Top Tweets for #questioncf
The identification of the CF community’s refreshed top 10 of CF research priorities through the #QuestionCF project at the end of last year was a defining moment for CF research.
Find out our next steps to meeting them:
https://t.co/vhDZWAwnL4
#researchwednesday #cftrust
A little later than planned due to looking after lovely patients, but I’m so #excited to share our refreshed top ten priorities for #cysticfibrosis #research Thank you to everyone who helped at all stages of the process #questionCF #respisbest
So excited to see what the refreshed top 10 will look like! #questionCF
We’ll be announcing the refreshed top 10 priorities midday on Wednesday, but we thought in the meantime we’d remind you of the original top 10 from 2017 #questioncf
We’ll be announcing the refreshed top 10 priorities midday on Wednesday, but we thought in the meantime we’d remind you of the original top 10 from 2017 #questioncf
Watching @DrRCalthorpe from @CARDSCFresearch doing an excellent talk on gut symptoms in #cysticfibrosis and changes post modulator therapy #NACFC2022 #questionCF #CFTummyTracker
Poster finally delivered for #NACFC22 now what else do I need to pack? #NACFC #questionCF #Philadelphia
Thanks to all the 1.5 thousand & more of you lovely people who completed our latest #questionCF survey. Time to get analysing…
Please, if you’re in cf groups on FB put this in there, share on insta, help the #questioncf team get as many responses as possible before they close the survey. Ta.
News just in! The survey is very busy at the moment with lots of you telling us your priorities. The researchers have decided to keep the survey open until midnight PST to allow our American friends (and the night owls) time to complete the survey. Please RT! #cysticfibrosis
Email invitations are starting to be sent out from @cftrust for the workshop. Please keep checking your spam folders #questioncf
On #WorldMentalHealthDay2022 we take a look at the questions submitted by the community around mental health #questioncf
The ranking survey is still open! Please, let us know what would be in your top 10 research questions #questioncf #cysticfibrosis
Like these questions? Think we need an answer to them? Or maybe you think not all of them are relevant to you? We need you to visit our ranking survey and let us know! #questioncf #cysticfibrosis
Our ranking survey is still open, we need to hear from you! Would this question make your top 10 research priorities? #questioncf #cysticfibrosis
Have you had chance to complete our ranking survey? This question is just one of 71 submitted by the community that we need you to rank. #questioncf #cysticfibrosis
Calling everyone in the #CF community! What are YOUR top 10 CF research priorities? Take part in the #QuestionCF survey and help shape future CF research. https://t.co/EhJ2kr5ROl @questionCF @cftrust @LindAlliance 1/2
Thanks to everyone who has expressed interest to participate in the workshop for the #questionCF refresh. We’ll be contacting people soon. If anyone else would be keen to be involved, you’ve got a couple more days to let us know! https://t.co/MNo3G0CMB3 @questionCF
Important work done by members of our group. Please complete our #questionCF survey to help us find the current Top10 priorities for #cysticfibrosis #research and keep research relevant
“The results will drive the research agenda in CF for the next five years!”
As the second @questionCF survey launches, we spoke to Zoë Elliott about why the project matters!
Read Zoë's story ➡️ https://t.co/5ZREDBU2bt
Have your say ➡️ https://t.co/eXc19sOURw
As part of QuestionCF, we’re asking you to rank your top 10 research priorities in a new survey.
➡️FAQs: https://t.co/fhStyJH0KJ
➡️Survey: https://t.co/74QE3QYyMV
@questionCF #QuestionCF #cysticfibrosisresearch
Calling everyone in the #CF community! What are YOUR top 10 CF research priorities? Choose your top 10 in a #QuestionCF survey and help shape future CF research. https://t.co/PRC3dqlQga
We're so excited! Have your say and let us know your priorities for CF research. #QuestionCF
➡️ https://t.co/eXc19sOURw
Survey 2 is now LIVE! https://t.co/7Q8QMHRbRl the researchers have done their bit and we present to you the 71 questions that we would like you to go through, select your favourites and then rank your Top10. Please share far and wide
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