Top Tweets for #pompeday
Hoy 15 de abril es el Día Internacional de la Enfermedad de #Pompe
@AEEPompe #NuestraEnergiaEsImparable #NuestraVozNecesaria #DiaInternacionalPompe #PompeDay #EnfermedadDePompe #EnfermedadesRaras
🤰 Hoy, 15 de abril, alzamos la voz por todas las personas que conviven con Pompe.
Reivindicamos:
✅ Acceso equitativo a los tratamientos
✅ Más inversión en investigación para terapias de segunda generación.
✅ Soporte integral (fisioterapia y psicológico) garantizado.
Hoy no solo hablamos de una enfermedad rara; hablamos de personas, de familias y de una voluntad que no se rinde.
#DiaInternacionalPompe #PompeDay #Pompe2026 #EnfermedadDePompe #RareDiseaseDay #NuestraEnergíaEsImparable #NuestraVozNecesaria #PompeSpain
Take the #Pies4Pompe Challenge and then challenge your friends! More info at https://t.co/nH2OZEfeZ2 #PompeDay #RareDisease #PompeDisease
Today is International Pompe Day! Let's raise awareness about this rare genetic disorder and the importance of research in developing effective treatments. 🧬 #PompeDay #RareDiseases
Pompe day - Children's art
This sweet sloth picture is by a young man called Nicola from Bari, Italy 🇮🇹 and he is 6 🦥 🤗
#PompeDay
#IPD2024 #FindYourTribe #NewBornScreening #RareDisease
Nos unimos a @AEEPompe en el #PompeDay para dar mayor visibilidad a las personas que padecen la Enfermedad de Pompe
@FEDER_ONG #EnfermedadesRaras
https://t.co/4M5zmuuVxX
Today is Apr 15:
#TaxDay
#WorldArtDay
#McDonaldsDay
#MicrovolunteeringDay
#JackieRobinsonDay
#PurpleUpDay
#RubberEraserDay
#PompeDay
#AnimeDay
#ThatSucksDay
#415Day
more…
https://t.co/3OFrcNkHjd
Challenge your friends in the #Pies4Pompe Challenge! #PompeDay #RareDisease #PompeDisease https://t.co/NFefY3JK3u
Celebrate International Pompe Day! Join us to spread awareness about Pompe disease and support patients worldwide. Let's unite with Anderson Diagnostics to make a difference. Every action counts.
#PompeDay #Awareness #Unity #andersondiagnostics
Jisaiah's sloth buddy arrived safely in Florida 🇺🇸
Just in time for Pompe day tomorrow 🤗
Have fun 💙💚
#FindYourTribe
#PompeDisease
#PompeDay #IPD2024
#NewbornScreening
#RareDisease
Pompe Day wrap-up! Many thx to @sanofi & everyone who participated in Pompe Pearls. Remember that being rare isn’t just one day a year for #Pompe families. Share your experiences and wisdom anytime with these hashtags. #PompePearls #PompeDay #RareDisease https://t.co/mbTRrvzce8
#Pompe disease is managed by a care team covering many specialties, but the most important person on that team is you. You are an expert too! #PompeDisease #RareDisease #PompeDay
Hoy 15 de abril es el Día Mundial de la Enfermedad de #Pompe
Compartimos el vídeo realizado por la @AEEPompe en el que explica la enfermedad de Pompe infantil y de adulto
#enfermedadesraras #PompeDay
https://t.co/ndtWPP6wER https://t.co/pASF7PQ4ye
#NewbornScreening for #PompeDisease resulted in the identification of 2 infants w/ #IOPD & 6 infants with the potential risk of #LOPD. Study in @GIMJournal & presented at @TheACMG Clinical Genetics Meeting '22
Read more https://t.co/VPCR4QJlUj
#InternationalPompeDay #PompeDay
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