Top Tweets for #letsbeatpsc
@BigGive @tSHandJ Thank you Kieron, @tSHandJ and @BigGive! Find out more and help us fund research so we can find effective treatments and, one day, a cure for the rare disease PSC:
➡️https://t.co/4SMn0KEH8j #LetsBeatPSC #SmallCharityWeek
Massive thank you to Kieron, @tSHandJ, @BigGive and of course everyone who has donated to our #SmallCharityWeek campaign! Find out more about our work and donate here: https://t.co/4SMn0KEH8j #LetsBeatPSC
Great having Kieron Dyer join us in the studio! 🎙️⚽️
We chatted all things England and discussed an incredible charity campaign. 🏴
Show your support and donate below 👇
https://t.co/uIHWbamg2y
#KieronDyer #England #BigGive
@tSHandJ Massive thank you to Kieron, @tSHandJ, @BigGive and of course everyone who has donated to our #SmallCharityWeek campaign! Find out more about our work and donate here: https://t.co/4SMn0KEH8j #LetsBeatPSC
PSC steals dreams. Gemma worked hard to become Head of Department, but PSC forced her to give it up within a year. 💔
We are 70% of the way to our #SmallCharityWeek match fund goal! Donate now to see your gift doubled, and please share:
🔗 https://t.co/ND5go9Fa3t #LetsBeatPSC
@BritSocGastro We are calling on general gastros & nurses to tell patients about the study, and urging smaller hospitals to sign up as trial sites. Let's bring historic research to every local clinic. Full details & site info: https://t.co/vOtKmQgHB8 3/3 @BritSocGastro #LetsBeatPSC #BSGLive2026
@BritSocGastro This week at #BSGLIVE26, PSC Support is changing the map. We are driving recruitment for the Asp-PSC trial—the biggest PSC trial the UK has ever seen. To find the hundreds of patients needed, we must look beyond specialist centres. 2/3 @BritSocGastro #LetsBeatPSC #BSGLive2026
PSC is rare, affecting 7 in 100k people in the UK. This means general gastros at local hospitals may only see 1 or 2 cases in their careers, leading to fragmented care pathways and missed opportunities for vital research. 1/3 @BritSocGastro #LetsBeatPSC #BSGLive2026
The @BigGive match fund is LIVE! For 1 week only, £1 becomes £2 (more with Gift Aid!).
150+ years since PSC was described, there is still no effective treatment. We're changing that. Help us hit our £20k research goal for patients like Becs. https://t.co/ND5go9Fa3t #LetsBeatPSC
Take your steps to new heights - literally! Take part in a night trek up Yr Wyddfa (Snowdon) and watch the sunrise from the highest peak in Wales while making a big difference for the PSC community. Reg link: https://t.co/WI7RWyfl7N
#LetsBeatPSC #SnowdonatNight #TrekForCharity
Today PSC Support is delighted to join our long-standing colleagues @KingsCollegeNHS Hospital to celebrate a significant milestone: 60 years of world-leading liver science. Mark's joining a panel discussion to reflect on decades of progress. #LetsBeatPSC #LiverDisease #Kings60th
Really important and exciting news about Volixibat as a treatment for cholestatic pruritus (PSC itch). Thank you to Dr Joshi for this quick video explaining things in a bit more detail. More ➡️ https://t.co/cVH3FUKmTL
#LetsBeatPSC #PSCItch #primarysclerosingcholangitis @EASLnews
Thank you to Lorraine, one of our incredible Facebook moderators! 💙
For nearly 14 years, Lorraine has been a reassuring voice in our community, helping our online support group grow from just 200 members to over 5,000. #LetsBeatPSC #VolunteersWeek #PSCSupport #ThankYou
We’ve arrived! 🇪🇸 Martine & Mark are officially in Barcelona for the @EASLnews Congress. The PSC Support stall is set up & they've already started meeting with international patient organizations to unite our voice. Stay tuned for updates. #EASL2026 #LetsBeatPSC #PatientAdvocacy
Up to 80% of people with PSC have IBD, making annual colonoscopies a regular routine. Many people report that the worst part isn’t the colonoscopy itself but the bowel prep. The PSC community have shared their best hacks. ⤵️
https://t.co/N0TdbExSwT #WorldIBDDay #LetsBeatPSC
Why do we co-author scientific papers? To make sure the researchers understand the reality of living with PSC. We’re a voice in the lab, shaping the future of care through global collaboration. See our recently updated Publications List: https://t.co/55f58Itfsv
#LetsBeatPSC
We're working hard to find a cure or treatment for PSC. But we can't do it without our volunteers. If you are someone with PSC, or a close family member of someone with PSC, consider joining one of our patient panels to share your views: https://t.co/GjN4dEJ74J #LetsBeatPSC
Today Mark is advocating for people with PSC at the Dr Falk meeting for IBD doctors. We know there are many people with IBD out there who also have PSC but they just don't know it. Learn more about PSC-IBD: https://t.co/vXf7JXAmTK #LetsBeatPSC #PSCIBD #RareDisease
Thank you to all nurses dedicated to patient care. We’re committed to collaborating with nurses and hcps by:
📖 Providing PSC resources
🔊 Sharing the patient voice
⚕️ Advocating for more Specialist Nurses in hepatology
@livernursing @BASLedu #InternationalNursesDay #LetsBeatPSC
Living with PSC is an emotional marathon, not just physical. The theme for Mental Health Awareness Week 2026 is Action. For people with PSC, action can be a small gesture; asking, "How are you feeling today?" Learn more and find ways to help: https://t.co/alGL3DpRyM #LetsBeatPSC
We’ve awarded £49,928 to Dr Edward Jarman (@uniofleicester) to study how PSC transitions into #bileductcancer. Using cutting-edge tech, his team is looking for the ‘cellular signature’ of cancer to help us catch it earlier.
➡️ https://t.co/X7KbEk4o9J #LetsBeatPSC #PSCResearch
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