Top Tweets for #polythycemiavera
On the latest MPN Pod, Rachel Suarez explains how she helps MPN patients as a clinical social worker who specializes in oncology.
https://t.co/XVooIObsjl
Made possible by @PharmaEssentia
#mpnpod #raredisease #polythycemiavera #bloodcancer
This time on MPN Pod, Rachel Suarez, a licensed clinical social worker who specializes in oncology, discusses the overlooked emotional and psychological challenges of living with an MPN.
https://t.co/XVooIObsjl
Made possible by @PharmaEssentia
#raredisease #polythycemiavera
ET patient Troy explains why fear and uncertainty are totally normal parts of processing an ET diagnosis and why you should never settle for an oncologist you’re not happy with.
https://t.co/XVooIObsjl
Made possible by @PharmaEssentia
#raredisease #polythycemiavera
Troy shares how his friends didn’t always understand why he had to cancel plans at the last minute. But just because you can’t see ET pain doesn’t mean it isn’t serious.
https://t.co/XVooIObsjl
Made possible by @PharmaEssentia
#raredisease #polythycemiavera
Feeling invisible can be the hardest part of living with a rare disease. Raqueal explains how it feels to have your symptoms dismissed, especially when you still appear fully functional on the outside.
https://t.co/XVooIObsjl
#raredisease #polythycemiavera #bloodcancer
In the latest episode of MPN Pod, patient Raquel describes how it was only through her own research that she realized she was dealing with cancer.
https://t.co/XVooIObsjl
#raredisease #polythycemiavera #bloodcancer
On this episode of the MPN Pod, Raqueal, a 33-year-old mother of two from Arizona, shares her journey with essential thrombocythemia (ET).
https://t.co/XVooIObsjl
Made possible by @PharmaEssentia
#raredisease #polythycemiavera #bloodcancer
In this episode of The MPN Pod, we sit down with Dr. Tony Hunter, an MPN specialist and associate professor at Emory University, for a comprehensive ET 101.
https://t.co/XVooIObsjl
#raredisease #polythycemiavera
On this episode of the MPN Pod, Gary shares how a change in treatment in 2022 and a new focus on a cardio lifestyle program has further improved his quality of life.
https://t.co/XVooIObsjl
Made possible by @PharmaEssentia
#raredisease #polythycemiavera #bloodcancer
Tyler shares his journey to diagnosis, from his first deep vein thrombosis at 17, experiencing multiple blood clots throughout college, and finally being diagnosed with PV during his PhD program.
https://t.co/XVooIObsjl
#raredisease #polythycemiavera #bloodstreammedia
Tyler Parsons, a postdoctoral researcher at Washington University MPNs and polycythemia vera (PV) patient shares his decade-long journey to diagnosis.
🎧 Listen Now! https://t.co/XVooIObsjl
#raredisease #polythycemiavera #bloodcancer #bloodstreammedia
In this season three premiere of the MPN Pod: Stories from the Marrow 🎉, we chat with Dr. Tyler Parsons about his decade-long journey to diagnosis.
Watch, listen and subscribe!
https://t.co/XVooIObsjl
#raredisease #polythycemiavera #bloodcancer #bloodstreammedia
Kay and Josh take listeners through a thoughtful year-end review, drawing on memorable moments from this year's guests and offer a sneak peek at what’s ahead in 2026.
https://t.co/XVooIObsjl
#raredisease #polythycemiavera #bloodcancer #bonemarrow
In this thoughtful year-end review, Kay and Josh revisit key themes like early symptoms, shared decision-making, and the power of self-advocacy in the PV community.
https://t.co/XVooIObsjl
#raredisease #polythycemiavera #bloodcancer #bonemarrow
Self-advocacy, navigating the challenges of living with PV, finding support—all valuable themes that Tracy Rode touches on in this episode of The PV Pod.
🎧 Watch and listen wherever you get your podcasts!
#pvpod #podcast #raredisease #polythycemiavera
Dr. Lucia Masarova from MD Anderson Cancer Center provides insights from both the physician and patient perspectives in the latest episode of The PV Pod!
https://t.co/uZO7Q7xDnA
#pvpod #podcast #raredisease #polythycemiavera #bloodcancer #bonemarrow #storiesfromthemarrow
We're joined by Dr. Lucia Masarova from MD Anderson Cancer Center and PV patient Cheri Clark, who provide insights from both the physician and patient perspectives. Now Available in The #PVPod!
https://t.co/uZO7Q7xDnA
#podcast #raredisease #polythycemiavera
More from Dr. Solly Chedid on managing polycythemia vera (PV) over the long term. Don't miss this insightful conversation, only on The PV Pod. 🎧
Watch, Listen & Subscribe: https://t.co/uZO7Q7xDnA
#pvpod #podcast #raredisease #polythycemiavera
On this episode of the PV Pod, hosts Josh and Kay engage in a detailed discussion with Dr. Solly Chedid about managing polycythemia vera (PV) over the long term.
https://t.co/uZO7Q7xDnA
#pvpod #podcast #raredisease #polythycemiavera
Our first video episode of the new PV Pod season is HERE! 🎉 Follow Dana as she shares her unique diagnosis story.
Listen Now! https://t.co/uZO7Q7xDnA
#pvpod #podcast #raredisease #polythycemiavera #bloodstreammedia
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