Top Tweets for #livingWithSCD
You know that tingle your body give you just before you’re about to shower? Now you’re wondering if you should risk start/triggering another crisis?
#LivingWithSCD
It’s not about always thriving, but about learning to bounce back stronger every time.” - Salintae
If you want to direct a question to the panel expert, send a direct message to @sicklecellprodigygram.
#SickleCellProdigy #CandidConversations #LivingwithSCD #SickleCellAwareness
Omo eh! Living with #sicklecell can be devastating. One small chore and you’ll be as weak as a vegetable.
We’re strong o!!
#sicklecell #sicklecelldisease #advocate #livingwithscd
A #SickleCellWarrior on the @globalscdorgs #GASCDO "Experiences with #LivingWithSCD" Panel, said #Hydroxyurea didn't work for her, but instead found lifestyle changes, doing things like exercise, yoga, etc., to be helpful for her.
#GASCDO
#SickleCell
#GlobalSickleCell
Now we have Dr. Sumain Jain from India presenting on the 1st part of the 3 part panel, “Experiences of People #LivingWithSCD”. She discusses the progress of her #sicklecell patients in #India since being on #Hydroxyurea.
@globalscdorgs
#GASCDO
#SickleCell
#PainCrises
I’ve been at the “moderate pain” level for almost 2 weeks. Consistently. I’ve managed to function to the point where everyone around me thinks I’m okay. However, I’ve been short fused, grinding my teeth and taking breaks. It’s my life! #livingwithSCD #ChronicPain
It's Story Time!
We would like to hear your positive stories while living as a Sickle Cell Warrior or being a caregiver of a Sickle Cell Warrior.
Let's encourage someone today as they go about their journey!
#LIVINGWITHSCD #LIVINGASASICKLECELLWARRIOR #POSITIVETHINKING #SCD
What do you want the world to know about #LivingWithSCD? Tell us in the replies. ⬇️
bluebird bio Director of Patient Advocacy and #SCD caregiver Tonya Prince wants you to know that she will never let her loved one suffer in silence. #NationalFamilyCaregiversMonth
Today was a rough day. But we give God thanks. Hoping for a better day tomorrow. #livingwithSCD
Today was a rough day but we give God thanks because I didn’t need a hospital. #livingwithSCD
Speak to a professional now! After early diagnosis of sickle cell disease, the doctor may recommend medicines or transfusions to manage complications, including chronic pain. #YMKChitchat #YouMustKnow #sickleCellAwareness #livingWithSCD #happyLife
It’s ridiculous hard to live in a body that punishes you for everything.
You get stressed, crisis
You get hot/cold, crisis
Trying to Live a little, crisis
Trying to relax! Yup, crisis
Stay safe and warm warriors.
#livingwithSCD
I’d loved for myself and @Daniellia_White to be interviewed by @Smilejamtvj in recognition of @WorldSickleCellDay21 which will be on June 19, 2021. So we can shed light on #livingwithscd
Let’s Retweet this so we can make it happen.
@DahliaHarris @simclarkecooper @televisionjam
It’s been 12hours since this crisis as started and I’ve been self medicating even though the pills not working. But I fear going to the ER because of the poor treatment I may get. Honestly, I’m exhausted and tired of this reality. #livingwithscd
I’m really trying to fight but it feels easier to give up. #livingwithscd #ChronicPain #chronicillness
My beloved’s, if someone asks for your help and you have the capacity to do so, please do without hesitating.
If only we know what others are passing through.
Please RT so people can see this
#livingwithscd
Some days I’m superwoman n some days, like today, I simply struggle through. #livingwithSCD #ChronicPain
Today, I feel limited and small... and it has nothing to do with me. I have to be talking to my mental man because I know it’s not something I can help but I really wish I could so I’m frustrated. I’m really really frustrated today. #livingwithscd
And for as long as I remember, I’ve had days where getting out of bed took ALL of my energy, not because I was depressed or didn’t want to. I simply couldn’t. Like my body physically cannot! Today is one of those days. I am struggling. I am crying. #livingwithscd
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