#raregathering - Twitter Hashtag

over 1 year ago

Only 6 months until our family conference! Our last event brought in over 400 registrants. Will you join us on July 11th to make this the biggest gathering of #cystinosis families to date? #RareDisease #RareGathering @GlobalGenes @RareDiseases

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Richard Price

@richard_price2

over 2 years ago

Tonight’s Shenanigans in 4 photos. #crazyday #photomaster #coptoak #coalville #raregathering #FridayMood

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Cystinosis CRN @CystinosisCRN

about 4 years ago

Dates and venue announced! The 2023 CRN Family Conferece is July 13 - 15 in Nashville, Tennessee. Mark your calendars and check back for details. https://t.co/LSI9Bx4ZE2 @visitmusiccity #cystinosis #conference #raregathering