Top Tweets for #pfbc
We got the funding for "Me & My Fahr's" supporting us to bring together the people living with #Fahrs #PFBC
The funds from @TNLComFund will be used for a pt fixed post to help mobilise the community, building an active volunteering network, connecting people& tackling loneliness
Fahr Beyond over the last 9 years has had a significant impact on raising the importance and profile of #FahrsDisease #pfbc
Thank you to our fantastic community of people with Fahr’s, clinicians, care givers, & supporters.
@aliciakearns @amitbatla @kailashbhatia @FraMagrinelli
Almost all of my daily dosage of medication, 4 more to the addition as part of the Calcifade trial.
Let's see what happens.
#Fahrs #PFBC
@QS_RareMD @UniUtrecht @kailashbhatia @FraMagrinelli @FahrBeyond
Some good news from our church! Praise the Lord!
#AAEO #AnnieArmstrongEasterOffering #PFBC #GoalsMet #GoalsExceeded #SoutherBaptist
Make a difference, please take 10 minutes to contribute to the survey.
Anyone with Fahr's/PFBC anywhere can take part: https://t.co/LhDo70Ytzc
This survey closes on 6th April.
@kailashbhatia @GeneticAll_UK
@NeuroAlliance @beacon
#raredisease #PFBC #fahrs
Today is #RareDiseaseDay, we along with other members of the @GeneticAll_UK are proud to be advocating for people with a rare disease.
1 in 17 people in the UK live with a rare disease
To find out who we support, people living with #Fahrs / #PFBC visit: https://t.co/1E5Ql2BxXD
It’s #RareDiseaseDay 2026! 🎉
This #RDD2026, find our report, ‘Equity for Rare: Delivering fair healthcare systems for people with rare conditions’, our 4 inequity info sheets and our community-generated equity illustration on our webpage: https://t.co/q484gA2ENv
We are delighted that the @FahrBeyond team have had an abstract accepted for @WorldPDCongress in Phoenix 2026.
Our abstract title: Fahr's disease: where are we at with this parkinsonism?
@Adam_Tate1 @amitbatla @FraMagrinelli
#Fahrs #PFBC #PBC
L'association ACOSAH est engagée avec le FEF pour la protection des forêts du Bassin du Congo. @Franceaugabon, @GI_TOC_FR, @RdcApem,@EwouleE, #PFBC #ministeredelenvironnemntdugabon aux côtés des communautés locales et des peuples autochtones. Allons plus loin !
À #IUCNCongress2025, lors d’un side-event organisé par #NRDC, j’ai plaidé pour une coopération multilatérale résiliente, inclusive et fondée sur la confiance.
Le Partenariat pour les Forêts du Bassin du Congo en est une belle preuve.
#PFBC #Conservation #Multilatéralisme
Matthew was fishing a private pond in Fallowfield Township, Washington County when he landed this Largemouth Bass.
#PaFishing #Fishing #FishFriday #PFBC #PaFishAndBoat #PaAllDay #FshingIsFun #TightLines #WashingtonCounty #FallowfieldTownship #Bass #BassFishing
It’s the first day of Fall and there’s nothing we enjoy more than being on or near the water when the leaves are changing!
📍Keystone State Park, Westmoreland County
Hashtags: #PaAllDay #PFBC #PaFishAndBoat #Fall #FallFishing #FishPa #PaFishing #WestmorelandCounty
Gavin was fishing for Smallmouth Bass in a creek in Southcentral PA when he hooked this 40-inch Musky.
Talk about a big surprise.
#PaFishing #Fishing #FishFriday #PFBC #PaFishAndBoat #PaAllDay #FishingIsFun #TightLines #PaMuskie
Another important moment for @FahrBeyond joining @GeneticAll_UK , this is a key step forward in ensuring that Fahr's Disease is better recognised.
#Fahrs #PFBC
@FraMagrinelli @amitbatla @IonSynapse @kailashbhatia @RareDiseases @moversand6
We are delighted to join @GeneticAll_UK, adding the voice of the Fahr's community to the collective action to support the 3.5 million people in the UK with genetic, rare, and undiagnosed conditions. #Wearestrongertogether
#Fahrs #PFBC #RareDisease
Merci à @laurylndong et à M. Ntossui, Ministre de @ForetmerGOUVGA pour leur présence à l'ouverture de la conférence sur la criminalité environnementale dans le cadre du #PFBC avec #COMIFAC et #CEEAC. @francediplo @Franceaugabon
#Libreville accueille une conférence clé (10-11 juillet) sur la criminalité environnementale et le conflit homme-faune. Initiative Gabon-France (#PFBC) avec #COMIFAC & #CEEAC. Face à 258Mds$ de profits illégaux, les pays d'Afrique Centrale exigent des actions concrètes.
#Libreville accueille une conférence clé (10-11 juillet) sur la criminalité environnementale et le conflit homme-faune. Initiative Gabon-France (#PFBC) avec #COMIFAC & #CEEAC. Face à 258Mds$ de profits illégaux, les pays d'Afrique Centrale exigent des actions concrètes.
Le Gabon, co-facilitateur du PFBC, participe activement au 1er #FOMADECIEBC pour renforcer la communication environnementale pour la préservation du Bassin du Congo ! 🌳🗣️ #Gabon #PFBC #Environnement
📢 Le PFBC organise un événement parallèle ce 8 avril 12h45-13h15 à la Conférence internationale de Paris sur la criminalité environnementale.
🎯 Thème : Le Bassin du Congo, en première ligne face à la criminalité environnementale.
#PFBC #CongoBasin #EnvironmentalCrime #Paris2025
Somewhat poignantly, we missed #RareDiseaseDay as our founder was in medical appointments throughout the day due to his #Fahrs
To find out more about #FahrsDisease #pfbc see our website: https://t.co/1E5Ql2C5Nb
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