Top Tweets for #pkdkids

Thrive w/ Pyruvate Kinase Deficiency Organization @TwPKDnonprofit

over 4 years ago

#PKDkids Jonathon explains what's like to grow up with #pyruvatekinasedeficiency. Straight talk from a teen--doesn't get better than this! #hematology #pkdeficiency #pkdadvocacy #hereditaryanemia #rareanemia

Know PK Deficiency @PKdeficiency

over 4 years ago

For children who grow up with PK deficiency, managing symptoms of the disease, hospital visits, and medical procedures, are often part of their normal life, as Jonathan describes. #KnowPKdeficiency #ChildLifeMonth

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Thrive w/ Pyruvate Kinase Deficiency Organization @TwPKDnonprofit

over 4 years ago

#pkdkids and #momvocates raising awareness of #pyruvatekinasedeficiency. #pkdeficiency #rareanemia #rarebutnotalone #hematology

Know PK Deficiency @PKdeficiency

over 4 years ago

This month we meet Jonathan, 17, who is living with pyruvate kinase (PK) deficiency, and his mother Alejandra. Jonathan and Alejandra share their respective insights on living with the impact of this rare #genetic disease. #KnowPKdeficiency

PKdeficiency's tweet photo. This month we meet Jonathan, 17, who is living with pyruvate kinase (PK) deficiency, and his mother Alejandra. Jonathan and Alejandra share their respective insights on living with the impact of this rare #genetic disease. #KnowPKdeficiency https://t.co/6BFpIjKUiC

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Thrive w/ Pyruvate Kinase Deficiency Organization @TwPKDnonprofit

over 4 years ago

Meet our rare #pkdkids! #pyruvatekinasedeficiency #pkdeficiency #rarediseaseday2022 #rareanemia #hematology #rareblooddisease

TwPKDnonprofit's tweet photo. Meet our rare #pkdkids!

#pyruvatekinasedeficiency #pkdeficiency #rarediseaseday2022 #rareanemia #hematology #rareblooddisease https://t.co/adOpYUKhUz

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ARPKD/CHF @ARPKDCHF

over 9 years ago

On way back home after awesome conference. Thanks @PKDFoundation and @MountSinaiNYC #pkdkids

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ARPKD/CHF @ARPKDCHF

over 9 years ago

"...It's hard to see other kids my age be at college...but I will live up to my potential." Brit, 19 #amazing #pkdkids

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ARPKD/CHF @ARPKDCHF

over 9 years ago

Dr. Jeffrey Saland is speaking about clinical care for #pkdkids @MountSinaiNYC @PKDFoundation

ARPKDCHF's tweet photo. Dr. Jeffrey Saland is speaking about clinical care for #pkdkids @MountSinaiNYC @PKDFoundation https://t.co/y2atCW57T6

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ARPKD/CHF @ARPKDCHF

over 9 years ago

Nutritional talk! #pkdkids

ARPKDCHF's tweet photo. Nutritional talk! #pkdkids https://t.co/P6NheFG8du

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ARPKD/CHF @ARPKDCHF

over 9 years ago

#pkdkids from Dr. Lai @MountSinaiNYC

ARPKDCHF's tweet photo. #pkdkids from Dr. Lai @MountSinaiNYC https://t.co/WYIj2u6tBd

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ARPKD/CHF @ARPKDCHF

over 9 years ago

Great slide/picture of liver system from Dr. Lai (GI) of @MountSinaiNYC #pkdkids @PKDFoundation

ARPKDCHF's tweet photo. Great slide/picture of liver system from Dr. Lai (GI) of @MountSinaiNYC #pkdkids @PKDFoundation https://t.co/y8AFrGdmoc

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ARPKD/CHF @ARPKDCHF

over 9 years ago

Thanks @PKDFoundation for your support of families of kids with PKD. #pkdkids @MountSinaiNYC

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ARPKD/CHF @ARPKDCHF

over 9 years ago

@Guaywoodford is talking preimplantation testing. @MountSinaiNYC @PKDFoundation #pkdkids

ARPKDCHF's tweet photo. @Guaywoodford is talking preimplantation testing. @MountSinaiNYC @PKDFoundation #pkdkids https://t.co/KxPannCVpF

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ARPKD/CHF @ARPKDCHF

over 9 years ago

Opening the sessions with @Guaywoodford on #arpkdchf #adpkd #pkdkids #lucky @MountSinaiNYC

ARPKDCHF's tweet photo. Opening the sessions with @Guaywoodford on #arpkdchf #adpkd #pkdkids #lucky @MountSinaiNYC https://t.co/nwT3Fv2Qi1

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ARPKD/CHF @ARPKDCHF

over 9 years ago

In NYC for @PKDFoundation PKD in Children Conference at @MountSinaiNYC #pkdkids

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