Top Tweets for #rettuk
Not long to go now!
Seven members of the Rayden team are going to be jumping out of a plane on the 8th July as part of a tandem skydive to raise as much money as possible for our chosen charity @RettUK
Please donate if you can ๐
https://t.co/QyUKFafbDu
#FamilyLaw #RettUK
#rettuk #rettsyndrome #rettsyndromeresearchtrust #rarediseaseday 28th February is rare disease day.
Everyday is rare disease day for my daughter ๐
Missed the last post to send Christmas cards? ๐
Fear not, you can still send Christmas eCards to friends and family and donate what you would have spent on cards and stamps to Rett UK ๐ฅณ
๐ https://t.co/AHiklRuj7q
#RettUK #DontSendMeACard #Christmas2024
๐ Today, we stand together for Rare Disease Day, shining a light on Rett Syndrome! ๐๐
Let's raise awareness and support for those living with this rare neurological disorder. Together, we can make a difference! ๐ซ
#RareDiseaseDay #RettSyndromeAwareness #RettUK #RettSyndrome
How to be an Effective Communication Partner: Online Training Sessions ๐ฅ๐ฌ
Saturday 20th January AND Saturday 3rd February; 09:00 - 13:00 - On Zoom (link sent via email)
Registration closes at 17:00 on Tuesday 16th January ๐จ
๐ https://t.co/IxkozbTAa3
#RettUK #RettSyndrome
Wanting to spread festive cheer and support a charity this Christmas? Why not buy our very special Rett UK Christmas cards ๐๐
Cards come in packs of 10 for just ยฃ3.99 ๐
You can purchase them via our website:
๐ https://t.co/cqNO7VdOag
#RettUK #ChristmasCards #Charity
Weโre not just about legal expertise; we also know how to make a splash on the pool table.
In the โNetworking with Ballsโ tournament, we secured 3rd place in the championship league.
https://t.co/pCClNFLjmx
#thejonathanleanetwork #community #RettUK
๐#FacesOfRett October Awareness Campaign๐
Meet 15 year-old Olivia ๐ฅฐ "She is a happy girl doing really well! She loves school, her eye gaze, swimming, horse riding, walking, music therapy, and being outside" โ๏ธ ๐
#RettUK #RettSyndromeOctoberAwareness
๐#FacesOfRett October Awareness Campaign๐
Meet 4 year old Delilah! She was diagnosed with #Rettsyndrome in May 2022. Her mother says "sheโs the happiest girl I know, always laughing and smiling. She loves music and her sisters"๐ฅฐ
#RettUK #RettSyndromeOctoberAwareness
๐ Introducing our #FacesOfRett October Awareness Campaign ๐
Meet the lovely Jenny, aged 47! She is a very happy lady who enjoys swimming, spa pools, being outdoors and food! ๐ฅฐ
Want to get involved? Email us at [email protected]
#RettUK #RettSyndromeOctoberAwareness
๐ Check out these activities for #RettSyndromeAwarenessMonth organised by our fellow organisations ๐
@ReverseRett
๐ https://t.co/eHKR1zaYrd
Rett Syndrome Europe
๐ https://t.co/f4w8nkwvI4
@Rettsyndrome
๐ https://t.co/Ap7Nz4l2xV
#RettSyndrome #RettUK #OctoberAwareness
๐ฃ NEW OPPORTUNITIES TO JOIN THE RETT UK TEAM ๐ฃ
@RettUK is looking for: #TraineeTrustandFoundationFundraiser #RegionalCommunicationChampions
https://t.co/TvvoYL381t
Closing date: Friday 21st July!
#RettUK #JoinOurTeam #JobOpportunity #RCCs #Hiring #JobSearch #RemoteWork #Job
Happy #InternationalWomensDay to all the amazing girls and women in our lovely @RettUK family! You are all such strong, beautiful and remarkable individuals who deserve to be celebrated ๐๐
#EmbraceEquality #InternationalWomensDay #RettUK
Thank you for engaging with the #RettUK #CommunicationAndEducationTeam today. If you want to become a #CPN member and continue the discussion around #RettSyndrome, or have any questions, get in touch. @RettUK @gstownend @Abigail090510 @TrAACeyc @BeccasStudies @DimmickKelly
The #RettSyndromeCommunicationGuidelines recommend extended #AAC device loans and trials to develop skills. #RettUK offer a supported #AAC device loan scheme where families partner with a #RCC buddy. We are pleased to work in partnership with @TobiiDynavox and @ThinkSmartbox.
Hello everyone. Welcome to @RettUKโs #GVTwitterTakeover. We are mid-way through #RettSyndromeAwarenessMonth and looking forward to talking all things #Rett and #SLT. Share your comments and questions with our #CommunicationAndEducationTeam through the day.
#RettSyndrome #RettUK
#RettUK we have a dedicated project to help people with #RettSyndrome maximise their communication potential #TuesdayTakeover #AAC #Communication
https://t.co/qHlnhnX8Jb
I haven't posted in awhile, but I am still on track to hit the 2021 goal for the year. I am running Manchester marathon on sunday so any motivating donations would be happily received! https://t.co/1poYfpQ1te #runtheyear #rettuk #manchestermarathon
Today marks the start of Rett Awareness month. Rett is a rare genetic disorder that affects brain development, estimated to affect 1:12,000 girls and is only rarely seen in boys. We are experienced in supporting children with Rett and are keen to raise awareness. #RettUK
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