Top Tweets for #inchstone
This week weβre bringing you some #NewWords related to parenthood:
#TeenTernityLeave π§βπΌπ
#NepoParent πͺβ¨π¨βπ€
#Inchstone π₯Ήπ€π
Can you guess what they mean from our emoji clues?
Find out on the blog β¬οΈ
https://t.co/aQwZNQqeL6
#CambridgeDictionary https://t.co/OX1ElAftWE
Another first and another huge #inchstone @NlySocial - this Instagram Reel just hit One Million Views! #socialmediamanager
It was an honor to pilot the
#Inchstone Project with @DEE_Pconnection and 10of our #SCN2A families! As the findings are being published the results can further help all DEE groups w/ endpoint measurements for their clinical trials. #bettertogether #rareasone #SCN8A
What Does Better Look Like? Our Inchstone Project
partnered with @FamilieSCN2A to ask what meaningful changes demonstrate improved quality of life & to document what matters to those with severe DEEs and their families. https://t.co/loedzwCvXq
Thanks to the #SCN2A families!
Thank you to Anne Berg and @natashanludwig for presenting at the #SCN2Aconference on measuring meaningful change in our profoundly affected #SCN2A community. They presented data from the CTRS and @DEE_Pconnection #Inchstone Project!
#MoreThanSeizures
Excited to share our #SCN2A Clinical Trial Readiness Study and the pilot #Inchstone project with @DEE_Pconnection
@natashanludwig @greatcait @CureSCN2A
The theme for #GatlinburgCon 2023 is Rare Genetic/Monogenic Disorders & Co-Occurring Conditions in Intellectual and Developmental Disabilities. #SCN2A is #MoreThanSeizures and we are excited to spread the word #Inchstones
public & #patient #engagement =essential to the present & future of #research. We are pushing forward in #epilepsy together. Thanks @PCORI & @LGS_Foundation @DEE_Pconnection @PESAlliance for showing the #power of #partnership #inchstone #data @PedsEpilepsyDoc @LurieNeurosurg
We are so excited to be doing this work to make sure every #inchstone gets measured! #CountEveryInchstone
Thank you to the participating patients, families and the amazing team at @DEE_Pconnection for ensuring the most severely affected patients are not excluded from clinical trials because βit is hard to measure improvement.β
#CureSCN2A
#SCN2A
RT @mumdoingherbest: We were told to brace for my daughter never to sit or crawl last year. She is globally delayed and still has a lot wrong with her but Iβm so so proud of these 5 steps I never thought Iβd ever see this day!!!!! #parenting #inchstone #β¦ https://t.co/MRZWO4FmDm
Last Seen Hashtags on Sotwe
ΰΉΰΈ’ΰΉΰΈΰΉΰΈ‘ΰΈ΅ΰΈ’ΰΈΰΈ²ΰΈ§ΰΈΰΉΰΈ²ΰΈ
Seen from Thailand
Omegle
Seen from United States
skznsfw
Seen from India
minichat()*()*()*()*+filter:videos
Seen from France
anxiouspanda
Seen from Spain
minichat((((((()))))))* filter:native_video
Seen from Mexico
tangogirl
Seen from Pakistan
monkeyappwins
Seen from United States
gay bangladesh
Seen from Singapore
istri selingkuh
Seen from Netherlands
Most Popular Users
Elon Musk 
@elonmusk
241.5M followers
Barack Obama
@barackobama
118.8M followers
Cristiano Ronaldo
@cristiano
114.5M followers
Donald J. Trump
@realdonaldtrump
111.8M followers
Narendra Modi
@narendramodi
107.1M followers
Rihanna
@rihanna
98.7M followers
NASA
@nasa
92.3M followers
Justin Bieber
@justinbieber
91.8M followers
KATY PERRY
@katyperry
90M followers
Taylor Swift
@taylorswift13
84M followers
Lady Gaga
@ladygaga
75.5M followers
Virat Kohli
@imvkohli
73.5M followers
Kim Kardashian
@kimkardashian
70.9M followers
YouTube
@youtube
68.8M followers
Neymar Jr
@neymarjr
66.5M followers
Bill Gates
@billgates
65.3M followers
Selena Gomez
@selenagomez
63.1M followers
The Ellen Show
@theellenshow
62.2M followers
CNN
@cnn
61.7M followers
X
@x
60.7M followers