Top Tweets for #mpsml
Thankful for the chance to advocate for the #pediatric #raredisease community, #RareAcrossAmerica Thank you congressman Dr. Michael Burgess for your continued support. And thanks to Erik, district leader, for meeting with me. #MPSML
💜 En el Día de Concientización de las MPS, te invitamos a unirte a nuestra causa:
- Comparte tu foto vestido de MORADO para mostrar tu apoyo.
- Usa los hashtags:
#InternationalMPSAwarenessDay #MPSAwarenessDay2023 #MPSML #ShareYourRare
#RareDisease #May15
Looking forward to sharing our love of our #MPSML community as we lead up to May 15th! Show us your love by posting yourself in purple on 5/15! 💜 🚀 💜
#MPSAwareness2024 #BetterTogether #CureSupportAdvocate #ItsAboutTime #BlastOffForACure
Looking forward to being in DC next week to advocate for these amazing people!
#RareDiseaseDay2024
#CureSupportAdvocate
#RareDiseaseWarriors
#MPSML
Thanks @JohnCornyn (Lilly) for meeting with us on vital rare disease legislation that would benefit all Texans! S.2323 (Genetic Counselors Act) & S.526 (BENEFIT Act). The rare disease warriors of Texas need your support 💜 #CureSupportAdvocate #MPSML @NationalMps
Thank you to @SenTedCruz office for meeting with us today!
Please support HELP Co-Pays Act (S1375), SAFE Step (S652), and consider joining the Rare Disease Caucus @EveryLifeOrg @RareAdvocates
#RareAcrossAmerica2023
#MPSML
#CureSupportAdvocate
#NationalMPSSociety
It is International MPS Awareness Day. Our greatest challenge lies ahead of us. Join us at 12:00 p.m. EDT for the premiere of "Harboring Hope." https://t.co/FBzZnl0UBq
#MPSAwareness #HarboringHope #HopeForMPS #CureSupportAdvocate #MPSML #Mucopolysaccharidosis #Mucolipidosis
15 de mayo un día para crear conciencia Y hacer que la sociedad hable de #Mucopolisacaridosis.
Únete viste de morado, comparte en tus redes.
https://t.co/7u1dMU1C1j
#InternationalMPSAwarenessDay
#MPSAwarenessDay2023 #MPSML #ShareYourRare #RareDisease #May15 #RareDiseaseDay
Mayo es un mes para crear conciencia sobre Mucopolisacaridosis Y mucopolipolisis, por eso hemos organizado varios eventos. https://t.co/OiT0ieRYPx
#InternationalMPSAwarenessDay
#MPSAwarenessDay2023 #HarborHope #HarboringHope #MPSML #NationalMPSSociety #ShareYourRare #MPSSociety
2do. Simposio "Conociendo las Mucopolisacaridosis"
Jueves 11 de Mayo 2023.
7:30 AM a 1:30 PM
Evento via zoom
¡Comparte tu MPS o ML vestido de morado el día 15 de mayo!
#InternationalMPSAwarenessDay
#MPSAwarenessDay2023 #HarboringHope #MPSML #NationalMPSSociety #dravetlatam
2do. Simposio "Conociendo las Mucopolisacaridosis"
Jueves 11 de Mayo 2023.
7:30 AM a 1:30 PM
Evento via zoom
¡Comparte tu MPS o ML vestido de morado el día 15 de mayo!
#InternationalMPSAwarenessDay
#MPSAwarenessDay2023 #HarborHope #HarboringHope #MPSML #NationalMPSSociety
Day 5: How is a child diagnosed with MPS or ML?
#MPSML are inherited degenerative #rarediseases. Early diagnosis is vital to stop irreversible damage to cells & organs. We passionately #advocate lawmakers to bolster #newbornscreenings. #Hope
Join us! 👉🏽https://t.co/Lb4DBbPM2x
You can start bidding on our Gala raffle items! Click on the link to see the amazing items, experiences and trips up for grabs. 💜💎🥂💜
https://t.co/IcGcT2AGOz
#MPSGala2023 #NationalMPSSociety #MPSAwarenessDay2023 #MPSGala #MaritimeGala #MPSML #SilentAuction #HarboringHope
Thank you to all our runners, families and sponsors that enjoyed our Napa Run this past weekend! What a beautiful day it was! #CureSupportAdvocate #MPSML
THANK YOU to our FANTASTIC Napa Race for a Cure race sponsors! We appreciate your support more than we can ever say! 🤩 #MPSML #RaceForACure #NapaRun #CureSupportAdvocate #5k #FunRun #RunCA #KennedyPark #RunForRare #CourageousTogether #Virtual5K #NapaCA #NapaValley
Hi there friends, there's still plenty of time for you and your crew to get tickets to our wonderful upcoming gala at the Corinthian Yacht club! Join us for a night under the stars with gorgeous water views.
#MPSML #MaritimeGala #CureSupportAdvocate
https://t.co/lQKtDmV00W
Don't forget to register for tomorrow's webinar through @CourageousCPN : Understanding and Addressing Pediatric #MedicalTrauma. Webinar will take place tomorrow night at 8pm ET. To register: https://t.co/C1wxz0W8Fu.
#mpsml #curesupportadvocate #courageousparentsnetwork
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