Top Tweets for #medicallycomplexkids
Payton is starting to feel better with her double ear infection as the antibiotics have started doing their thing!
Sheโs back to enjoying one of her favorite activities: looking at the twinkling Christmas tree ๐
#baby #trisomy13 #medicallycomplexkids #trachbaby #medical

PTSD occurs in 20% of parents with medically fragile children. โ๏ธ If you are struggling, please seek professional help today.
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#disabilityparenting #ptsd #medicallyfragile #counseling #mentalhealth #medicallycomplexkids #medicallyfragilechildren #medicalmom #medicalmama

Clearance find for parents of kids with AFOs or SMOs #targetclearance #clearancefinds #smo #afo #medicallycomplexkids
This is Benjamine, 15, currently hospitalized at Lucile Packard Children's Hospital. With 4 brothers & 1 sister, he shares a special bond with his youngest brother, AB. "We were unsure if we could afford to bring AB for a visit due to expenses. #medicallycomplexkids
We are a one income family of 4 with no help, and have been in a financial restraint ever since my daughters incident. โ #medicallycomplex #familieshelpingfamilies #reno #Nevada #itsnotsupposedtobethisway #tuesdaymotivation #warriorprincess #childheroes #medicallycomplexkids
Join us for the fun at our reception at our new location Destihl Brewery. Get your tickets at: https://t.co/jYR6xtz98a
#PBDZSD #RareDiseaseAwareness
#RareDisease #ZellwegerSyndrome #ZellwegerSpectrumDisorder #PeroxisomalDisorder #MedicallyComplexKids #DBPD #AMACRD #ACOX #TeeItUp

Beth ๐ babies. I made her one with a tube. She's very proud when she gives her "meds & boluses." It's also helped her w/getting them herself. What's helped your #tubie?
#tubielife #tubiemom #tubiehack #medicalmomma #medicalmom #medicallycomplexkids #medicallyfragilekids #rare
I hope you check out my new FB support group coming next Tuesday! Sign up so you don't miss the announcement!
https://t.co/kUDYHahRV4
#specialneeds #specialneedsmoms #caregiversupport #disability #medicallycomplexkids #medicallyfragilekids caregiver #Autism
I'm honored to be a guest blogger on Different Dream Living today!
https://t.co/LPqbqwiKOF
@jolenephilo
#specialneeds #specialneedsmom #specialneedsmoms #specialneedsparenting #medicalmom #acceptance #selfcompassion #caregivers #medicallyfragilekids #medicallycomplexkids

PALLIATIVE CARE IS NOT THE SAME AS END OF LIFE CARE.
Palliative care is not the same as hospice care.
Palliative care is not โgiving upโ.
PLEASE donโt discuss it like it is!
#palliativecare
#medicallycomplexkids
I need to quit engaging with people on Facebook.
This sweet boy turned twelve today. I am so proud of my smart, quirky, funny, creative boy. My miracle, my fighter, the boy who made me a mother.
#aboyandhisdog #myrescuerescuedme #rescuedogsofinstagram #aspieboy #aspie #epilepsywarrior #medicallycomplexkids #nicusurvivor

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