwell . First full marathon 59 - now 21 and counting aged 73
@BBCWales I wonder about this connection w all the chronic illnesses ppl are getting diagnosed w everyday!
I have MCAS & it is so freaking awful😷it’s also very painful & we live in such a toxic world that it’s hard to escape from it!! #mcas #MEcfs #pwME #hEDS @JanetDafoe @DafoeWhitney
Dysautonomia can cause chest pains via ischemia that can improve when laying down. The mechanism involves poor autonomic signaling to blood vessels which temporarily reduces blood flow to the heart. #LongCovid #pwLC #POTS #Dysautonomia #hEDS #pwME

@ThePOTSPostman Except medical schools continue to teach medical students that having "too many" symptoms affecting "too many" organ systems (check too may boxes on your form) means a psych dx is highly likely. Change curricula. #Dysautonomia #NeuroSjogrens #hEDS #ME #AI #PAIS #NeuroImmuneAxis
@arianek Saying, "Im sorry this happened to you" can improve relationships with patients. Its validating & supporting. Especially in neuroimmune axis fatiguing disorders. You will be amazed. #NeuroSjogrens #LongCovid #Dysautonomias #hEDS #UCTD #ME #AI #Sjogrens
god made me allergic to apples so i fear doctors instead of them fearing me #heds
10,000+ YouTube subscribers. That’s 10,000+ reasons to keep having these conversations. 💜
And if you haven’t subscribed on YouTube yet, come join us. We’re just getting started. 🎉
#BendyBodiesPodcast #Hypermobility #EhlersDanlosSyndrome #hEDS #HSD

A doctor just asked me how I'm still smiling and walking without limping! Sending love, light and strength to all who live with chronic pain ✨❤️🩹💪🏻 #hEDS #painmanagement #chronicpain #mindovermatter #prepatellarbursitis
Reduced blood flow makes neurons “stressed” due to energy deficiency. #LongCovid #pwME #POTS #Dysautonomia #hEDS #EhlersDanlos #pwLC

Episode 18
🌳 Ana discovers freedom through swimming, nature, and choosing her own activities. Living with EDS shouldn't stop someone.
💙 Reach out—we’re going to be your voice.
📚 EDS Guide: https://t.co/zLWD4C1sT5
❤️ Donate: link in bio
#EDSAwareness #AnasStory #TAFFEDS #hEDS
2025年、#hEDS(ハイパーモビリティ型 #EDS)と#コロナ後遺症 の関連について大規模研究が既に報告されています。
米国80以上の医療機関のEHRデータ1900万人以上を解析し、hEDS患者では #longcovid リスクが有意に高いこと、POTS・MCAS・ME/CFSなどとの関連が示されました。
https://t.co/qO7xpgGO7f
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