Top Tweets for #livingwithNETs
Tonight’s update from Johnnie.. sending lots of love to Evie, hoping she gets good results from the hearing scans. Hope everyone had a great weekend 🦓🤍🖤/M
#NETcancer #livingwithNETs

Johnnie’s update from yesterday.. thankyou so much to everyone who sent anniversary wishes! Have a great day peeps! 😁🦓🤍🖤 #livingwithNETs
Tonight’s update from Johnnie, I shouldn’t laugh but that last bit made me chuckle! Hope tomorrow is a better day Mr Meeks. #livingwithNETs #NETCancerawareness 🦓🤍🖤

Tonight’s update from Johnnie.. he’s having a really rotten time of it just now - sending love and positive vibes pal. 🦓🤍🖤 #NETcancerawareness #livingwithNETs
Tonight’s update from Johnnie! Wishing him a speedy recovery and good luck for both clinic appointments tomorrow! 🦓🤍🖤 #livingwithNETs #NETcancerawareness

Tonight’s update from Johnnie as he’s been through it all today!! Get well soon pal! Glad you’re doing ok! #livingwithNETs #NETcancer 🦓🤍🖤


Only a few places are left in our "Living with NETs" program.
Starting the 14th of March, participants will learn more about #NETs and helpful skills for #livingwithNETs.
https://t.co/WFnZQfbtRy
#LetsTalkAboutNETs #NeuroendorineCancer #NeuroendocrineTumours #CancerAwareness

Did you know that #NETs are still more common than brain, ovarian and cervical cancer?
Currently, 24,000+ Australians are living with #neuroendocrinecancer, and 5,400+ are diagnosed annually.
#LivingwithNETs

🍷You could WIN 45 bottles of red wine plus 1 x Lemair Wine Cooler fridge just in time for Christmas! Head here to donate to win! 👉🏾https://t.co/dlopgLt29j
#LivingwithNETs #neuroendocrinecancer

Thank you to Helen Pollard in sharing the important patient perspective #livingwithNETs #UKINETS2020

I am starting an Instagram live at 17:30 GMT! Featuring Jessica Howell who is #livingwithnets
Tune in to listen and learn about this rare kind of tumour. You can find the account @100StoriesBook 😊
@ncukcharity
#cancer #live #interview #storytelling

We told it was coming! Now it's out. @TBajoras has released a new album to soothe your #COVID19 soul & solitude called, "By Day or By Night" #LivingwithNETs @LACNETS @CarcinoidNETs https://t.co/e2TbKIQSZ8
Lanreotide shots every 3 wks
Vit B every 6 wks
Blood tests, Dotatate scans, Triple phase liver scans every 3 months.
Is now the time to admit I might have a problem with needles? 🤔🙄
#NETCancer #LivingWithNets
What are some of the different treatment options for people #LivingWithNETs? #NeuroendocrineCancer Expert, Edward Wolin, MD, answers questions about treatment of neuroendocrine tumors: https://t.co/B6xKAdFQSw @MountSinaiNYC
"I'm one of those people that gets knocked down seven times, gets back up eight." - NET Cancer Thriver, Beth Leonard. #LivingWithNETs @Guruofprocess

"I take all of that negative energy that's balled up inside, that hurt, and do something productive with it." - NET Cancer Thriver, Beth Leonard #LivingWithNETs
https://t.co/gitS3C49HD
When NET Cancer Thriver, Steve Mazan, was diagnosed with #NeuroendocrineTumors in 2005, his doctors told him he may only have 5 years to live... #LivingWithNETs
"It's almost like having a molecular-scale cruise missile with a molecular nuclear warhead on it." Learn more about this exciting new treatment here: https://t.co/evgQg8u6jv #LivingWithNETs
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