#pillsofknowledge Etiketinde En Popüler Paylaşımlar
New publication in @ojrarediseases on the #VASCERN #eHealth Working Group's efforts and #eHealth tools developped for #patients with #rarediseases: #VASCERNapp #mobileapp #pillsofknowledge #educational videos +more! 👏👏 Find the full article here: https://t.co/zFgTeCEh28 #ERNeu
The first session of the #Pediatric and #PrimaryLymphedema WG during the #VASCERNDays2020 was a very productive meeting! On today’s agenda: #PillsofKnowledge, #webinars, #clinical outcome measures + so much more!🤗 #ERNeu @Malou_vanZanten @DevoogdtNele @LymphaThe @ManuelaLdelinfa
The #RareDisease WG Chairs are talking progress of work packages + outputs at #VASCERNDays2020: for #HHT Claire Shovlin, #HTAD @judbacke, #MSA #vEDS @robert_leema, #PPL Robert Damstra and #VASCA @MiikkaVikkula! #PatientPathways #PillsofKnowledge #research #registry #ERNeu
The #Pediatric and #PrimaryLymphedema WG have started their 2-day online meeting! On today's agenda: creation of #PillsofKnowledge #videos that will feature PPL #ePAG #patient #advocates, #VASCERNapp, #Registry + #CPMS #case discussions! More to come tomorrow!🙌#ERNeu #lymphedema
🎙️ NEW EPISODE! 🎙️
#12
A CONFERENCE ON THE FUTURE OF EUROPE: upcoming process in the #vdLCommission agenda with the potential to bring about EU reform. 1st episode in our #pillsofknowledge series - where we explain concepts of EU affairs in shorter episodes #btb
The first #VascularAnomalies working group meeting of 2020 is currently underway! @MiikkaVikkula Last week they released 3 new #PillsofKnowledge videos, produced by @HevasNederland Check out the first on #lymphaticmalformations here: https://t.co/mwuIxI9QJV via @YouTube #ERNeu
New year = 3 new #PillsofKnowledge #PoK videos for #patients on #lymphatic #malformations and #KlippelTrenaunaysyndrome (#KTS)! 🎉Created by @HevasNederland + revised/validated by the #VascularAnomalies WG! ➡: https://t.co/OCIkV7S7ka #eHealth #treatment #elearning #ERNeu
The #Medium Sized #Arteries #vEDS group, Chaired by @robert_leema, starting their afternoon session at #VASCERNDays2019 talking about their 16 #pillsofknowledge and future possible #webinars and/or #tweetorials! #ERNeu @IngridvdLaar @CharissaFrank @jhgrunert @RaffaellaGaeta2
The #RareDisease WG #Chairs, Ulrich Sure (for #HHT), @judbacke (#HTAD), @robert_leema (#MSA), Robert Damstra (#PPL) and @MiikkaVikkula (#VASCA), are now talking #implementation of #workpackages! #patientpathways #pillsofknowledge #ERNeu
📣 16 New #PillsofKnowledge #PoK #videos from the #MediumSizedArteries (MSA) WG’s #vascular #EhlersDanlosSyndrome study day in London now available! Possible thx 2 @TheEDSociety #support! Share to #educate medical community on #vEDS: https://t.co/mGqGyakQns #ERNeu #eHealth
The #Heritable #ThoracicAortic Diseases (#HTAD) WG, chaired by @judbacke, held their first meeting after #summer break on Monday! Evaluation of #patientpathway, #registry project, #PillsofKnowledge and upcoming #ESCCongress were all discussed! #ERNeu @IngridvdLaar @liseurordis
The #HereditaryHaemorrhagic #Telangiectasia #HHT WG had their monthly meeting this morning! Lots discussed: novel oral #anticoagulant paper + topics selected for new #patientpathways, #PillsofKnowledge and #ClinicalPractice #Statements (e.g. #Pregnancy in HHT)! @HHTOnlus #ERNeu
Last night the #Pediatric and #PrimaryLymphedema working group held their monthly virtual meeting! Discussed new #PillsofKnowledge to be created + translation of Do'sandDon'ts! Looking for #patientadvocates #ePAG for #PPL! Contact @eurordis if interested! @BeLymph @NLNetwerk
The #VASCERN #YouTube channel now has over 100 subscribers!!! #Thanks!!! 👏🎉 If you haven't already, #subscribe to catch our new #PillsofKnowledge #videos (w/ subtitles in #EU languages) #MarfanSyndrome, #HTAD #HHT, #VascularAnomalies #vEDS, #PPL #eLearning #ERNeu #ehealth
13 #NEW #PillsofKnowledge videos published on our #YouTube channel! #eHealth Videos on #HHT, #HTAD #MarfanSyndrome, #PPL + #VascularAnomalies for #patients #healthcare professionals + general public! Read here: https://t.co/Xy8h937heX #ERNeu #ShareCareCure @EU_Health @eurordis
First VASCERN #RareDisease WG meeting of 2019 started this evening with the #MediumSizedArteries WG, Chaired by @robert_leema! Discussing #vEDS #patient pathway, clinical diagnosis items in #children and soon to be released #PillsofKnowledge! @judbacke @IngridvdLaar
Very proud of our members @nataschaassies and Dr. Robert Damstra as they present #success factors and #challenges of #Patient-#Healthcare #partnerships in #ERNs w/ example of work #accomplished by #PPL WG (e.g. #PillsofKnowledge video)! #ERNeu @NLNetwerk #ePAG @eurordis #ehealth
Picture from the set of #VASCERNdays2018 last week, where filming of 13 new #PillsofKnowledge took place! Looking forward to their #release! All 5 RDWGs participated, PoKs for both #patients and #doctors! #ERNeu #elearning #eHealth #HHT #HTAD #Marfan #PPL #VascularAnomalies #vEDS
The 5 #raredisease WG Chairs reported their outcomes and achievements at #VASCERNdays2018 and conclusion: big #success! #pillsofknowledge #patientpathways #collaborations #outcomemeasures #scientificpublications @EU_Health #patientcare @robert_leema @judbacke @MiikkaVikkula
#eHealth WG @RaffaellaGaeta2 presenting our #YouTube Channel progress since 1 year and the videos with most viewers! Great results for our #PillsofKnowledge #ShareCareCure #ERNeu #communication #socialmedia
Sotwe'de En Son Görülen Etiketler
sex
Son görüldüğü yer Italy
minichat()()()(((())))* filter:videos
Son görüldüğü yer Canada
minichat()********* filter:videos
Son görüldüğü yer Germany
jovencita
Son görüldüğü yer Colombia
minichat(*)(*) filter:videos
หีน้องสาว
Son görüldüğü yer Thailand
brosis
Son görüldüğü yer France
CarolineEscobar
Son görüldüğü yer United States
短剧
silip
Son görüldüğü yer Italy
Senin İçin Trendler
En Popüler Kullanıcılar
Elon Musk 
@elonmusk
241.7M takipçi
Barack Obama
@barackobama
119M takipçi
Cristiano Ronaldo
@cristiano
114.5M takipçi
Donald J. Trump
@realdonaldtrump
111.9M takipçi
Narendra Modi
@narendramodi
107.2M takipçi
Rihanna
@rihanna
98.7M takipçi
NASA
@nasa
92.4M takipçi
Justin Bieber
@justinbieber
91.8M takipçi
KATY PERRY
@katyperry
90M takipçi
Taylor Swift
@taylorswift13
84M takipçi
Lady Gaga
@ladygaga
75.5M takipçi
Virat Kohli
@imvkohli
73.4M takipçi
Kim Kardashian
@kimkardashian
70.9M takipçi
YouTube
@youtube
68.8M takipçi
Neymar Jr
@neymarjr
66.5M takipçi
Bill Gates
@billgates
65.2M takipçi
Selena Gomez
@selenagomez
63.1M takipçi
The Ellen Show
@theellenshow
62.3M takipçi
CNN
@cnn
61.8M takipçi
X
@x
60.7M takipçi