Top Tweets for #knockoutALD
๐We run (or walk!) for ALD in just over two weeks! Join us or donate to support ALD families and to raise funds for ALD research at the University of Minnesota to help improve treatments and outcomes for ALD boys. More info at https://t.co/04Y1aGCiwk
#knockoutald
Registration is OPEN for our 7th Annual Run for ALD, Cure the boys๐๐๐ผโโ๏ธ๐! 5K run/1 mile walk at Creve Coeur Park on Nov. 18th. Virtual option also. Sign up or donate to help support ALD research!
https://t.co/0m1LZEQ2fZ
#knockoutald #charity5K #aldresearch
๐Knockout ALD is proud to announce our 7th Annual Run for ALD, Cure the Boys! Nov. 23, 2023! Stay tuned for registration and sponsorship info. #knockoutald #aldresearch
Thank you @sluhjrbills for inviting Knockout ALD to be a part of the annual Teacher Karaoke fundraiser! Such a fun tradition for some special causes! #knockoutald
Itโs National Non-profit Day ๐, great time to sign up for Run for ALD 2022! T-shirt deadline is Oct. 18. Grab some friends, join a team or walk/run virtually! Donate or sign up at https://t.co/TCBS3QvJc5
#knockoutald #charity5k #aldresearch
So pumped for this ALD warrior who set a goal of competing in triathlon ever since his Make a Wish Ironman trip. AND he made it all the way to Milwaukee for the USA Triathlon age group Championships! This fierce competitor is my hero! ๐๐ปโโ๏ธ ๐ด ๐๐ผโโ๏ธ
#usatriathlon #knockoutald
A good showing by these @sluhxctrack boys at the Newtown Tri today! ๐โโ๏ธ ๐ด ๐ #Triathlon #knockoutald
๐6th Annual Run for ALD, Cure the Boys 2022 event registration now open! Sign up to join us in person or virtually, form a team, make a donationโฆall funds go to support ALD research at the University of Minnesota https://t.co/kkNqbInigN
#knockoutald
๐Registration for Knockout ALDโs 6th Annual Run for ALD (Nov. 19th) opens in one week! All funds raised go directly to support ALD research @MHFVChildrens. There will be in person and virtual options for the 5 K/1 mile. Registration link soon! #knockoutald
๐Our Knockout ALD recognition tile has been added to the donor wall in the hospital lobby @mhfvchildrens ! We are humbled and honored to be recognized among the leading partners and donors to ALD research at the University of Minnesota Childrenโs Hospital! ๐๐ฅ #knockoutald
๐Knockout ALD is proud to announce our 6th Annual Run for ALD, Cure the Boys on Nov. 19th! All funds raised will go to support research projects @MHFVChildrens Leukodystrophy Center for ALD Research! Registration will be opening soon! #knockoutald #charity5K
๐We salute all doctors today on National Doctorโs Day, especially those who helped save our sonโs life @MHFVChildrens. A big shout out for your tireless efforts especially in the fight against ALDโฆwe are forever grateful! God bless you!#NationalDoctorsDay #knockoutald
Our family represents the 5% of people worldwide whose have rare diseases. Celebrating and remembering them todayโฆBetty (ALS), my dad (ALD/AMN), Nicholas (ALD & adrenal insufficiency), and myself (ALD & ankylosing spondylitis). #knockoutald #RareDiseaseDay2022
So happy to see Missouri highlighted for officially joining the ranks of ALD newborn screening at the ALD Alliance Standards of Care Conference! Thank you to ALD Alliance for all your work in saving lives and helping ALD families! #knockoutald #aidanslaw #newbornscreening
The Newborn Screening Program has an exciting update! As of Dec. 1, 2021, all newborns will be screened for adrenoleukodystrophy (ALD)! ALD is a genetic disease affecting 1 in 17k people. Early treatment can be lifesaving and increase quality of life.
#knockoutald #aldalliance
๐๐ฅKnockout ALD is thrilled to announce 2021 totalsโฆwith $48,500 (our most ever!)raised for ALD research at @MHFChildrens, bringing our 5 year total funds donated to $128,500!! Hoping to help bring about better and life-saving treatments for ALD boys! #knockoutald
A big win for ALD and Missouri today! As of Dec. 1st, the full population pilot for ALD newborn screening in Missouri has officially begun! ALD boys will now have a fighting chance at life! ๐๐ช๐ป๐๐
#knockoutald #aldalliance #aldnewbornscreening #adrenoleukodystrophy
Big thank you to our 537 participants from near and far in our 5th Annual Run for ALD, Cure the Boys!! What a beautiful, amazing day!๐
#knockoutald #adrenoleukodystrophy
Umbilical cord blood donation saves livesโฆincluding that of our son Nicholas๐Thank you Dr. Lund for promoting cord blood donation and being a hero for so many rare disease families like ours! #knockoutald
๐Itโs September and Leukodystrophy Month! Think of all the healthy boys and men in your life and be grateful ๐ then log on to https://t.co/TCBS3QvJc5 to sign up or donate for our 5th Annual Run for ALD so that ALD boys can have a healthy life too๐#knockoutald #aldconnect
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