Top Tweets for #prvprogram
To date, RPD PRVs have been awarded to 71 therapies, resulting in more than $4.4 billion of non-dilutive, direct funding for drug sponsors. Read more at https://t.co/u5XZZlI9UX #RTWInstitute #PRVProgram
Kristin's story underscores why Congress must reauthorize the Rare Pediatric #PRVprogram - an essential driver of critical treatments for kids with rare diseases.
Today is #RareDiseaseDay—a day not just for awareness, but for action.
As we celebrate progress, we also implore leaders to support the initiatives that keep innovation alive, from restoring the #ODTC to reauthorizing the #PRVProgram.
That’s how we truly honor our community.
We’re deeply grateful to @amyklobuchar for her leadership in #RareDisease and efforts to renew the #PRVProgram. With under 2 weeks left before it expires, urge your senator to #Renew this vital program: https://t.co/uzaSdMHMrc
In the United States, 30 million people live with a rare disease, and about half of them are children. As co-chair of the bipartisan Rare Disease Caucus, I have been working to increase research and innovation to find treatments and cures for patients.
https://t.co/LIbiMtG7Gh
The Priority Review Voucher Program #PRV is set to expire in ONE WEEK. Families across the nation are urging you to take action to support the #PRVProgram, ensuring the continued development of life-saving treatments!
Time is critical—act now to help secure #Cures4RareKids: https://t.co/FKdgm8asQm
Massachusetts-based #RareDisease advocate Jean Walsh breaks it down: If the #PRVProgram changes even one child’s life, it’s worth it. But it’s set to expire in just over 10 days!
Tell Congress: Act now to preserve #Cures4RareKids!
Learn more: https://t.co/9YaBAZlSUv
Colorado mother & advocate Kate Holler knows how the #PRV transforms children's lives. Congress holds the power to ensure its success. Tell Congress now is the time to renew #PRVProgram!
Take Action: https://t.co/ymMhG3Nkpg #Cures4RareKids
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