Top Tweets for #rarediseseday
.@CTVNews coverage of Rare Disease Day 2024, shedding light on the challenges of $1.4 Billion federal pledge for rare disease funding Let's keep pushing for progress! #Canada4Rare #fightforourlives #Rarediseseday
https://t.co/d3Z6LCa5aX
“Rare cancers remain also rarely studied, and that’s why we cannot stop working towards finding more options for the patients” - On #RareDiseseDay, we remember our mission to develop novel drugs using #AI for #rarecancers and #pediatriccancers. @rarediseaseday $LTRN
✏️Toma nota:
En las personas con #MiopatíaNemalínica las deformaciones esqueléticas son comunes, siendo el soporte ortopédico imprescindible.
Febrero, mes de las #EnfermedadesRaras
¡Conócenos!
@rarediseaseday @FEDER_ONG @Federacion_ASEM
#rarediseseday #mesenfermedadesraras
✏️Toma nota:
Con #MiopatíaNemalínica la función respiratoria suele estar comprometida, siendo el soporte con ventilación mecánica muy habitual.
Febrero, mes de las #EnfermedadesRaras
¡Conócenos!
@rarediseaseday @FEDER_ONG @Federacion_ASEM
#rarediseseday #mesenfermedadesraras
✏️Toma nota:
La #MiopatíaNemalínica está causada por mutaciones en alguno de los 13 genes conocidos por el momento.
Febrero, mes de las #EnfermedadesRaras
¡Conócenos!
@rarediseaseday @FEDER_ONG @Federacion_ASEM
#rarediseseday #mesenfermedadesraras
✏️Toma nota:
La #MiopatíaNemalínica provoca hipotonía y debilidad muscular en todo el cuerpo, predominantemente en la musculatura facial, axial y extremidades.
Febrero, mes de las #enfermedadesraras
@rarediseaseday @FEDER_ONG @Federacion_ASEM
#rarediseseday #mesenfermedadesraras
📝Toma Nota: La Miopatía Nemalínica afecta a 1 de cada 50,000 nacidos vivos.
Febrero, mes de las enfermedades raras.
@rarediseaseday @FEDER_ONG @Federacion_ASEM
#rarediseseday #enfermedadesraras #mesenfermedadesraras #miopatianemalinica #rarasperonoinvisibles #nemalinemyopathy
“Rare cancers remain also rarely studied, and that's why we cannot stop working towards finding more options for the patients” - On #RareDiseseDay, we remember our mission to develop novel drugs for #rarecancers, starting from #ATRT and other #pediatriccancers. @rarediseaseday
In 2021, my dad was diagnosed with Corticobasal Degeneration (CBD). Only 5/100000 will get a diagnosis. Little is known, and there's no cure.
My dad and my mom are incredible, and I love them loads ❤❤ #RareDiseaseDay2022 #RareDiseseDay
To help raise awareness of PSP & CBD this #RareDiseaseDay we will be sharing ten stories across ten hours today to help represent the 10,000 who could be living with the conditions in the UK.
Please help by sharing our stories or by telling your own during the day #PSPAware
The @CityBrampton #ClockTower, @cityburlington #BrantStreetPeir, @TourCNTower,@TheCalgaryTower.
@WellandBridge13 & @cityofwinnipeg #Sign will be illuminated in #RareDiseseDay Colours.
The CN tower lighting will also be visible by webcam here: https://t.co/8oq8cmo8yY
.@CityBrampton #ClockTower, @cityburlington #BrantStreetPeir, @TourCNTower, @TheCalgaryTower,
@YEG_HighLevel, @WellandBridge13 & @cityofwinnipeg #Sign will be illuminated in #RareDiseseDay Colours.
CN tower lighting will also be visible by webcam here: https://t.co/8oq8cmo8yY
The @CityBrampton #ClockTower, @cityburlington #BrantStreetPeir, @TourCNTower, @TheCalgaryTower,
@YEG_HighLevel, @WellandBridge13 & @cityofwinnipeg #Sign will be illuminated in #RareDiseseDay Colours #LightUpForRare @rarediseaseday #Canada4Rare
The @CityBrampton #ClockTower, @cityburlington #BrantStreetPeir, @TourCNTower, @TheCalgaryTower,
@YEG_HighLevel & @cityofwinnipeg #Sign will be illuminated in #RareDiseseDay Colours #LightUpForRare @rarediseaseday #Canada4Rare
.@TourCNTower, @TheCalgaryTower & @YEG_HighLevel will be illuminated in #RareDiseseDay Colours #LightUpForRare @rarediseaseday #Canada4Rare
Did you know that 75% of rare diseases affect children? Today, #RareDiseseDay, join us in raising awareness of #rarediseases and support medical research that offers hope of new treatments and cures to help sick and vulnerable children. https://t.co/1hevrRntOb #RareDiseaseDay2021
The last day of February every year is observed as Rare Disease Day to raise awareness for rare diseases and improve access to treatment and medical representation for individuals with rare diseases and their families.
#ColumbiaAsiaIndia #Awareness #RareDiseseDay
Why not try to get some friends to join you & come to this... have a great night, support a good cause & mark #RareDiseseDay
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