Top Tweets for #letsbeatPSC
In a complex disease like PSC, it is clear there will not be a single magic bullet. This extract is from a special Ask the Expert session with international PSC experts. Full session & extracts here: https://t.co/1zyPiO1y2X #LetsBeatPSC #PSCSupport #LiverTreatment #LiverResearch
(Source: Dr Sarah Al-Shakhshir MBChB MRCP, Hepatology Clinical Research Fellow)
#LetsBeatPSC #FMT #FargoTrial #PSCIBD #PSCResearch #Microbiome #IBD
NEW VIDEO RELEASE! Our latest Ask the Expert session features 3 leading international specialists ("PSC Royalty"!) for an in-depth discussion on PSC. Looking for lay summaries? Check the video description on YouTube for bite-sized edits! https://t.co/oZtjcXXkMg #LetsBeatPSC
When you have PSC, "regular" usually means blood tests or colonoscopies. Not fun! From 1 Sept, weβre spinning the word by joining an exclusive @BigGive trial: start a monthly donation & itβs DOUBLED for 3 months!
Zero prep needed ππ
https://t.co/nBtEPaVXYL #LetsBeatPSC
Once diagnosed with PSC, you may wish to consider seeking specialist care. To help navigate your options, we have compiled a list of UK hospitals known to have experience in PSC, with details from our Expert Panel of leading specialists:
π https://t.co/JaIGHgH7ub #LetsBeatPSC
Why research aspirin for #PSC? Dr Rushbrook explains! The #AspPSC study is exploring if daily aspirin lowers the risk of PSC-related cancer & liver transplants for those with PSC + IBD.
π₯ 45+ UK sites
π 1 pill/day for 5 yrs
βΉοΈ https://t.co/gP7hWURfnX #LetsBeatPSC
Thereβs no such thing as a βPSC dietβ! β
No evidence shows diet slows PSC progression, but many patients alter how they eat to feel better day-to-day and manage symptoms. NOTE: Disease progression is NOT a reflection of diet choice.
Info β‘οΈ https://t.co/3hcEGmgswG #LetsBeatPSC
4 days cycling. 2 cities. 2 bikes. Gillian and John are taking on a big challenge: Cycling from London to Paris over the course of 4 days for #PSCSupport!
Donate or share her Enthuse page here: https://t.co/SKuDyL5L6E
#LetsBeatPSC #TeamPSCSupport #RareDiseaseCommunity
"I'm doing this triathlon, mainly because I can." Four years ago, James had a #livertransplant following 3yrs of terrible symptoms, cirrhosis and worry. Last month, he took on Blenheim Palace Sprint Triathlon, raising Β£1,316 for #PSCSupport! πββοΈπ΄ββοΈπββοΈ #LetsBeatPSC #TeamPSCSupport
π Big news! Weβve officially passed the @AMRC Expert Review Audit! This ensures we always fund the best peer-reviewed research to drive better health outcomes for the PSC community.
π Learn more about our research: https://t.co/b8UNIRCHBI #LetsBeatPSC #PSCResearch
@PostcodeLottery @BigGive You made this happen!
Every penny raised will go fund pioneering research to overcome barriers to progress. Together, we are unlocking breakthroughs that will lead to effective treatments and, one day, a cure for PSC. THANK YOU. https://t.co/5WqdPETQ4M #LetsBeatPSC (2/2)
Kieron Dyer joined Sky Sports to talk about why he's backing @PSCSupportUK for the @BigGive #SmallCharityWeek! Thanks to our incredible donors we've reached our goal π but you can still donate (and boost your donation by 25% with Gift Aid!)πhttps://t.co/gkgmNutTX2 #LetsBeatPSC
Football legend & PSC transplant patient Kieron Dyer went on @tSHandJ to back our @biggive #SmallCharityWeek campaign! πβ€οΈ Having his voice championing our rare disease community means everything. Shortly after this interview WE HIT OUR TARGET! (1/2) #LetsBeatPSC
PSC is rare, affecting 7 in 100k people in the UK. This means general gastros at local hospitals may only see 1 or 2 cases in their careers, leading to fragmented care pathways and missed opportunities for vital research. 1/3 @BritSocGastro #LetsBeatPSC #BSGLive2026
Today PSC Support is delighted to join our long-standing colleagues @KingsCollegeNHS Hospital to celebrate a significant milestone: 60 years of world-leading liver science. Mark's joining a panel discussion to reflect on decades of progress. #LetsBeatPSC #LiverDisease #Kings60th
Really important and exciting news about Volixibat as a treatment for cholestatic pruritus (PSC itch). Thank you to Dr Joshi for this quick video explaining things in a bit more detail. More β‘οΈ https://t.co/cVH3FUKmTL
#LetsBeatPSC #PSCItch #primarysclerosingcholangitis @EASLnews
Thank you to Lorraine, one of our incredible Facebook moderators! π
For nearly 14 years, Lorraine has been a reassuring voice in our community, helping our online support group grow from just 200 members to over 5,000. #LetsBeatPSC #VolunteersWeek #PSCSupport #ThankYou
Weβve arrived! πͺπΈ Martine & Mark are officially in Barcelona for the @EASLnews Congress. The PSC Support stall is set up & they've already started meeting with international patient organizations to unite our voice. Stay tuned for updates. #EASL2026 #LetsBeatPSC #PatientAdvocacy
Up to 80% of people with PSC have IBD, making annual colonoscopies a regular routine. Many people report that the worst part isnβt the colonoscopy itself but the bowel prep. The PSC community have shared their best hacks. ‡οΈ
https://t.co/N0TdbExSwT #WorldIBDDay #LetsBeatPSC
Why do we co-author scientific papers? To make sure the researchers understand the reality of living with PSC. Weβre a voice in the lab, shaping the future of care through global collaboration. See our recently updated Publications List: https://t.co/55f58Itfsv
#LetsBeatPSC
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