Top Tweets for #pwspower
Sophia, a 12-year old with PWS, was crowned Illinois Miss Amazing Preteen Queen! As new queen, Sophia will take an action on her personal advocacy mission – from meeting with her school principal to reaching out to her local officials. Congratulations, Sophia! #PWSpower
Meet cousins Natalie and Rosie, the only known cousins to both have PWS! They are so rare they were told there was less than one in a billion chance of this happening.
#NationalCousinsDay #PWSAsaves #PWSAUSA #PWS #PraderWilliSyndrome #PWSpower #RareVoicesMatter #PWSadvocacy
Stacy Ward, PWSA (USA) Director of Family & Medical Support, is representing the PWS community on Capitol Hill this week by leading discussions and informing policymakers about PWS.
#RareDiseaseDay #RDLA #PWSpower #RareVoicesMatter #PWSadvocacy #PWSAsaves #PWSAUSA
We 🧡 that awareness for Prader-Willi syndrome is being raised in this video! Thanks for sharing your story, Shepherd family!
https://t.co/9vtINglCM1
#PWSAUSA #PWS #PraderWilliSyndrome #PWSpower #PWSAsaves #RareVoicesMatter #PWSadvocacy #GrowingUpRare
Shout out 📣 to our YIP volunteers! With over 1,000 attendees, this year's National Convention was an overwhelming success, and we couldn't have done it without our dedicated volunteers!
#PWSA2019 #PWSAUSA #PWS #PWSpower #PWSAsaves #RareVoicesMatter #PWSadvocacy #GrowingUpRare
We know how hard it may be for your child to communicate, even if they want to participate this #Halloween. Download and print these cards to hand out when trick-or-treating.
#PWSAUSA #PWS #PraderWilliSyndrome #PWSpower #PWSAsaves #RareVoicesMatter #PWSadvocacy #GrowingUpRare
PWSA Board President is conducting the organizational business meeting as we begin lunch. Lots of info to be provided at lunch and 2 more sessions after. Don’t forget to stop by the photo booth and post your picture!
#PWSA2019 #PWSAUSA #PWSAsaves #PraderWilliSyndrome #PWSpower
Stop by the PWSA (USA) selfie station 🤳 and share your story! We're looking for individuals with PWS to share what it is like #GrowingUpRare to raise awareness for PWS.
#PWSA2019 #PWSA2020 #PWSAUSA #PWS #PraderWilliSyndrome #PWSpower #PWSAsaves #PWSadvocacy
Congratulations to our outstanding volunteer award recipients, Paige Rivard, Lisa Matesevec, Lisa Thornton, Tammie Penta and Julie Doherty.
These amazing women have impacted individuals and the entire PWS community.
#PWSA2019 #PWSAUSA #PWSAsaves #PraderWilliSyndrome #PWSpower
Are you ready to dance the night away? Ready to win some prizes? Our fun evening is just getting started.
#PWSA2019 #PWSAUSA #PWSAsaves #PraderWilliSyndrome #PWSpower #PWSAUSAGala
Our exhibit hall is packed during the breaks - be sure to visit all of them and get your card stamped for a chance for a free 2021 conference registration.
#PWSA2019 #PWSAUSA #PWSAsaves #PraderWilliSyndrome #PWSpower
Don't forget to stop by the Millendo Therapeutics table and design a tile for PWS research!
For every tile attendees create, Millendo will donate $10 to PWS research!
#PWSA2019 #PWSA2020 #PWSAUSA #PWS #PraderWilliSyndrome #PWSpower #PWSAsaves #PWSadvocacy #GrowingUpRare
We are being inspired by Rick Guidotti of Positive Exposure about seeing the beauty of everyone - the human behind the syndrome.
#PWSA2019 #PWSAUSA #PWSAsaves #PraderWilliSyndrome #PWSpower #PositiveExposure
Day 1 of the General Conference is underway - largest gathering ever!
#PWSA2019 #PWSAUSA #PWSAsaves #PraderWilliSyndrome #PWSpower
Interested in working collaboratively to address challenges and provide support to other parents of children with PWS? Contact us at [email protected] to find out more or stop by the PWSA (USA) table.
#PWSA2019 #PWSA2020 #PWSAUSA #PWS #PraderWilliSyndrome #PWSpower #PWSAsaves
Retired Sgt. Tammie Penta presenting on law enforcement the tools needed to interact with individuals with special needs, including Prader-Willi syndrome.
#PWSA2019 #PWSA2020 #PWSAUSA #PWS #PraderWilliSyndrome #PWSpower #PWSAsaves #PWSadvocacy
There’s so much going on here at the PWSA National Convention - we can’t wait to see the rest of you at the Welcome Reception on Thursday night and the General Conference on Friday #PWSA2019 #PWSAUSA #PWS #PWSAsaves #PWSpower #PraderWilliSyndrome
Over 30 Chapter Leaders from across the USA 🇺🇸 and around the world 🌏 are meeting over the next two days at the 35th PWSA (USA) National Convention to discuss outreach, advocacy, fundraising, & other ways to help families
#PWSA2019 #PWSAUSA #PWS #PWSpower #PWSAsaves
While kiddos are having a blast at Convention, parents and caregivers will connect with other families, gain support, and learn valuable information. Who are you most excited to connect with next week in Orlando? #PWSA2019 #PWSAUSA #PWS #PraderWilliSyndrome #PWSpower #PWSAsaves
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